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Enhancing Patient Involvement in NHS Research: Challenges and Solutions

Explore the role of lay members in NHS research, from setting priorities to changing practice, and overcome challenges such as tokenism and daunting paperwork. Tips on making a difference and staying patient-centered.

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Enhancing Patient Involvement in NHS Research: Challenges and Solutions

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  1. What is it like to be a Lay Member? Public involvement in NHS research commissioning Isabel Boyer, 20/5/09

  2. Patient/public involvement: impact points Setting priorities Study design/ethics Funding decisions Trial management Dissemination Changing practice Isabel Boyer, 20/5/09

  3. Isabel Boyer, 20/5/09

  4. Can you make a difference? Challenges Tools • Tokenism • I won’t understand • Daunting paperwork • I won’t be listened to • What can I add? • More than one lay member • Work through the Chair • Use your mentor • Challenge the language • Can’t assume they all understand each other • Difficult to second guess the scientists, so stay patient-centred • Use your expertise: patient benefit and patient experience • Outside perspective/common sense • Patients have a valid voice Isabel Boyer, 20/5/09

  5. What makes it all worthwhile? Being part of a ……Patient-Focused Team Isabel Boyer, 20/5/09

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