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Pilot WP 6.4 Genomics & colon cancer

Pilot WP 6.4 Genomics & colon cancer. CPR-Reg, journals, Death certificates. Referral. Pedigree. HNPCC. No. No Surveillance. Mutation Detected. No. Surveillance. Yes. Fam.members offered Gen.test (diagnose). Mutation. No Surveillance. Surveillance. No. Yes. Data flow.

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Pilot WP 6.4 Genomics & colon cancer

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  1. Pilot WP 6.4 Genomics & colon cancer

  2. CPR-Reg, journals, Death certificates Referral Pedigree HNPCC No No Surveillance Mutation Detected No Surveillance Yes Fam.members offered Gen.test (diagnose) Mutation No Surveillance Surveillance No Yes Data flow Yes, but no DNA available Surveillance Yes, and DNA isavailable Gen.test (screening) HNPCC Gen. dept Sur.dept Lab.

  3. Genetic departments Collaborators Århus HNPCC-register Rigshospital Vejle Kennedy Panum Odense

  4. Laboratories Collaborators Ålborg Skejby Rigshospital Hvidovre

  5. Frederikshavn-Skagen Surgical departments Collaborators Hjørring-Brønderslev Acknowledgement Ålborg Nykøbing-Thisted Skive Viborg Randers Holstebro Silkeborg Herning Skejby Helsingør Hillerød Frederikssund Horsens Gentofte Holbæk Herlev Vejle Rigshospital Kalundborg Roskilde Bispebjerg Fredericia Frederiksberg Glostrup Esbjerg Kolding Hvidovre Hvidovre Køge Slagelse Odense Haderslev Næstved Åbenrå Svendborg Bornholm Tønder Sønderborg Nykøbing-Falster

  6. Frederikshavn-Skagen Gynaecologic departments Collaborators Hjørring-Brønderslev Acknowledgement Ålborg Nykøbing-Thisted Skive Viborg Randers Holstebro Silkeborg Herning Skejby Helsingør Hillerød Frederikssund Horsens Gentofte Holbæk Herlev Vejle Rigshospital Kalundborg Roskilde Bispebjerg Fredericia Frederiksberg Glostrup Esbjerg Kolding Hvidovre Hvidovre Køge Slagelse Odense Haderslev Næstved Svendborg Tønder Sønderborg Nykøbing-Falster

  7. Pathology departments Collaborators Hjørring-Brønderslev Acknowledgement Ålborg Skive Viborg Randers Holstebro Herning Skejby Hillerød Horsens Holbæk Herlev Vejle Rigshospital Kalundborg Roskilde Bispebjerg Fredericia Esbjerg Hvidovre Hvidovre Slagelse Odense Næstved Svendborg Sønderborg Nykøbing-Falster

  8. HNPCC-register Today: Paper based 6 genetic dept. 4 laboratories 40 surg.dept. >30 gyn.dept. 25 path.dept Future Aims: Interoperability Communication Further IT-support Web-reporting of data

  9. XML Schemas Implementation HL7 compliance HL7 standard ? WEB-client FORTH Clinical content

  10. Genetic Department Surgical Department Århus Odense Vejle Århus Ålborg Hvidovre Laboratory Hvidovre Århus Ålborg Odense Herning Hvidovre Copenhagen Invited departments

  11. Web Service Provider Web Server Danish Health Data Network Vali-dation HNPCC DB Front end Web Page Client Web Service Client HTML Web Service Laboratory / Surgery Dep. / Genetic Dep. Not part of InfoBioMed

  12. Genetic Department Surgical Department Århus Odense Vejle Århus Ålborg Hvidovre Laboratory Hvidovre Århus Ålborg Odense Herning Hvidovre Copenhagen System implemented

  13. WP 6.4 Genomics and colon cancer

  14. Session count users

  15. Session count reporters

  16. 134 XML – 87% Surgical dept

  17. 67% increase surveillance reports

  18. Scope of data exchange Better reporting Improve treatment Adjust screening program Increase research Nationally/Internationally

  19. Gaps identified Lack of Standards Local databases Time-consuming Implementation Reporting Interest – Feed-back

  20. Specific outcome • Current status data exchange HNPCC • 4 XML standards on clinical content • Design of XML documents • WEB service client • Experience • Implementation • Evaluation • Dissemination • Early HL7 and CDA experience • Ethical, legal and security issues

  21. Disseminations 10 February 2007 Majorca Oral presentation INFOBIOMED Genomic & Colon Cancer

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