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Community Development in Michigan March 4, 2005 EHDI Conference Yasmina Bouraoui, MPH, EHDI Program Coordinator Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN. Community Development Model. Use National 1-3-6 goals as a framework Carry-over funds to finance projects

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Community Development in MichiganMarch 4, 2005 EHDI ConferenceYasmina Bouraoui, MPH, EHDI Program Coordinator Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN


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Community Development Model

  • Use National 1-3-6 goals as a framework

  • Carry-over funds to finance projects

  • Incorporate EHDI information into a variety of venues for parents and professionals

  • Multiple community stakeholders as partners

  • Focus on the families


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Community Development Model

  • Utilizing health behavior change model

  • Applying educational techniques to change behaviors of multiple stake holders to meet overall program goals

  • Utilizing a variety of venues for information delivery.(MI AAP article, hand outs, brochures, website, committees,educational CD Rom for physicians, other presentations to multiple stakeholders

  • Developing community advocates as messengers to improve outcomes


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Community Development Model Continued

  • Assessment and evaluation of stakeholder needs through survey of physicians, audiologists, hospitals and focus groups with physicians and parents

  • Emphasize data and facts

  • Utilize credible and respected sources: medical journals and studies, other physicians and stakeholders

  • Chapter Champion Component

  • Evaluate efforts


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Community Development Activities

  • Prenatal Awareness –Use of EHDI brochures in prenatal programs and NCHAM videos to providers

  • Post-natal –Use crib card after screening(English, Spanish and under development- Arabic)

  • Community awareness and support

    -Delta Zeta Project

    - Physician groups, WIC,M/ISS, Public Health clinics

    • Chapter Champion program- Physician packets and MI AAP EHDI presentation, articles

  • Culture awareness (Arab Chaldean Council, Native American Tribes, Migrant Clinics)

  • EHDI County Brochure Resources (Samples)


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Community Development Activities Continued

Materials for:

  • Parents- brochures, crib cards, parent notebook, Web page

  • Hospitals and providers-brochures, resource guide, newborn screening video,Web page

  • Physicians-CD-rom, hearing loss packets, web link, AAP materials,Web page (2005), NCHAM Physician survey

  • Communities-EHDI County brochures, Audiology and Early Intervention/ Parentconferences


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EHDI Resources and Literature

  • Web page www.michigan.gov/ehdi

  • Information Brochures on the EHDI process, Hands and Voices, Guide-By-Your-Side

  • Resource guide (English and Spanish)

  • Crib Cards

  • Physician Education CD for grand rounds/residency/student trainings (50+ attendees)

  • Early Intervention/Parent Conference- February 2004 and March 2005

  • Audiology conference October 2003 and 2004


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Parent Support in Michigan

Hands & Voices

Guide-By-Your-Side


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Michigan

Hands & Voices


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Michigan Hands & Voices’ Mission Statement

  • We are an organization dedicated to Non-biased support to families who have children who are deaf or hard of hearing.

  • We will provide activities and information statewide to parents and professionals that may include outreach events, educational seminars, advocacy, parent-to-parent networking, and newsletters.


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Michigan Hands & Voices’ Mission Statement

  • We believe that families will make the best choices for their child if they have access to good information and support.

  • Our organization represents people who use varying approaches to communication and assistive technology.


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Our Values

  • Non-Bias Communication Philosophy

  • Parent-to-Parent Support

  • Meaningful Participation

  • Effective Collaboration

  • Setting High Standards in Education

  • Accountability and Responsibility


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A Balanced Partnership

Professionals

And

Parents


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Today inMichigan Hands & Voices

  • Parent to Parent Support

  • Parent Workshop (March 2005)

  • Newsletter

  • Resource Guide

  • Representation on Committees

  • Educational Advocacy and Training

  • Social and informational events


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What’s New in Michigan

  • Developing a Web page for parents and interventionists

  • New Resources and Events-sent through the Hands & Voices listserv

  • Chat Room

  • Tutoring for sign language


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2929 Covington Court

Suite 200

Lansing, MI 48912-4939

517-487-0066TTY/TTD

800-968-7327 TTY/TTD

Michigan Director

Amy Lester

Lestera@michigan.gov

www.handsandvoices.org

Michigan Hands & Voices is partially funded by an MCHB grant through the Michigan Department Community Health

