Governing Biobanks: Challenges and Perspectives. Chih-Hsing Ho, PhD Centre for Medical Ethics and Law The University of Hong Kong email@example.com. “ Organic Bank Account ”.
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Chih-Hsing Ho, PhD
Centre for Medical Ethics and Law
The University of Hong Kong
To safeguard people’s most valuable assets. Rather than depositing money in a personal bank account, it is a repository for people to put in their biomaterials - blood, tissue samples and DNA - in order to earn medical interest some later day in the form of new knowledge and therapies for diseases.
(TIME, March 2009)
structured resources that can be used for the purpose of genetic research, and which include:
(a) human biological materials and/or information generated from their analysis; and
(b) extensive associated information
Types of Materials Stored
Types of Data Collected and Stored
“$1,000 Genome’ is not a question whether it is possible, but when it will be realized. It is unimaginable only 4 years ago.”
“In a handful of years, your doctor may be able to run a computer analysis of your personal genome to get a detailed profile of your health prospects.”
(Newsweek 15 Oct 2007)
Reactive medical treatment
Proactive medical treatment
The idea of customisation of medical treatment in healthcare
All medical decisions and treatment, including preventive and therapeutic care being tailored to adapt to each individual’s particular genetic makeup.
- Europe (Iceland, the UK, Sweden, Norway, Estonia, Germany, Spain, Italy),
- The United States and Canada
- East Asia: Taiwan Biobank, China Gene Bank, China Guangzhou Cohort, Biobank Japan
- South East Asia: Singapore Bio-Bank (established in 2002, closed in June 2011 (cost around USD 1 million a year to process about 10,000 samples)
International framework supporting networking among independent population-based biobanks (Source:Biobanks in Europe: Prospects for Harmonisation and Networking, 2010)
Conditions of Use:
Consent to Biomedical Research
Consent to Research on Specific Disease
Consent to a Specific Study