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Transition to Adulthood: Improving Outcomes by Preparing for Changing Roles

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  1. Transition to Adulthood: Improving Outcomes by Preparing for Changing Roles (Families, Youth & their Docs too!) Patti Hackett, MEd HRTW National Center Natick, MA

  2. Essential • Self-Differentiation • Health Insurance • Prevention of Secondary Disabilities 4. Tools: Reporting (Preparing for the Difference)

  3. DO or NOT DO, there is no “try”.

  4. You can’t do it as well as I can I don’t want you to get hurt.

  5. FAMILIES: Prepare for Changing Roles • Self-Differentiation is a progressive, internal • interplay between autonomy (separation) • and connection (togetherness) while progressing • toward developing and known goals. • SOURCE: http://rodesmith.com/2006/03/25/bowen-differentiation/

  6. Safe Trials Why Not?

  7. HANDOUT Health & Wellness 101 The Basics Transitions – Changing Roles For Families Transitions – Changing Roles For Youth Q> How could YOU use this tool?

  8. Handout: 01 A Rhode Island Department of Health Pediatric to Adult Healthcare Transition Guidance & Checklist

  9. Growing Up Ready to Have Fun! Community Inclusion Manager of the Team Buddy with Capt of the Team

  10. Growing up ready for work……….. & vacation

  11. SECONDARY DISABILITIES -Prevention/Monitor - Mental Health - High Risk Behaviors AGING & DETERIORATION - Info long-term effects (wear & tear; Rx, health cx) - New disability issues & adjustments Screening

  12. Screen for All Health Needs • Hygiene (look good, feel good, smell good) • Nutrition(Stamina, Bowel Management, obesity, etc.) • Exercise(fitness and stamina) • Sexuality Issues(masturbation, STIs, GLBTQ/Twin Spirits) • OB-GYN(Routine care, Birth Control, Rape) • Mental Health(genetic, situational) • Routine(Immunizations, Blood-work, Vision, Dentist, etc.)

  13. Maintaining Private Health Insurance

  14. Michelle’s Law (October 9, 2009) – Medical Leave • House Bill 2851 (HR 2851), otherwise known as Michelle’s Law, is a federal law that requires health plans and issuers of health insurance coverage to continue coverage for college students who are forced to take a leave of absence or change their enrollment status due to a serious illness or injury. • This law applies to fully insured and self-funded (ERISA and non-ERISA) Group and Individual medical, pharmacy, behavioral health and, when part of the health plan, dental and vision coverage.

  15. Maintaining Private Health Insurance

  16. Maintaining Private Health Insurance

  17. Autism Health Insurance Laws Group Offers Plain English Guides To Autism Insurance Laws http://www.disabilityscoop.com/2010/02/15/autism-insurance-faqs/7008/ Autism insurance legislation exists in: AZ, CO, CT, FL, IL, IN, LA, MT, NV, NJ, NM, PA, SC TX and WI Fact sheets for each state http://www.autismvotes.org/site/c.frKNI3PCImE/b.5796433/k.352C/State_FAQs.htm

  18. 2/23/2010 States with Autism Insurance Reform Bills States with Endorsed Autism Insurance Reform Bills States with Autism Insurance Reform BillsPending Introduction or Endorsement States Not Currently Pursuing Autism Insurance Reform http://www.autismvotes.org/atf/cf/%7B2A179B73-96E2-44C3-8816-1B1C0BE5334B%7D/State%20Map%20-%202.23.10.pdf

  19. Maintaining Public Health Insurance

  20. Handout portable medical summary

  21. Handout: Portable Medical Summary • Carry in your wallet • Good Days • - Cheat Sheet:Use as a reference tool • Accurate medical history • Correct contact #s • Document disability • Health Crisis • Expedite EMS transport & ER/ED care • Paper talks when you can not

  22. Handout HRTW 8 Tips: Thriving Health & Wellness

  23. Handout Template: Activities of Daily Living Task Time Allowances

  24. DO or NOT DO, there is no “try”.

  25. Growing Up Ready to LIVE! Health & Wellness …. + Humor

  26. Thanks! Patti Hackett pattihackett@yahoo.com