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Washington Group on Disability Statistics: extended sets
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  1. Washington Group on Disability Statistics: extended sets Marijke W. de Kleijn – de Vrankrijker WHO-FIC Collaborating Centre The Netherlands WG 5 Rio September 2005 Marijke de Kleijn

  2. Outline • Objectives of WG and task of group 3 • Purpose of short set and extended sets • Content of extended set 1 and 2 related to short set • Content of proposed set 1 • Testing questions related to proposed set 1 • Content of extended set 2 WG 5 Rio September 2005 Marijke de Kleijn

  3. WG objectives • Develop a small set/s of general disability measures • Recommend extended set/s of items to measure disability as components of population surveys • Address methodological issues associated with disability measurement WG 5 Rio September 2005 Marijke de Kleijn

  4. Purpose short set • Purpose for international comparability of disability measures/data • Highest priority given to assessing equalization of opportunities • Partially fulfills purpose of monitoring limitations in functioning in the population WG 5 Rio September 2005 Marijke de Kleijn

  5. Purpose extended sets • Should be same as short set • International comparability • Equalization of opportunities • Monitoring functioning and disability in population • This means inclusion of all ICF components • Body function/structure, impairments • Activity, limitations • Participation, restrictions • Environmental factors, barriers/facilitators WG 5 Rio September 2005 Marijke de Kleijn

  6. Short set Response categories: No, some, a lot, cannot do at all • Do you have difficulty seeing even if wearing glasses? • Do you have difficulty hearing even if using a hearing aid? • Do you have difficulty walking or climbing steps? • Do you have difficulty remembering or concentrating? • Do you have difficulty with (self-care such as) washing all over or dressing? • Because of a physical, mental, or emotional health condition, do you have difficulty communicating (for example understanding others or others understanding you? WG 5 Rio September 2005 Marijke de Kleijn

  7. Content of extended sets • Bangkok meeting: • Set 1: • functions and basic activities • related to current 6 domains of short set + additional functions and basic activities • Set 2: • other activities, • participation and • environment WG 5 Rio September 2005 Marijke de Kleijn

  8. Short sets vs extended sets WG 5 Rio September 2005 Marijke de Kleijn

  9. Testing of short set • Use of extended set(s) • Recommended to use existing instruments = first extended set? WG 5 Rio September 2005 Marijke de Kleijn

  10. First extended set First proposal to group 3: • WHS-8 • WHO-DAS-12 WG 5 Rio September 2005 Marijke de Kleijn

  11. First extended set • After comments from group members, proposal: • WHS-17 • WHO-DAS-12 • Speech question • Total 30 questions WG 5 Rio September 2005 Marijke de Kleijn

  12. WHS-17 items • Sleep • Feeling sad • Anxiety • Seeing/recognizing a person • Seeing/recognizing object, reading • Hearing someone • Hearing conversation • Aches/pain • Bodily discomfort WG 5 Rio September 2005 Marijke de Kleijn

  13. WHS-17 items (2) • Shortness of breath at rest • Shortness of breath mild exercise • Coughing • Appearance deformed • Skin defects • Defecation • Urinating • Using hands/fingers WG 5 Rio September 2005 Marijke de Kleijn

  14. WHO-DAS-12 • Concentrating doing • Emotially affected • Learning new tasks • Standing • Walking long distance • Washing whole body WG 5 Rio September 2005 Marijke de Kleijn

  15. WHO-DAS-12 items (2) • Getting dressed • Household responsibilities • Dealing with people • Friendship • Day-to-day activities (work/school) • Community activities WG 5 Rio September 2005 Marijke de Kleijn

  16. UNESCAP pilot studies • Pilot studies UNESCAP region • We have to use the experiences from those pilots • Questionnaire including: • WG short set • WHS-17 • WHO-DAS-36 • 4 questions on met/unmet needs for assistance WG 5 Rio September 2005 Marijke de Kleijn

  17. Testing short set • Group 2 selected questions for testing the short set from: • WHS • WHO-DAS • SF-36 mental component • Total 27 questions WG 5 Rio September 2005 Marijke de Kleijn

  18. Items mapped to ICF • Short set • WHS-8 • WHS-17 • WHO-DAS-12 • Eurostat health module • Test questions • Mapped to ICF see matrix WG 5 Rio September 2005 Marijke de Kleijn

  19. Second extended set Based on analysis of existing national survey questionnaires • Common questions/areas and missing areas compared to ICF • Next presentation Margie Schneider and Marijke de Kleijn WG 5 Rio September 2005 Marijke de Kleijn

  20. Testing general set • Testing general set 2005 • Including extended questions (which?) WG 5 Rio September 2005 Marijke de Kleijn

  21. Dank voor uw aandacht Marijke.de.kleijn@rivm.nl www.rivm.nl/who-fic WG 5 Rio September 2005 Marijke de Kleijn