Michigan Hands & Voices


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“Guide-By-Your-Side”

Tag Team Approach to System Enhancement

(adapted from WI GBYS)


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In Michigan

  • We have

  • 83 counties

  • Over 130,000 live births a year

  • 2/1000 children will be diagnosed with a hearing loss

  • Average ID is now 2.4 months


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Michigan Statistics

  • 100% of Michigan birthing hospitals screening without a legislative mandate

  • Screening-92% of infants screened,to date

  • Diagnostics-46% reported outcomes for bilateral and unilateral refers, (2002 data)

  • Early Intervention-57% of infants enrolled in services as reported by Department of Education (2002, data)


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The Challenge

  • Many Early Intervention Providers have had little to no experience working with very young children who were deaf or hard of hearing; MI EHDI is housed in Department of Health; Early Intervention housed in Department of Education


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The Challenge

  • Lost to follow up rates are a concern

  • Difficulty accessing follow up information from stakeholders

  • Missing link from diagnosis to intervention

  • Parent desire to meet another parent who has been there


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The Mission

  • To develop a community advocate model of service delivery


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Parent Guides….Goals

Goal 1: Provide parents with the opportunity to establish a supportive relationship with an experienced parent of a child who is d/hh soon after they learn of their child’s hearing loss

  • Parent Guides will contact the family within 24 hours of receiving a referral.

  • Parent Guides will meet with the family within 10 days to guide and support the family.


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Goal 2: Provide an understanding of the unique needs of infants who are deaf or hard of hearing.

  • Parent Guides will help the families that they meet to learn about the unique needs of d/hh children

    • Providing books and materials that highlight family stories

    • By highlighting the impact of hearing loss on a child’s access to communication and demonstrating early communication techniques (i.e. Promoting eye contact)


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Goal 3: Provide unbiased information regarding communication options

  • Parent Guides

    • New “Parent Notebook”

    • Received training in the sharing of communication options, and presentation styles that may indicate bias


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Goal 4: Link families to resources available locally, regionallyand statewide

  • Parent Guides have received training

    • In the art of listening

    • Assessing and addressing the question behind the comment

    • To be ready to answer some of the first questions families might have

    • And to know how to find appropriate resources for families

    • Confidentiality and HIPAA Issues


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Goal 5: Ensure that families are linked to their county’s interventionists

Established rapport eases the introduction of the family to the Early On® program (EI)


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Goal 6: Ensure that families are connected to other parent to parent resources

  • Parent guides are NOT advocates. Parent Guides can connect families with Michigan Hands & Voices for advocacy or on-going parent to parent support


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Training

  • Initial Training for Parent Guides

    • October 8-9 2004

    • Founders of Guide-By-Your-Side from Wisconsin provided the training

    • Ongoing training- Conference calls

    • Attending Early Intervention/Parent conference- March 2005

    • 1st referral January 2005


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Nuts and Bolts

  • The process

  • Audiology/medical referral form

  • Guide-By-Your-Side Brochure/self referral

  • Guide handbook/policy manual

  • Tracking in house


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MI EHDI Contact Information

  • Michigan Department of Community Health

    Division of Family and Community Health -EHDI Program

    3423 N. Martin Luther King, Jr. Blvd. Room #203

    Lansing, Michigan 48909

  • Web www.michigan.gov/ehdi

  • Yasmina Bouraoui, MPH, Program Coordinator (517) 335-9398 bouraouiy@michigan.gov

  • Lorie Lang, MA,CCC-A Audiology Consultant (517) 335-9125 langlo@michigan.gov

  • Amy Lester, BA, Parent Consultant (517) 335-8273 lestera@michigan.gov


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MI EHDI Contact Information

  • Anne Jarrett, MA, CCC-A Follow-up Consultant (517)335-8878 jarretta@michigan.gov

  • Debby Behringer, RN, MSN Community Development Consultant (517) 335-8875 behringerd@michigan.gov

  • Paul Kramer, BA, Data Analyst Consultant (517) 335-9720 kramerp@michigan.gov

  • Erin Estrada, BA, Data Maintenance Consultant (517) 335-8916 estradae@michigan.gov

  • Ebone Thomas, General Office Assistance (517) 335-8955 thomase@michigan.gov



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