Autism: Finding Success the First Year. By Katie Wride, ASA-GPC Parent Mentor. 1 - Join a support group in your area -Online, in-person, Parent Mentors 2 - Get a diagnosis 3 - Contact DDD/ALTCS 4 – Contact your school district. 5 – Learn:
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By Katie Wride,
ASA-GPC Parent Mentor
-Online, in-person, Parent Mentors
2 - Get a diagnosis
3 - Contact DDD/ALTCS
4 – Contact your school district
5 – Learn:
- By reading books and websites off of suggested reading lists
- By attending local or natl. conferences
6 – Find local Doctors
(See co-morbid conditions)
7 – Begin therapies
(Agency and Parent-led)
8 – Find time for yourselfWhat do I do first?
EAST VALLEY MEETING:
We are partnering with EVAN (East Valley Autism Network) and ABC(Autism Biomedical Connections) for this meeting each month
WHEN: 4th Tuesday of each month
WHERE: Mi Amigo’s Mexican Restaurant-1264 S Gilbert Rd, Mesa, 85204
NORTH VALLEY MEETING:
TIME: 6:30 to 8:00pm
WHEN: 3rd Wednesday of the month
WHERE: Paradise Valley Community Center-17402 North 40th St. Phoenix, 85032
WEST VALLEY MEETING
We are partnering with Shelly Vincant’s West side group for this meeting.
TIME: 7-9 PM
WHEN: 2nd Monday of each month
WHERE: New Life Community Church-8155 W. Thunderbird Rd., Peoria, 85381
Mom’s Meet Up
WHEN: Friday from 9:30 to 11:00 AM
WEST VALLEY: Wildflower Bread Company at Arrowhead Gateway17530 N. 75th Avenue Glendale, 85308
NORTH VALLEY: Paradise Bakery at Desert Ridge, 21001 N. Tatum Blvd., Suite 48-1520 Phoenix, 85050
EAST VALLEY: Barnes and Noble at San Tan Village, 2150 East Williams Field Rd #105 Gilbert, 85295
You will need an Autism diagnosis (or an at risk for Autism before age 6) from a licensed psychologist or developmental pediatrician. (See Doctors who diagnose handout).
Chris Nicholls, PhD, ABPdN
Telephone number is 480-998-2303
Hoard, Cynthia E. EdD
Michael LeVoie at Phoenix Children's Hospital
Developmental & Educational Psychological Services
Contact: Carol McLean, Ph.D. Clinical Child Psychologist
Logerqist, Sally J. PhD
Dr. Alan Wexler
Val Vista and the US 60
Dr. Astrid Heathcote
480-275-2249 in Awahtukee
Christina K. Lebovitz, Ph.D
Programs in Developmental and Behavioral Pediatric CenterDevelopmental Evaluation Clinics, St. Joseph's Children's Health CenterTel: (602) 406-3543Contact: Dr. Daniel Kessler,
Dr. Karlsson Roth, Ph.D., Ltd.Tel: (602) 863-0101
Dr. Jan Blackham, PhD
Phoenix Children’s Hospital
Lanie Y. Zigler. Ph.D., Neuropsychology Specialists
(602) 996-1396; (602) Email: firstname.lastname@example.orgWeb : www.azcns.com
Melmed CenterTel: (480) 443-0050Web site: www.melmedcenter.com2 – Get a diagnosis – Some Doctors that diagnosis
1. First - Contact DDD at:
- Visit the Navigating the system guide at: https://www.azdes.gov/ddd/downloads/navigating%20web%20version.pdf
Arizona Early Intervention Program for children 0-3 years oldwww.azdes.gov/azeip/azeipinfo.asp
In order to be eligible for DDD you must:
1- Be a resident of Arizona
2- Be at risk of having a developmental disability (before the age of 6); after the age of 6 you must have a diagnosis of : epilepsy, cerebral palsy, Autism, or cognitive disability
3- Must be diagnosed before the age of 18
4- Must have functional limitation in 3 of 7 major life areas: Self-care, receptive/expressive language, learning, mobility, independent living, self-direction
Central Administrative Office
1789 W. Jefferson St. Phoenix, AZ 85007
Health Care Services - 2200 N. Central Ave., 207 Phx, AZ 85004
DISTRICT VIII (ATPC) -
2800 N. Hwy. 87 Coolidge, AZ 85229-1467
TOLL FREE NUMBERS
Central Office: 1.866.229.5553
District I: 1.800.749.9490
District II: 1.877.739.3943
Show Low: 1.888.537.8013
Window Rock: 1.800.770.6493
Tuba City: 1.866.283.4520
District IV: 1.877.739.3922
Apache Junction: 1.877.739.3926
District VI: 1.877.739.3938 x5625
DISTRICT I (MARICOPA COUNTY)
District Administrative Office*
4000 N. Central St., Ste. 900 Phoenix, AZ 85012
*Intake 3 years old and over
Camelback Office - 2001 W. Camelback Rd. Ste. 170 Phoenix, AZ 85012 602.870.1721
Dobson Office - 163 N. Dobson Rd. Mesa, AZ 85201 480.890.7301
McKinley Office - 1824 E. McKinley St. Phoenix, AZ 85006 602.258.2375
Indian School Office (Intake 0-3 years - 1430 E. Indian School Rd., Ste. 205 Phx, AZ 85014 602.277.8724
Mesa Office - 1619 E. Main St. Mesa, AZ 85203 480.834.4233
Metro Office - 11225 N. 28th Dr. C-207 Phoenix, AZ 85029 602.375.1403
North Office - 14040 N. Cave Creek Road Phoenix, AZ 85022 602.485.0236
South Office - 2602 S. 24th St., Ste. 108 Phoenix, AZ 85034 602.231.9218
Southwest Office - 3802 N. 53rd Ave., #250 Phoenix, AZ 85031 623.845.9804
Tempe Office - 5038 South Price Road #114 Tempe, AZ 85282 480.831.0153
Gilbert Office - 2288 W. Guadalupe Rd. Gilbert, AZ 85323 480.831.1009
Avondale Office - 290 E. La Canada Blvd. Avondale, AZ 85323 623.925.5270
Surprise Office - 11526 W. Bell Rd. Surprise, AZ 85374 602.771.1700ARIZONA DEPARTMENT OF ECONOMIC SECURITY Division of Developmental Disabilities District Offices
2. Second - contact Arizona Long Term Care to qualify for federal funding for services:(ALTCS)602-417-6600 –Phx office; 602-417-6400- Mesa office
-You will first have a financial interview over the phone to make sure that your child does not have more than $2000 in his/her name to qualify.
