NATIONAL PRESIDENTS MEETING

1. NATIONAL PRESIDENTS MEETING 17 September

2. Association activities & Progressreport Anastasia Laskari EDTNA/ERCA Immediate Past President

3. Did weachieve our objectives in2011/2012?

4. Collaboration with Industry Nextsteps in Go Green in Dialysis Joint EDTNA/ERCA & FreseniusMedical Care Project A campaign to achieve more sustainability in dialysis care Project Co-ordinators: Jürgen Kastl, Jitka Pancířová

5. Collaboration with Industry Guidelines on Vascular Access Cannulation and Care - Joint EDTNA/ERCA & FreseniusMedicalCare’sproject to achieveenhancedmultidisciplinaryrenal team practice in HD and produce VA guidelines. Jean Pierre van Waeleghem, Jitka Pancířová, Maria Teresa Parisotto

6. Collaboration with Industry IQD (IndividualizedQuality-assuredDialysis) A Guide to ImplementingRenal Best PracticeinHaemodialysis Joint EDTNA/ERCA & Gambro Projectto definemultidisciplinary clinical guide for HD Project Co-ordinatorsuntil 31.8.2012: Jitka Pancířová, AnkiDavidson

7. Collaboration with Industry IQD (IndividualizedQuality-assuredDialysis) A Guide to ImplementingRenal Best PracticeinHaemodialysis Joint EDTNA/ERCA & Gambro Projectto definemultidisciplinary clinical guide for HD Project Team Members

8. Collaboration with Industry • 6th Fresenius Middle East Renal Education Programmewas held in Dubai, United Arab Emirates John Sedgewick, FacultyChair

9. Collaboration with Industry • New project: Joint EDTNA/ERCA & Shire Pharmaceuticals survey of Renal Dieticians Project Objectives • To understand attitudes and policy regarding dietary management and phosphate-binder prescribing • Locally, nationally, internationally and regionally • To disseminate the findings of the survey both among its participants and the wider renal care community • Participants will remain anonymous

10. Industry Endorsement • ExistingAwards • Peritoneal Dialysis EducationProgramme • FreseniusMedical Care (Middle East & Africa) • Competence in Practice Programme • Diaverum Renal Services Group • PEP= Phosphate-Unit-Programme • Genzyme GmbH (Germany) • New Award • Dialysis Nurse Development Programme • B.Braun Avitum

11. Journal of Renal Care Personal changes in theJournal of Renal CareTeam: • Dr. Nicola Tomas has takenoverthe Editor role from Dr.Cordelia Answanden. • Avril Redmond from Northern Ireland has taken over the Continuous Education co-ordinator role from Margaret McCann • Strategy for next year: Supplement on Home Therapies Regular publications

12. News CzechDutch English French GreekGerman Italian Lithuanian Polish PortugueseRussianSerbianSlovenianSpanish Turkish • Quarterly publication available in 15 languages thanks to EDTNA/ERCA Volunteers: • The most read publication on our web • The strategy for next year is to keep this publication as an informative tool on EDTNA/ERCA activities and projects as well as short educational pieces.

13. Books • Continuing with handbooks strategy – A Guide to Clinical Practice – Publications Objectives for 2012 were consolidated with the launching of the following new books:

14. Books • Additionally, the Environmental Guidelines for Dialysis Handbook was translated to the following languages: Czech Italian Spanish Russian ...and soon in: • Portuguese • French

15. Other publications Project results • Project carried out in cooperation with Takeda: IV Iron Resource and Utilization in Patients with Iron Deficiency Anaemiain CKD • Surveyperformed in: • United Kingdom • Italy • Spain • Leaflet with summary of results

16. Partnership with EKHA Maintained our current partnership with European Kidney Health Alliance(EKHA) Jitka Pancirova, EDTNA/ERCA Executive Director & Professor Norbert Lameire, EKHA Chairman

