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Advancing Health and Disability: The Role of the American Association on Health and Disability

The American Association on Health and Disability (AAHD) is dedicated to promoting health and wellness for individuals with disabilities. Established in 1995, AAHD advocates at federal, state, and community levels through research, public awareness, and education. As a unique cross-disability organization, it maintains a comprehensive online Health Promotion Resource Center (HPRC) that provides accessible information and resources. AAHD collaborates with various agencies and organizations, aiming to bridge gaps in research and services for people with disabilities, enhancing their health outcomes and quality of life.

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Advancing Health and Disability: The Role of the American Association on Health and Disability

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  1. American Association on Health and DisabilityHealth Promotion Resource Center(HPRC)Roberta Carlin, MS, JD Executive DirectorAUCD/CDC Grantee MeetingMay 18, 2010

  2. AAHD Mission & History • Advance health promotion and wellness initiatives at federal, state and community level for children and adults with disabilities • Accomplish mission through advocacy, research, public awareness and education • Membership Organization, Rockville, MD, • Uniqueness: Cross Disability/Across Lifespan • 501 c (3)-1995-Incorporated • 2002-Staff

  3. What Does AAHD Do? • Represents children and adults with disabilities in significant national activities related to health and disability, disability policy, disability research and disability services. • Collaborates with disability organizations, academic and research institutions and federal agencies • Disseminates current scientific and programmatic information via HPRC, Disability and Health Journal, Listserves, Quarterly Newsletter, Webinars • Maintains leadership role on APHA Disability Section Executive Council, Friends of NCBDDD,NACCHO D&H Workgroup, CCD Prevention Task Force

  4. Health Promotion Resource Centerwww.aahd.usComprehensive on-line clearinghouse on disability and health • History • Purpose • Funding • Usage • Components/Inclusion Criteria • Partners

  5. HPRC History • CDC, NCBDDD Co-Operative Agreement-2002 • Response to Needs Assessment (2003) NCBDDD, D & H State Grantees • Launched HPRC-2003 • Professional Advisory Council Role • State Grantee Role

  6. HPRC Purpose • Create cross disability across the life span ON-LINE repository of information (clearinghouse) for children and adults with disabilities-health promotion and wellnes/public health and disability • Remedy information gap identified by grantee needs assessment, focus groups, AAHD Board and PAC • Compliment existing NCBDDD, D & H Resource Centers • Provide current scientific research, programmatic and advocacy information on disability and health • Offer no-cost, user friendly and accessible information • Reach multiple end-users (healthcare providers, researchers, advocates,public health professionals, policy makers, government agency staff, people with disabilities, families and caretakers)

  7. HPRC Funding • Minimal-Small staff • NCBDDD, CDC • AUCD • AAHD Membership • Seeking additional support

  8. HPRC Usage • 2008- 500,000 hits!! • 2009- 1,375,000 hits!!!! • 2010- TBD • Monthly Data and Reports

  9. HPRC Components • Abstracts (Pub-Med) • Best Practices (Programs, Materials, Resources) • Cultural Competency • Disability and Health Journal • Disability Links (Organizations, Research, Statistics) • Fact Sheets • Health Promotion Curriculum • Health Promotion Topics • Initiatives (AAHD) • Newsletters (Archived) • Primary Conditions • Secondary Conditions

  10. Search Engine • Matching Pages • Matching Abstracts

  11. Inclusion Criteria-Research Abstracts • Review On-line data bases-Pub-Med, Psych Info,and others • No older than five years • English • United States, Canada, UK • Peer -reviewed • Key terms, text words • Increase in published articles last five years

  12. Inclusion Criteria-Best Practices • Publications, programs and resources • Search Key Words and topics • Affiliation with university program, government agency, national organization • English • United States, Canada or UK

  13. Selecting Topics for Inclusion • Needs Assessment-State Grantees • AUCD Quarterly Staff Meetings • CDC, NCBDDD Requests • AAHD Projects/Grants • Contemporary Topics • Request for information to HPRC • Gaps in information/Caller requests

  14. Format-Research Abstracts • Sub-category-alphabetized • Title, Authors, Name of Journal • Objective • Methods • Results • Conclusion

  15. Format-Best Practices • Sub-Category (Alphabetized) • Title • Source • Format • Description • Contact URL, Name, Title, Dept., Mailing Address, Email, Phone

  16. Working with Partners • Identify topic of value to your constituents • Submit to AAHD topic of interest • Utilize AAHD HPRC as resource for research, community programs, grant submissions and advisory councils • Link to AAHD/HPRC from your site • Provide feedback to AAHD-how we can improve

  17. HPRC Challenges • Funding • Small staff • Desire to grow HPRC: Toll Free number, Information & Referral Coordinator • Multi-language/Cultural Competency • Better Define Inclusion Criteria: Research Abstracts and Best Practice • Better linkage to Disability and Health Journal • Evaluation of HPRC

  18. Disability and Health Journal • Official journal of AAHD/Launched 2008 • Published quarterly/Elsevier Publisher • First scientific, scholarly, peer-reviewed,multi-disciplinary journal in disability and health • Indexing-Med Line 2010 (?) • Impact Factor 2010 (?) • www.disabilityandhealthjnl.com • Discount rate for state grantees, AUCD Network, APHA Members, NACCHO

  19. Contact Information Roberta Carlin rcarlin@aahd.us AAHD 110 N. Washington Street, Suite 328J Rockville, MD 20850 www.aahd.us 301-545-6140

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