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A major collaborative research initiative funded by the Social Sciences and Humanities Research Council of Canada, focusing on long-term care models. Involving 26 academic co-investigators across 12 disciplines from six countries, partnered with five unions and two employer associations. The approach emphasizes dignity, respect, and equity for both providers and residents. Four themes guide the research, addressing care approaches, work organization, accountability practices, and financing models. Methodologically, the initiative employs various layers such as mapping, design phases, rapid ethnographies, and data analysis, integrating interdisciplinary approaches. Emphasis is placed on contextual factors, relationships among workers, and the importance of time, space, and diversity. Tensions between medical and social care, home and institution, regulations and trust, risk and autonomy, and more are explored.
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A Major Collaborative Research Initiative funded by the Social Sciences and Humanities Research Council of Canada Pat Armstrong, PhD, Principal Investigator, York University
Who’s Involved • 26 academic co-investigators • 12 disciplines • Six countries • Five union partners • Two employer association partners • Post-docs, graduate students • Community and advocacy groups
Our Approach • to treat both providers and residents with dignity and respect • to understand care as a relationship • to take differences and equity into account
Four theme areas: Group members switch for years 4 to 6
Guiding Questions • What care approaches support long-term care as a viable, desirable and equitable option for individuals, families and caregivers? • What kinds of work organization are most promising in meeting the needs and balance the rights of residents, providers, families and communities? • What promising practices to accountability nurture care and inspire quality workplace relations in long-term residential facilities? • What financing and ownership models are promising in ensuring equitable access to quality long-term residential care while reducing the offloading of both material and other costs onto workers, employers, families or individuals?
Overarching Methods Layers: 1. Mapping 2. Design phase 3. Rapid Ethnographies 4. Data analysis and integration
Methodological Assumptions • Interdisciplinary approaches apply different lens • Fresh eyes help us see different aspects, collective work central • Multiple methods capture complexity as well as multiple views • Those who do the work provide an authentic picture • Attend to noises and silences • Some consistency and considerable flexibility
Why Promising Practices? • Context matters, and at multiple levels. It includes political economy, geography, social and physical structures and history • Conditions of work are conditions of care • Entire range of players matter; researchers, managers, unions, volunteers, family, residents, all employees, representatives of families, residents, workers, regulators
Why Promising Practices? • Relationships among different categories of workers are critical to care • Gender, racialization, class, sexuality matter • Time matters: time of day, of life, of job tenure; time for tasks • Not only physical spaces and community locations but also sounds, light, smell, crowding, art, clothing
Why Promising Practices? • Looking for promising practices also involves recognizing negative practices, asking for whom they are promising, under what conditions; being open to surprises • Recognizing tensions and contradictions within and outside residences
Tensions • Medical vs social (including architecture) • Home vs institution (whose home?) • Regulations vs trust • Risk vs autonomy • Control vsresponsibilization • Specialized vs general; culturally specific vs inclusive • Large vs small • Privacy vs community • Ability vs disability • Individual vs structures