17. Cooperation with other Associations • CYNMA • FNB • SEDEN • HENNA • EDTNA/ERCA ItalianBranch • RCN • BASW RSIG • FS Nephro Challenges & Opportunities for Renal Care Across Europe - A survey of National Presidents of Renal Health Care Associations“ AnEuropean Network of Renal Care Association (ENRCA) project Participating National associations participating in the qualitative part: • TNNA • ANNA • APEDT 12NAsparticipated in the quantitative part and answered to the questionnaire Session: CHALLENGES AND OPPORTUNITIES FOR RENAL CAREACROSS EUROPE, Sunday, 16 September‚Tivoli 2, 12:45-13:45

18. Cooperation with other Associations Establish closer links withrenal/non-renalinternational Associations EDTNA/ERCA signedan collaborative agreementwithEfCCNa and HENNA forwriting the Acute Kidney Injury (AKI) – Guide to Clinical Practice

19. EDTNA/ERCA & Social Media New ways of communication with EDTNA/ERCA establishedusingSocial Media SinceJanuary 2012 EDTNA/ERCA is on TWITTER Dailytweetingaboutthelatestnews on EDTNA/ERCA and renal care

20. 40th Anniversary Organized a special Annual Conference in Ljubljana Celebrationof40th Anniversary of EDTNA/ERCA

23. Objectives 2012/2013Anastasia LaskariEDTNA/ERCA’s Immediate Past President

24. EC responsibilities 2012/2013

25. Objectives 2012/2013 Enhance and maintain the continuity of the effective collaboration with industry partners and corporate members Currently, EDTNA/ERCA provides a platformforinternationalindustry partners to collaborateactivelyin educational and research activities in order to improve the global quality of renal care and disseminate scientific results among renal care professionals.

26. Objectives 2012/2013 Collaboration with National associations on new projects to continue the good relationship for the benefits of both sides • Proposal for a new Project to develop further collaborationofEDTNA/ERCA withtheEuropeanRenal Care National Associations– ENRCA to bediscussed in Strasbourg

27. Objectives 2012/2013 Implement environmental approach throughout the Association • EDTNA/ERCA believes that we have a responsibility to care for and protect the environment in which we operate. • EDTNA/ERCA is fully committed to improving environmental performance across all of our business activitiesand will encourage our IndustryPartnersand Members to join us in this effort.

28. Objectives 2012/2013 Implement environmental approach throughout the Association EDTNA/ERCA will strive to: • Adopt the highest environmental standards in all areas of operations • Assess organizational activities and identify areas where we can minimize impacts. • Purchase/work with sustainable products wherever feasible with focus on the international Conference • Promoteand useelectronic communication whenever possible • Develop educational and research projects that will encourage adopting environmental approaches throughall activities(e.g. Go Green in Dialysis)

29. Objectives 2012/2013 To collaborate at European and world wide level in education and research to improve quality of renal care • EDTNA/ERCA believes that has the responsibility to help to improve quality care in the renal field through education and research • EDTNA/ERCA is committed and deeply involved in programs, projects and accreditation processes with several organizations worldwide. • EDTNA/ERCA is aiming to act as bridge between renal caregivers, patients and families through the production of educational materials respecting the cultural background of all.

30. Objectives 2012/2013 To collaborate at European and world wide level in education and research to improve quality of renal care EDTNA/ERCA will strive to: • Continue the close collaboration with Universities, Health Institutions and Industry partners to enhance research and educational programs and projects. • Cooperate with Renal National Associations in order to develop educational materials for all professionals involved in renal care • Collaborate with Renal patient’s Associations to enhance development of patients/families' educational materials respecting their cultural background

31. Objectives 2012/2013 To implement the regular use of Social Media in order tostrengthen EDTNA/ERCA byincreasing communication and visibilityworldwide • EDTNA/ERCA believes that it is mandatory to build meaningful communication, being accessible and approachable to every one • EDTNA/ERCA is committed spreading information, knowledge, and education materials suitable for all nephrology multidisciplinary care team • EDTNA/ERCA aiming to increase its search profile, enhancing Association’s visibility in major search engines.

32. Objectives 2012/2013 To implement the regular use of Social Media in order to strengthen EDTNA/ERCA byincreasingcommunication and visibilityworldwide EDTNA/ERCA will strive to: Make the Association’s Webpage more attractive Become an important participant in Nephrology Social Media forums on the web Patients, Industry partners and Nephrology expertswebsites Updatethe website frequently to be more interesting and meets the expectations

33. Objectives 2012/2013 Quality Management Systemapproach • A quality management principle is a comprehensive and fundamental rule for leading and operating an organization, aiming at continually improving performance over the long term by focusing on customers while addressing the needs of all other people involved in the activity of the organization • EDTNA/ERCA will Identify, understand and manage its processes in order to contribute to the effectiveness and efficiency in achieving the Associations’ objectives.

34. Sponsors Diamond sponsors Silver sponsor Bronze sponsors Other sponsors Under the patronageof Ville et Communauté urbaine de Strasbourg

35. Corporate Education Sessions S 04 CES Fresenius Medical Care - NephroCare Connecting the patient to life: Central Venous Catheter complications can and must be managed Sunday, 16 September, 09:00-10:30 S 07 CES Gambro IQD – (Individualized Quality-assured Dialysis) - A Guideto ImplementingRenalBestPracticein HDSunday, 16 September, 11:00-12:30 S 12 CES Baxter Things youalwayswanted to know about dialysis but were afraidto ask Sunday, 16 September, 14:00-15:30 S 19 CES Shire Balancing phosphate and protein intake in patients undergoingdialysis Monday, 17 September, 09:00-10:30 S 22 CES Fresenius Medical Care - RenalPharma The future of drug management in haemodialysis Monday, 17 September, 11:00-12:30 S 27 CES Diaverum Pain, anxiety, bleeding, bumps and lumps! Improving the patients AV fistula experience Monday, 17 September, 14:00-15:30

36. Exhibitors Note: List of exhibitors valid as of 16 August 2012.

37. Corporate Members

38. Exploring the Challenges &Opportunities forRenal Care Across Europe presentation of the project’s results Maria Saraiva, Alessandra Zampieron

39. Project 2012: Challenges and opportunities for renal care across Europe • We would like to thank all the National Presidents and Representatives from National Associations who participate to the qualitative and the quantitative part of this project. • Qualitative part:Birsen Yurugen (TNNA); Donna Painter (ANNA); Fernando Vilares,(APEDT); John Sedgewick (RCN); Lisa Robertson(BASW RSIG); Maria Fettouhi (FS Nephro); Maria Jesus Rollan (SEDEN);Mariana Eleftheroudi(HENNA); Marisa Pegoraro (EDTNA/ERCA Italian Branch); Michael Reichardt (FNB); Sotiroula Gliki (CYNMA). • Quantitative part:12 National Associations answered to the questionnaire: Austria: ÖANPT; Belgium: ORPADT; Cyprus: CNNA; Denmark: FS NEFRO; Germany: FNB; Greece: HENNA; Israel: INNA; Italy: EDTNA/ERCA Italian Branch; Portugal: APEDT; Slovenia: Slovenian Nephrology Nurses Association; Turkey: TNDTNA; United Kingdom: ANSA.

40. Themes for future research • The most significant problems in many European countries are educational issues. • The most important topic for future development in many European countries is quality control in renal care.

41. Suggested project • Design: cross-sectional study. • Sample: renal units across Europe. • Instrument: Quality improvement implementation survey II, developed by School of Public Health, University of California, Berkeley. It includes 81 items. • Procedure: e-mail distribution to renal units at national level. One questionnaire completed for each unit by Head Nurse or delegates. • Analysis: at international level, managed by EDTNA/ERCA.

42. Meeting evaluation All

43. Conference venue 2013

45. Thank you for your attention Enjoy the 41st EDTNA/ERCA International Conference