Lifespan Respite: Who, What, Why, Where and How?. Updated March 2013 U. Family Caregiving in the US. 62 million unpaid family caregivers provide 80% of long-term care in the US Valued at over $450 billion a year in uncompensated care, more than total Medicaid spending in 2009.
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Updated March 2013
Majority of family caregivers caring for someone under age 75 (56%).
Sources: Caregiving in the U.S. 2009. Bethesda, MD: National Alliance for Caregiving and Washington, D.C.: AARP, 2009. and Lynn Feinberg, L., Reinhard, Susan, C, Houser, A. and Choula, R. (2011). Valuing the Invaluable: 2011 Update The Growing Contributions and Costs of Family Caregiving, 2011 Update, AARP Public Policy Institute Issue Brief Insight on the Issues, Washington, DC: AARP
Source: Lynn Feinberg, L., Reinhard, Susan, C, Houser, A. and Choula, R. (2011). Valuing the Invaluable: 2011 Update The Growing Contributions and Costs of Family Caregiving, 2011 Update, AARP Public Policy Institute Issue Brief Insight on the Issues, Washington, DC: AARP
… planned or emergency care provided to a child or adult with a special need in order to provide temporary relief to the family caregiver of that child or adult.
Lifespan Respite Care Act definition
New Health Care Reform and VA Provisions
National Family Caregiver Support Program
Block Grants (TANF, Maternal and Child Health, Social Services, Children’s Mental Health)
Federal Categorical Funding Streams, such as CAPTA, Family Support, Alzheimer’s Demos
State Respite or Family Caregiver Support Program
Bureaucratic Maze of Funding Streams and Services
Lifespan Respite Definition:
It weaves together extremely important, but fragmented funding streams, disparate and duplicative programs, and silos to form a seamless system that make barriers
invisible to families.
By coordinating siloed funding and service streams, Lifespan Respite convertsbarriers to building blocks for accessible respite systems.
Note: Despite the fact that the Oregon Lifespan Respite Program was unfunded in 2010 because of serious state budget constraints, the program is included because it serves as a unique model for Lifespan Respite coordination that successfully demonstrated improved access to respite for over 14 years.
at $2.5 million
US Administration for Community Living, Administration on Aging administers competitive state grants for mandatory uses of funds:
In concert with…
25% State Match can be:
ARCH National Respite Network and Resource Center
Technical Assistance Center
This project is supported, in part, under a grant from the U.S. Department of Health and Human Services, Administration for Community Living, Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. These contents, however, do not necessarily represent the policy of the U.S. Department of Health and Human Services and endorsement by the Federal government should not be assumed.