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Enhancing European Disability Data for UN CRPD Implementation

This policy tools research explores existing human rights and disability data streams in Europe, aiming to assess their adequacy for implementing the UN CRPD and identify the necessary improvements. It examines legal requirements, researches current data status, and proposes steps to meet Article 31 obligations. With a focus on mental disability advocacy in Hungary and spinal cord injury research in Switzerland, the study aims to enhance data collection practices at national and European levels.

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Enhancing European Disability Data for UN CRPD Implementation

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  1. Policy Tools (1): Existing Human Rights & Disability Data Streams in Europe (Art. 31) Carly Toepke, JD Disability Policy Group, Swiss Paraplegic Research (SPF), Nottwil, Switzerland Faculty of Law, University of Lucerne, Switzerland

  2. Research Questions: • What is the current status of persons with disabilities in Europe according to the data available? • Is this data appropriate for the Member States to effectively implement the UN CRPD? • If not, what is the European data baseline (minimum data set) to be improved upon? • What are the legal requirements for the collection of data at national and European level? • What further steps do Member States need to take in order to meet the requirements in Article 31 of the UN CRPD?

  3. Research Objectives:

  4. Methodology:

  5. Anticipated Problems:

  6. Placement : • Mental Disability Advocacy Center • Budapest, Hungary • Hungary was the first EU country to ratify the UN CRPD and Optional Protocal in 2008 • MDAC is advocating for implementation of the UN CRPD and an independent monitoring device • Swiss Paraplegic Research • Nottwil, Switzerland • SPF’s mission is to improve functioning, social integration, equality of opportunity, health, self-determination and quality of life for persons with paraplegia or tetraplegia • Disability Policy Unit’s objective is to impact assessment of health and social policies and formulate policy recommendations

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