Kupu Taurangi Hauora o Aotearoa. Health and Disability Consumer Representative Training. MODULE THREE Evidence base. Welcome and introductions. Who you are Where you’re from What you want to get out of the training today. Evidence base. Goals for the day.
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Who you are
Where you’re from
What you want to get out of the training today
Health inequities are defined as:
‘... differences which are unnecessary and avoidable… and are considered unfair and unjust. They do not occur naturally and are not random but are the result of social and economic policy and practices.’
(Ministry of Health 2004)
There are significant inequalities in health between socioeconomic groups, ethnic groups, people living in different geographical regions and males and females. (Reid & Robson 2007)
Ethnic identity is an important dimension of health inequities. Māori and Pacific peoples experience lower life expectancy and health disadvantage across most mortality and morbidity indicators compared with pākehā. (Harris 2012)
Māori populations still have higher levels of unmet need for GP care than non-Māori and receive a lower quality of care under treatment for some conditions. (Ministry of Health 2010)
Compared with the total New Zealand population, Pacific peoples have poorer health status across a wide variety of measures, including child and youth health, risk factors leading to poor health and long-term conditions. (Ministry of Health 2010)
New Zealand’s migrant, refugee and Asian populations are increasing and facing increasing health issues. (www.moh.govt/asian)
What are the barriers (if any) to accessing health services for these population groups?
The district health boards have a statutory responsibility under the New Zealand Public Health and Disability Act 2000 to:
Health and disability research
The Health Research Council of New Zealand is a Government agency responsible for managing the Government’s investment in health research. (www.hrc.govt.nz)
The Health Research Council (HRC) is committed to ensuring that all research involving human participants is based on good science, meets ethical standards and complies with international best practice.
To achieve this:
Health and disability researchers can access funds from a range of organisations including:
3. ‘Towards a Pacific Island definition of deliberate self harm’10 months, $10,000, University of Auckland
This website has three very good videos about consumer involvement in health research and evidence-based care
Active involvement by consumers:
‘Consumer involvement in research relates to an active relationship between consumers and researchers in the research process and leads to research of greater quality and clinical relevance due to the unique perspective that consumers bring to a research project.’
(Boote et al 2002)
A clinical trial is defined as a prospective scientific experiment usually conducted to assess the safety and effectiveness of an intervention in groups of subjects.
Interventions can be: diagnostic, preventative or therapeutic, and can include drugs, biologics, medical devices or methods of screening, or procedures to improve the quality of life.
Patients are assigned at random either to receive a new drug (the standard treatment for that disease), or a placebo (that is, a sugar pill which has no effect).
These are followed up in exactly the same way in terms of care and treatment received (for example, procedural tests, outpatient visits) and then compared.
Randomisation helps to ensure the groups in the trial have similar characteristics, making it easier to compare outcomes between groups.
The Australia and New Zealand Breast Cancer Trials Group conducts an independent, collaborative breast cancer clinical trials research programme. Consumers with an interest in breast cancer clinical trials research are encouraged to join IMPACT – Improving Participation and Advocacy for Clinical Trials.
These are currently being conducted worldwide, including in NZ by Roche NZ: