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Community Development in Michigan March 4, 2005 EHDI Conference Yasmina Bouraoui, MPH, EHDI Program Coordinator Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN. Community Development Model. Use National 1-3-6 goals as a framework Carry-over funds to finance projects

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Community Development in MichiganMarch 4, 2005 EHDI ConferenceYasmina Bouraoui, MPH, EHDI Program Coordinator Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN

community development model
Community Development Model
  • Use National 1-3-6 goals as a framework
  • Carry-over funds to finance projects
  • Incorporate EHDI information into a variety of venues for parents and professionals
  • Multiple community stakeholders as partners
  • Focus on the families
community development model3
Community Development Model
  • Utilizing health behavior change model
  • Applying educational techniques to change behaviors of multiple stake holders to meet overall program goals
  • Utilizing a variety of venues for information delivery.(MI AAP article, hand outs, brochures, website, committees,educational CD Rom for physicians, other presentations to multiple stakeholders
  • Developing community advocates as messengers to improve outcomes
community development model continued
Community Development Model Continued
  • Assessment and evaluation of stakeholder needs through survey of physicians, audiologists, hospitals and focus groups with physicians and parents
  • Emphasize data and facts
  • Utilize credible and respected sources: medical journals and studies, other physicians and stakeholders
  • Chapter Champion Component
  • Evaluate efforts
community development activities
Community Development Activities
  • Prenatal Awareness –Use of EHDI brochures in prenatal programs and NCHAM videos to providers
  • Post-natal –Use crib card after screening(English, Spanish and under development- Arabic)
  • Community awareness and support

-Delta Zeta Project

- Physician groups, WIC,M/ISS, Public Health clinics

    • Chapter Champion program- Physician packets and MI AAP EHDI presentation, articles
  • Culture awareness (Arab Chaldean Council, Native American Tribes, Migrant Clinics)
  • EHDI County Brochure Resources (Samples)
community development activities continued
Community Development Activities Continued

Materials for:

  • Parents- brochures, crib cards, parent notebook, Web page
  • Hospitals and providers-brochures, resource guide, newborn screening video,Web page
  • Physicians-CD-rom, hearing loss packets, web link, AAP materials,Web page (2005), NCHAM Physician survey
  • Communities-EHDI County brochures, Audiology and Early Intervention/ Parentconferences
ehdi resources and literature
EHDI Resources and Literature
  • Web page
  • Information Brochures on the EHDI process, Hands and Voices, Guide-By-Your-Side
  • Resource guide (English and Spanish)
  • Crib Cards
  • Physician Education CD for grand rounds/residency/student trainings (50+ attendees)
  • Early Intervention/Parent Conference- February 2004 and March 2005
  • Audiology conference October 2003 and 2004
parent support in michigan
Parent Support in Michigan

Hands & Voices




Hands & Voices

michigan hands voices mission statement
Michigan Hands & Voices’ Mission Statement
  • We are an organization dedicated to Non-biased support to families who have children who are deaf or hard of hearing.
  • We will provide activities and information statewide to parents and professionals that may include outreach events, educational seminars, advocacy, parent-to-parent networking, and newsletters.
michigan hands voices mission statement11
Michigan Hands & Voices’ Mission Statement
  • We believe that families will make the best choices for their child if they have access to good information and support.
  • Our organization represents people who use varying approaches to communication and assistive technology.
our values
Our Values
  • Non-Bias Communication Philosophy
  • Parent-to-Parent Support
  • Meaningful Participation
  • Effective Collaboration
  • Setting High Standards in Education
  • Accountability and Responsibility
a balanced partnership
A Balanced Partnership




today in michigan hands voices
Today inMichigan Hands & Voices
  • Parent to Parent Support
  • Parent Workshop (March 2005)
  • Newsletter
  • Resource Guide
  • Representation on Committees
  • Educational Advocacy and Training
  • Social and informational events
what s new in michigan
What’s New in Michigan
  • Developing a Web page for parents and interventionists
  • New Resources and Events-sent through the Hands & Voices listserv
  • Chat Room
  • Tutoring for sign language
michigan hands voices
2929 Covington Court

Suite 200

Lansing, MI 48912-4939


800-968-7327 TTY/TTD

Michigan Director

Amy Lester

Michigan Hands & Voices is partially funded by an MCHB grant through the Michigan Department Community Health