-Next you will have an interview to determine if your child is at risk for institutionalization. The interviewer will ask you questions from the PAS tool and you will need 40 points to qualify for services.
-Contact an ASA-GPC Parent Mentor to help you through this process.
-Arizona’s Health Care Cost Containment System AHCCS (state medical insurance)http://www.ahcccs.state.az.us/site/
In order to get appropriate services for your child in school, contact your local school district and ask in writing for a complete Educational evaluation to be completed on your child. They will have 60 days to evaluate your child.
To find your school district look up Arizona Department of Educationat:www.ade.az.gov or call 602-542-5393
Once your child is evaluated for Special Ed services you will have an IEP meeting to determine goals and what placement is appropriate for your child’s needs.
For more information on IEP’s and Special Education Law visit: www.wrigtslaw.com
Gila, PinalAmy Dill(480) 759-1029Maricopa - West(623 Area Code)Jill Castle(480) 699-0067Maricopa - East(480 Area Code)Barbra Ross(480) 607-3030Maricopa - Central(602 Area Code)Holly Reycraft(480) 726-7205
Where to go for help or for more information
Arizona Center for Disability Law: Advocates for the legal rights of persons with disabilities* to be free from abuse, neglect and discrimination* to have access to education, health care, housing and jobs, and other services in order to maximize independence and achieve equality Visit: www.acdl.com Phoenix: (602) 274-6287
Arizona's Advocates:Assisting families in reaching the high expectations for your child and supporting successful navigation of the educational system to get the appropriate services and placement. These are experienced advocates here to help you gather information, understand the rules of the special education process, and to support you to plan and prepare for meetings. We bring knowledge, experience, and expertise to your child's educational meetings. www.ArizonaSpecEdAdvocates.com (602) 471-0346
Autism Society of America- Great Phoenix Chapter’s Parent Mentors
Raising Special Kids : a non-profit organization of families helping families of children with disabilities and special health needs in Arizona. All programs and services are provided to families free of charge. At all ages and stages of a child's development, Raising Special Kids supports parents through Parent-to-Parent programs, Special Education information, individual IEP consultation, training, and problem-solving support. Contact them at (602) 242-4366 or www.raisingspecialkids.org
Arizona Governor's Council on Developmental DisabilitiesWorks to build bridges, increase understanding and create opportunities to banish misconceptions and change public policy: www.azgcdd.org
Early Intervention / Applied Behavorial Analysis (ABA)
IEP / School Districts & Legal Issues
Learn the co-morbid conditions and the specialists in the valley that will rule these out (See co-morbid presentation)
Even before you are approved for therapies through the state, check your insurance company to see if they cover OT, Speech, and Physical therapy for your child. Contact the ASA-GPC Parent Mentors or the Autism Resource Guide From ASA-GPC coming at the end of the summer for a recommended list of agencies that provide these therapies.
Once approved through the state, often you will receive OT, Speech, Physcial, & Music therapies as well as Habilitation and Respite.
Therapies for Autism
Educational/behavioral therapies are often effective in children with autism, with Applied Behavioral Analysis (ABA) usually being the most effective. These methods can and should be used together with biomedical interventions, as together they offer the best chance for improvement. Parents, siblings, and friends may play an important role in assisting the development of children with autism. Typical preschool children learn primarily by play, and the importance of play in teaching language and social skills cannot be overemphasized. Ideally, many of the techniques used in ABA, sensory integration, and other therapies can be extended throughout the day by family and friends.
Affinity Family Care - www.affinityfamilycare.com
Arion Care Solutions - www.arioncaresolutions.com
Arizona Autism United (AZA United):www.azaunited.org
Baio Enterprises – www.baioenterprises.com
Boulder Mt Therapy - www.bouldermountaintherapy.com
Center for Autism and Related Disorders, Inc. (CARD) - www.centerforautism.com
Coester Cares Therapy Services, LLCwww.coestertherapyservices.com
Guthrie Mainstream - www.guthriemainstream.org
HOPE Group - www.hopegroup.org
Lauren's Institute for Education (L.I.F.E.)www.laurensinstitute.org/
Pediatric Language & Speech Specialistswww.pediatricspeech.net/
PlayABA - www.play-aba.com
S.E.E.K. Arizona - www.SEEKArizona.org
Be sure to use respite (babysitters) to get out and do the things you loved before you entered on the Autism journey.
Remember that marriage support is key-(Over 85% of marriages of parents of children with Autism end in divorce.)
Remember your other children – they need your love and attention too.
Be sure to have a hobby of your own, exercise, and even read for pleasure!
Even though there is a lot to handle with a child with Autism, you have to remember that this is a marathon and not a sprint.
You must never forget that there is hope, even when others may say there is not. With treatments like biomedical interventions, ABA, RDI, AIT, etc. children with Autism are getting better and recovering skills many never thought possible. YOU CAN DO IT!