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Overview of Incidence Data at the Virginia Cancer Registry 2000-2004. Carolyn Halbert M.A.,.M.P.H. Statistical Analysis Coordinator Virginia Cancer Registry October 3, 2007. Oh No, Not Data!. Data is not as scary as you may think and can do so much to help get your job done!.

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overview of incidence data at the virginia cancer registry 2000 2004

Overview of Incidence Data at the Virginia Cancer Registry2000-2004

Carolyn Halbert M.A.,.M.P.H.

Statistical Analysis Coordinator

Virginia Cancer Registry

October 3, 2007

oh no not data
Oh No, Not Data!

Data is not as scary as you may think and can do so much to help get your job done!

components of the surveillance system
Components of the Surveillance System

Hospitals

Clinics, free

standing centers

Public health

authorities

Laboratories

Physicians

Central Registry

Fed. Surveillance Pgm.

(CDC NPCR)

Local, Regional, State,

& National Partners

(PH, NAACCR, ACS)

data requests
Data Requests

Institutional Review Board Requests

Media requests

Academic

Industry

Not for profit

You!

what can data do for you
What can data do for you?
  • Strategic planning

-are there enough radiology cases to justify a new radiologist

  • Grants?
  • Certificates of Need ?
data caution statement
Data Caution Statement
  • conservative account of the disease in Virginia.
  • out-of-state data lag time
  • Underreporting
    • rates may be higher in more urbanized areas where case ascertainment is more complete.
    • case reporting may be more complete for certain racial groups, cancer sites, or diagnosis stages.
  • Our goal is to be able to provide you with valid and reliable data with which to understand cancer in Virginia and to make informed policy decisions.
suppression issues
Suppression Issues
  • Rival hospital data
  • Counts under 11 for geographic areas smaller than the state
  • Counts under 6 for state level data
  • Rates based on counts <15
  • Rates are per 100,000 and age-adjusted to the 2000 U.S.Census (Industry standard)
counts vs rates what is the difference
Counts vs. RatesWhat is the difference

Use rates for comparisons across areas but rates can sometimes be misleading

Burden of care-use counts

now let s look at the data
Now let’s look at the DATA

This is only a small sample of our data or how we can look at data

cancer site by gender
Cancer Site by Gender

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

pediatric cancers by gender
Pediatric Cancers By Gender

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

pediatric cancers by top sites and gender
Pediatric Cancers by Top Sites and Gender

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

health regions a closer look
Health Regions: A Closer Look

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

Ries LAG, Melbert D, Krapcho M, Mariotto A, Miller BA, Feuer EJ, Clegg L, Horner MJ, Howlader N, Eisner MP, Reichman M, Edwards BK (eds). SEER Cancer Statistics Review, 1975-2004, NCI Bethesda, MD, http://seer.cancer.gov/csr/1975_2004/, based on November 2006 SEER data submission, posted to the SEER web site, 2007.

who gets prostate cancer
Who Gets Prostate Cancer?

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

who gets breast cancer
Who Gets Breast Cancer?

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard. Other includes Asian, Pacific Islander, American Indian, Alaskan Native, other and unknown

who gets lung cancer
Who gets Lung Cancer?

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard. Other includes Asian, Pacific Islander, American Indian, Alaskan Native, other and unknown

who gets colon cancer
Who Gets Colon Cancer?

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard. Other includes Asian, Pacific Islander, American Indian, Alaskan Native, other and unknown

slide22

Stage at Diagnosis by Race,

All Sites 2000-2004

slide23

Age-Specific Cancer Mortality Rates Selected sites VA, 2000-2004

Source: VDH Division of Health Statistics

slide25

Trends : All Sites

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard. Other includes Asian, Pacific Islander, American Indian, Alaskan Native, other and unknown

trends breast and cervical
Trends : Breast and Cervical

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

slide27

Trends: Colon & Rectum

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

slide28

Trends: Melanoma

Rates are per 100,000 Age Adjusted to 2000 US Census (19 year age group) standard

data on the web http www vahealth org cdpc cancer 02data asp
Data on the web http://www.vahealth.org/cdpc/cancer/02data.asp
cancer risk factors
Cancer Risk Factors
  • Behavioral risk factors: tobacco use, physical inactivity, overweight, diet and alcohol use, lack of preventive screening
  • Other risk factors: environmental carcinogens, occupational factors, family history, environmental pollution, ultraviolet radiation, and socioeconomic status have all been linked to cancer.
  • Viruses (HPV, Hepatitis)
respondents to virginia behavioral risk factor surveillance system brfss 2000 2002
Respondents to Virginia Behavioral Risk Factor Surveillance System (BRFSS)2000-2002

Centers for Disease Control and Prevention (CDC). Behavioral Risk Factor Surveillance System Survey Data. Atlanta, Georgia: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention,[

data analysis for case ascertainment
Data Analysis for Case Ascertainment

Physician offices and DCO’s are greater sources of data in Appalachia than in non- Appalachia by population percent

*Cancer Surveillance in Appalachian Virginia: Evaluating Data Quality and Enhancing Case Finding Carolyn Halbert M.A., M.P.H., Jim Martin Ph.D., Virginia Cancer Registry Virginia Department of Health Poster Presentation NAACCR 2007

final thoughts
Final Thoughts
  • The data are truly useful to a variety of people.
  • The data are used to answer many kinds of questions: scientific research, public health policy, and disease surveillance.
  • Our results are only as good as your data. We value working with you.
  • Almost at 3 years of certification
  • Data collection and use are improving and growing…especially thanks to your efforts
questions
Questions??
  • Carolyn.Halbert@vdh.virginia.gov
  • 804 864 7861