Michigan Hands & Voices
guide by your side


Tag Team Approach to System Enhancement

(adapted from WI GBYS)

in michigan
In Michigan
  • We have
  • 83 counties
  • Over 130,000 live births a year
  • 2/1000 children will be diagnosed with a hearing loss
  • Average ID is now 2.4 months
michigan statistics
Michigan Statistics
  • 100% of Michigan birthing hospitals screening without a legislative mandate
  • Screening-92% of infants screened,to date
  • Diagnostics-46% reported outcomes for bilateral and unilateral refers, (2002 data)
  • Early Intervention-57% of infants enrolled in services as reported by Department of Education (2002, data)
the challenge
The Challenge
  • Many Early Intervention Providers have had little to no experience working with very young children who were deaf or hard of hearing; MI EHDI is housed in Department of Health; Early Intervention housed in Department of Education
the challenge21
The Challenge
  • Lost to follow up rates are a concern
  • Difficulty accessing follow up information from stakeholders
  • Missing link from diagnosis to intervention
  • Parent desire to meet another parent who has been there
the mission
The Mission
  • To develop a community advocate model of service delivery
parent guides goals
Parent Guides….Goals

Goal 1: Provide parents with the opportunity to establish a supportive relationship with an experienced parent of a child who is d/hh soon after they learn of their child’s hearing loss

  • Parent Guides will contact the family within 24 hours of receiving a referral.
  • Parent Guides will meet with the family within 10 days to guide and support the family.
goal 2 provide an understanding of the unique needs of infants who are deaf or hard of hearing
Goal 2: Provide an understanding of the unique needs of infants who are deaf or hard of hearing.
  • Parent Guides will help the families that they meet to learn about the unique needs of d/hh children
    • Providing books and materials that highlight family stories
    • By highlighting the impact of hearing loss on a child’s access to communication and demonstrating early communication techniques (i.e. Promoting eye contact)
goal 3 provide unbiased information regarding communication options
Goal 3: Provide unbiased information regarding communication options
  • Parent Guides
    • New “Parent Notebook”
    • Received training in the sharing of communication options, and presentation styles that may indicate bias
goal 4 link families to resources available locally regionally and statewide
Goal 4: Link families to resources available locally, regionallyand statewide
  • Parent Guides have received training
    • In the art of listening
    • Assessing and addressing the question behind the comment
    • To be ready to answer some of the first questions families might have
    • And to know how to find appropriate resources for families
    • Confidentiality and HIPAA Issues
goal 5 ensure that families are linked to their county s interventionists
Goal 5: Ensure that families are linked to their county’s interventionists

Established rapport eases the introduction of the family to the Early On® program (EI)

goal 6 ensure that families are connected to other parent to parent resources
Goal 6: Ensure that families are connected to other parent to parent resources
  • Parent guides are NOT advocates. Parent Guides can connect families with Michigan Hands & Voices for advocacy or on-going parent to parent support
  • Initial Training for Parent Guides
    • October 8-9 2004
    • Founders of Guide-By-Your-Side from Wisconsin provided the training
    • Ongoing training- Conference calls
    • Attending Early Intervention/Parent conference- March 2005
    • 1st referral January 2005
nuts and bolts
Nuts and Bolts
  • The process
  • Audiology/medical referral form
  • Guide-By-Your-Side Brochure/self referral
  • Guide handbook/policy manual
  • Tracking in house
mi ehdi contact information
MI EHDI Contact Information
  • Michigan Department of Community Health

Division of Family and Community Health -EHDI Program

3423 N. Martin Luther King, Jr. Blvd. Room #203

Lansing, Michigan 48909

  • Web
  • Yasmina Bouraoui, MPH, Program Coordinator (517) 335-9398
  • Lorie Lang, MA,CCC-A Audiology Consultant (517) 335-9125
  • Amy Lester, BA, Parent Consultant (517) 335-8273
mi ehdi contact information32
MI EHDI Contact Information
  • Anne Jarrett, MA, CCC-A Follow-up Consultant (517)335-8878
  • Debby Behringer, RN, MSN Community Development Consultant (517) 335-8875
  • Paul Kramer, BA, Data Analyst Consultant (517) 335-9720
  • Erin Estrada, BA, Data Maintenance Consultant (517) 335-8916
  • Ebone Thomas, General Office Assistance (517) 335-8955