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Citizens and Personal Health Records – the Case of Nelson Mandela Bay

Citizens and Personal Health Records – the Case of Nelson Mandela Bay. AUTHORS: Dalenca Pottas & Nicky Mostert-Phipps PRESENTED BY: Nicky Mostert-Phipps. Presentation. Background Research method Results Conclusion Questions. Background.

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Citizens and Personal Health Records – the Case of Nelson Mandela Bay

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  1. Citizens and Personal Health Records – the Case of Nelson Mandela Bay AUTHORS: Dalenca Pottas & Nicky Mostert-Phipps PRESENTED BY: Nicky Mostert-Phipps

  2. Presentation • Background • Research method • Results • Conclusion • Questions

  3. Background • Personal-Health Record (PHR): patient is owner and main user • PHR definition: • Electronic • Patient-controlled • Used for management of health information • Secure • Private • Benefits: • Better communication and sharing of information • Patient engagement

  4. Background (continued) • Despite benefits PHR adoption low • No data found relating to South African context • Focus: • Attitude of citizens towards maintaining personal health records and using electronic tools to capture a personal health record.

  5. MethodStudy design and context • Explore citizen attitudes towards maintaining personal health records and use of tools to capture an electronic personal health record • Data gathered: July & August 2012 in the Nelson Mandela Bay municipal area, South Africa • Nelson Mandela Bay: city of Port Elizabeth, the nearby towns of Uitenhage and Despatch, and the surrounding rural or agricultural areas

  6. MethodStudy design and context (continued)

  7. MethodQuestionnaire design and administration • Questionnaire designed to be brief • 18 Questions: • Demographics • Health status • Internet access and literacy • Perceptions of the current medical record • Concerns around creating an electronic medical record • Questionnaire loaded on tablets • Seven data collectors • Thirty-two data collection points (supermarket stores) • Responses captured: 467

  8. MethodLimitations • Executed in specific geographical region – limits generalizability • Good response rate but selection bias may be present • Purpose: explore citizen views in Nelson Mandela Bay area

  9. ResultsDemographic characteristics

  10. ResultsHealth status

  11. ResultsInternet access and literacy

  12. ResultsInternet access and literacy • Respondents’ ability to navigate the Internet: • 45% considered themselves to be ‘skilled or very skilled’ at navigating the Internet to search for information • 47% considered themselves to be ‘skilled or very skilled’ at uploading and downloading information • 52% considered themselves to be ‘skilled or very skilled’ at sending emails

  13. ResultsMedical record availability • Important for healthcare provider to have their complete medical records available and know their full medical history: • 6% important • 20% very important • 70% extremely important • Actual availability of medical records: • 42% indicated that their healthcare provider is not informed of their full medical history and that the complete record is not available

  14. ResultsCapturing of medical history

  15. ResultsAwareness of online Personal Health Records • PHR: Typically an online tool that allows an individual to create and manage a summary of all his health information in one convenient place. It contains information on past and current illnesses, allergies, immunizations, medications, procedures, test results, and so forth. • 84% not aware of existence of such a tool

  16. ResultsConcerns relating to the use of a PHR

  17. Conclusion • Barriers to adoption: • Lack of awareness • Concerns relating to privacy of personal health information • Internet access and literacy • Promise for emerging mobile PHR (mPHR) market • Participants suffering from chronic medical condition more likely to keep record of their medical history

  18. Any questions? • Please contact presenter: nicky.mostert@nmmu.ac.za

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