Speaking From Experience…. Kerry Fannon, PMP MiPCT, Patient on the Patient Advisory Council. Of all my friends, I was the “picture of health”, at 53. Houston, We Have A Problem….
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Kerry Fannon, PMP
MiPCT, Patient on the Patient Advisory Council
Houston, We Have A Problem…
February 2012: 2 months before diagnosisSymptoms: waistline started to bulge, gained weight for the first time, bowel shape/size changed, and it was getting harder to eat as much as usual
Apr 2012: 2 weeks before diagnosisFootball sized fluid filled “something”, pelvis starts to bulge, eating is more like nibbling
Dr. Glenn Taylor, MDInfinity Primary CarePark Family Practice
Ellen Higgins, PA-CRadiology
Dr. Carolyn Johnston, MDOb/Gyn Surgical Oncologist
A rare, mucin generating Peritoneal Surface Malignancy (PSM), which leads to fatal bowel obstruction/starvation
It is considered slow growing and usually does not spread to lymph nodes or through the blood stream; regional
It may originate in the Appendix or Ovary and is considered one of several different types of Appendix Cancer, and may be discovered during a Caesarean section or appendectomy
- Complex Cytoreductive Surgery (CRS)
- Hyperthermic Intraperitoneal Chemotherapy (HIPEC) *a highly skilled and experienced specialist is required and will have performed >330 treatments
Dr. Paul Sugarbaker, MD, FACS, FRCS
Laurie Todd TheInsuranceWarrior.com
Getting back on my feet with about 12 tubes and drains, experienced nurses, and family support
Recovery At Home Is Fancy Footwork
They found a “fast-growing” secondary cancer, of aggressive looking PCMA-I* cells found in the pelvic lining and ovaries*peritoneal mucinous carcinomatosis – intermediate stage
Treatment – FOLFOX6 Chemotherapy
Genetic Counseling and Testing – results were negative for Lynch’s Syndrome
Dr. Krauss, MD, medical oncologist Pamela Fisher, PA-C (not pictured)
Canton Infusion Center: Alice
Many caring people who knew their stuff!
It saves time getting ready for work so I can sleep longer I wanted to look healthy
Preparing to Return to Work Before Chemo
No one could tell it wasn’t my hair
Shannon – Wig Consultant
Kerry & Chris
FOLFOX4 Chemotherapy Side Effects new routine
Fingers, toes, hair and skin took a beatingExtremely cold…even when bundled up at 72 degrees
Avoided germs with mask & gloves and was often a “shut-in”
MiPCT Care new routineManager
My Guide and “Safety Net”
Assisted Discharge planner in Washington D.C. with identifying TPN providers in Michigan
Supported me during the removal of sutures and recovery from major surgery
Provided weekly calls during recovery & Total Parenteral Nutrition (TPN) months to provide education and support
Assisted me in preparing to return to work by setting realistic expectations with myself and my employer. This included a flexible work schedule to accommodate Chemotherapy treatments while providing a valued work assignment.
Assisted me in planning for Chemotherapy which included thinking about timing around year-end holidays, managing working and home life during Chemo, side effects, level of energy, protecting myself from getting sick from other people, etc.
Paula Amormino, RN, MSA, CCM
MiPCT Central Clinical Coordinator
Subtle pin prick and elastic band sensations around the waist, and a “hitch” on right side
Uncharacteristic waistline bulge and weight gain, in spite of caloric reduction
Oct ‘12-Jan ’13
Feb – June ’13
Primary Care Physician (PCP) was not available, so I saw another doctor in the practice and had an ultrasound but nothing found…I needed a pelvic ultrasound
I insisted on seeing my PCP, had pelvic ultrasound, then a CT scan-issue but not sure what it is. A gynecologic surgical oncologist makes the diagnosis.
Surgeon accepts me as patient, recover from Bronchitis 3 weeks before surgery, shut-in to stay healthy, got insurance to cover Surgeon 1 week before, surgery videotaped as part of conference at the Hospital
Recovery, TPN, get news I have secondary cancer and need Chemotherapy once off of TPN and stronger
July - Sep‘12
Returned to work Oct 1 50%, full-time by Oct 15th, started Chemotherapy the 4th week of October
Chemotherapy at Canton Infusion Center, used HomeMed for disconnect, participated in pilot for bolus (baby bottle-like infusion); no pump.
Worked full-time from home full-time, mostly shut-in, to stay healthy and away from germs. Finished Chemo end of April. Went to “Health Camp” for a week in May.
I’m given an 80% probability to live 20 more years without this diseaseI’m monitored for recurrence; currently no evidence of disease (NED)
I’m working on lifestyle changes (nutrition, exercise, stress management, spiritual wellness, etc.) to strengthen my immune system and prevent disease
Thank You new routine