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LGBT Health: a case study of politics and data collection APHA Conference November 6, 2006 Boston, MA Scout, Ph.D. Abstract
November 6, 2006
The gold standard for population-based data collection is the federal surveys used to establish morbidity and mortality benchmarks for different population groups. But these surveys often do not collect data on lesbian, gay, bisexual and transgender (LGBT) behavior or identity. Despite this, researchers have used a series of smaller-scale surveys or proxy markers in larger surveys to uncover a consistent pattern of adverse health outcomes for this population group. This presentation will explore the persistent and deleterious effects of politics on the efforts to add LGBT data collection questions to the gold-standard federal surveys. A variety of information will be presented, including related political opposition occurring in the federal health arena, state success efforts at adding LGBT data collection questions, and the newest data emerging from California debunking the myth that asking if someone is LGBT constitutes a sensitive question (and therefore needs special extra expense management in the survey process). The case of the CDC's efforts to add an LGBT data collection question to their Adult Tobacco Survey will be presented to highlight the political opposition to this effort – despite the depth of sound science supporting the need for data collection on this issue. The impact of this political opposition will be discussed, and used as a platform to show how small population groups are especially vulnerable to population-based assessment of health needs.
DNC, DNC, DNC
“DNC = data are not collected”
Request to Edit Title of Talk On Gays, Suicide Stirs Ire
HHS Is Being Accused of Marginalization
By Rick Weiss
Washington Post Staff Writer
Wednesday, February 16, 2005; Page A17
A federal agency's efforts to remove the words "gay," "lesbian," "bisexual" and "transgender" from the program of a federally funded conference on suicide prevention have inspired scores of experts in mental health to flood the agency with angry e-mails.
[Federal Register: June 2, 2000 (Volume 65, Number 107)] [Notices] [Page 35348-35353] From the Federal Register Online via GPO Access [wais.access.gpo.gov] [DOCID:fr02jn00-70] ----------------------------------------------------------------------- DEPARTMENT OF HEALTH AND HUMAN SERVICES Center for Disease Control and Prevention [Program Announcement 00086] Cooperative Agreements for National Networks for Tobacco Prevention and Control; Notice of Availability of Funds A. Purpose The Centers for Disease Control and Prevention (CDC) announces the availability of funds for fiscal year (FY) 2000 for cooperative agreements with organizations that can work with the following eight (8) priority populations: 1. African-Americans (AAs); 2. Hispanics/ Latinos (H/L); 3. Asian Americans/Pacific Islanders (AAPIs); 4. American Indians/Alaskan Natives (AI/AN); 5. women; 6. gays/lesbians; 7. low socioeconomic status (SES) adults; and, 8. young people
[Billing Code: 4163-18-P
DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
National Network for Tobacco Control and Prevention
Announcement Type: New
Funding Opportunity Number: DP06-602
Catalog of Federal Domestic Assistance Number: 93.283
Letter of Intent Deadline (LOI): January 19, 2006
Application Deadline: February 3, 2006
The purpose of the program is to prevent and reduce tobacco use and exposure to secondhand smoke and to eliminate tobacco-related disparities by establishing a consortium of National Networks that can collaborate with and serve as a resource to CDC and OSH, Network members, Network Partners, States, and other local and national tobacco control organizations to provide culturally competent technical assistance regarding effective tobacco use prevention and control strategies for racial and ethnic populations, groups that demonstrate low socio-economic status, and groups for which there is data to support a high prevalence of tobacco use and/or burden of tobacco related morbidity/mortality.
* A project of Fenway Community Health, Boston, MA
Researchers believe aggregating data from the state surveys into larger sample might be most promising route to achieving large sample.
“…lots of demoralization and good people leaving”