Kupu Taurangi Hauora o Aotearoa. Health and Disability Consumer Representative Training. MODULE TWO Experience base. Welcome and introductions. Who you are Where you’re from What you want to get out of the training today. Experience base. Goals for the day.
Who you are
Where you’re from
What you want to get out of the training today
Telling your story is a way to share the values that define who you are. As a lived experience around choice points – when you faced a challenge, made a choice and experienced an outcome. (Marshall Ganz 2011)
Storytelling, or narratives, is how we share experiences with each other.
Roles and responsibilities
Misunderstanding about contribution and role
Lack of awareness
Poor support and resources
Fear that costs will escalate and power will devolve
Not knowing how to access ‘suitable’ patients and consumers
Previous bad experience on a group or committee
(Adapted from the North Carolina Office on Disability and Health, 2004)