Loading in 2 Seconds...
Loading in 2 Seconds...
Independence at Risk: Older Californians with Disabilities Hold On as Public Supports Shrink. Kathryn G. Kietzman, Steven P. Wallace, Eva M. Durazo, Jacqueline M. Torres, Anne Soon Choi, A.E. Ted Benjamin, & Carolyn Mendez-Luck UCLA Center for Health Policy Research. Acknowledgments.
Kathryn G. Kietzman, Steven P. Wallace, Eva M. Durazo,
Jacqueline M. Torres, Anne Soon Choi, A.E. Ted Benjamin, & Carolyn Mendez-Luck
UCLA Center for Health Policy Research
This study was funded by a grant from
whose mission is to advance the development of a sustainable continuum of quality care for seniors.
Help recruiting respondents came from the public authorities/ DPSS in Los Angeles, San Diego, Santa Clara and San Francisco Counties
“I’m like a lot of people – on good days, I do too much, I wear myself out. On bad days, I don’t do anything. And so you really have to learn to pace yourself…It’s really hard for me, I need a day to recover…”
--Mitch, 65 years old
“Jack does not get meals delivered on
the weekends. They’ve cut back.
Meals on Wheels used to deliver extra meals that would go in the freezer and they’d be for the weekends. I’ve noticed that…periodically they’re showing up again… But, for the most part he doesn’t get those anymore.”
-- Carol, 38 year old paid caregiver
“She called me, she had a medicine error…and she didn’t know what to do with it. I’m the only one that’s there for her…There’s no family. There’s no other providers. So, to have someone else, really, I don’t think anybody should rely solely on one person.”
--Diane, paid caregiver
“She can’t eat on her own anymore… So, I sit with her and I give her a spoonful of food and wait for her to finish it...Now I can’t leave her for even one second because since she doesn’t talk I have to guess: ‘Do you need to use the bathroom?’ and she claps her hands and I take her to the bathroom…”
--Ana, IHSS Caregiver and
“…so when I started getting bad and worse, it took me a long time to be willing to let anybody into my life and it’s just been an incredible relief. You know, I’m terrified of having to go into a nursing home because I want to be surrounded by books and things I love and my garden and I have a cat someplace here.”
– Jill, 72 years old
“I still want to be independent at this stage in my life. It’s just so good to feel that you can still take care of yourself at 89 years old, because many people by that age can’t do it at all.”
-- Vickie, 89 years old
“She can never be by herself, someone has to be here…My mother, she relies so much on both of us, especially when she needs to be fed, you know, fed and taking, you know, her showers or bath, dressed up, too. Practically, it’s like a child that I have to pretty much care for her, the things that she cannot do on her own.”
--Monique, IHSS caregiver and daughter
please visit the HOME project webpage at www.healthpolicy.ucla.edu/HomeStudy
or contact Kathryn Kietzman at