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Social Media in Oncology ECOG-ACRIN @ EAOnc # EAOnc Mike Thompson, MD, PhD @ mtmdphd 11/13/15 Co-PI Aurora #NCORP Medical Director, Early Phase Cancer Research Program Aurora Research Institute @ Aurora_Cancer @ Aurora_Health. Outline. Who is @mtmdphd? Why, why, why? How, how, how?

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  1. Social Media in OncologyECOG-ACRIN@EAOnc #EAOncMike Thompson, MD, PhD@mtmdphd11/13/15Co-PI Aurora #NCORPMedical Director, Early Phase Cancer Research ProgramAurora Research Institute@Aurora_Cancer @Aurora_Health

  2. Outline • Who is @mtmdphd? • Why, why, why? • How, how, how? • Networks & impact • Action Plan

  3. Outline • Who is @mtmdphd? • Why, why, why? • How, how, how? • Networks & impact • Action Plan

  4. Digital Convergence of Interests (COI) Other • @Aurora_Cancer • CRAB CTC Social Media Chair • Doximity • Myeloma Crowd Research Initiative (MCRI)  • #mmsm, #wmsm • Image32 -> Citrix • MDRing App • LinkedIn – Global Oncology Group (Pharma, Biotech, Medtech, Medicine & Surgery) ASCO & NCI • ASCO • Social Media Work Group • IT & Media Committee (‘10-’13) • Cancer Research Comm (‘13-’16) • CRF, CCF • Chair-elect, Education • ASH • ASH 2015 SM session • NCI • ECOG - @EAOnc, #EAOnc • NCI MYSC • #NCORP

  5. Thompson / SM in Medicine • Twitter, Facebook and YouTube’s role in Arab Spring (Middle East uprisings) [1/26/11, updated 7/7/13] http://ow.ly/S0dio • MDACC CCOP Spring 2011 – tutored on Twitter by @fischMD • ASCO 2011 & Tweetup • ASCO ITM Committee • ASCO Connection Blogger • Mayo/Ragan Social Media Conference – 10/2011

  6. Thompson / SM in Medicine • Best Doctors Webinar – “Physicians 2.0 - How Online Collaboration Between Doctors Impacts Patient Outcomes” -- 11/17/11 • March 2, 2012 - MDACC CCOP– Keynote Speaker • ASCO 2012 Tweetup (& 2013, 2014) • ASCO 2012 Education Session • Started @EAOnc, #EAOnc

  7. Thompson / SM in Medicine • ASCO 2014 – 2 oral sessions • Pharma interest / FDA Guidance • Started @Aurora_Cancer • Most tweets of any oncologist in US (2013, W2O) • WON Fall 2014 Keynote speaker • Social Media increase at #ASH14 -> #EBMT15 • Myeloma Crowd Research Initiative (MCRI)

  8. Thompson / SM in Medicine#ASCO15 • Using Social Media to Learn and Communicate: It Is Not About the Tweet [5/30/15] Sat 1:35-1:55 MCC S404 #ASCO15 http://ow.ly/NwAZ5  • #ASCO15 Tweetup - Sat 5:45 South Level 2.5 Food Court - http://twvt.us/ASCO15 #twvt • Cancer-specific Twitter conversations among physicians in 2014 - @brianreid et al. #ASCO15 Abstr e17500 http://ow.ly/MV4GZ • Disease-specific hashtags for online communication about cancer care - @subatomicdoc et al. #ASCO15 Abstr 6520 http://ow.ly/MV516 #hcsm

  9. Outline • Who is @mtmdphd? • Why, why, why? • How, how, how? • Networks & impact • Action Plan

  10. Why? • “Describing social media in a manuscript can be similar to giving a didactic lecture on ‘how to ride a bike’; that is, it is far easier and more fun to do the activity than explain or read about the mechanisms.” • Eg - type of bike [SM platforms], how a peddle works [constructing a tweet], different theories on biking [use and misuse cases], etc. Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M. Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider. Current Hematologic Malignancy Reports. 2015

  11. Why? • SM offers rapid incoming and outgoing forms of communications • Use cases: • Increase signal-to-noise ratio • Education networks • Crowdsourcing / crowdfunding • Collaboration • Promotion Thompson MA. Using Social Media to Learn and Communicate: It’s Not About the Tweet. In ASCO 2015 Annual Meeting Educational Book.

  12. Social Media Use Among Physicians and Trainees: Results of a National Medical Oncology Physician SurveyAdilman et al. JOP 10/6/15 http://ow.ly/To4SA Purpose:Web-based social media support physician collaboration and information sharing, but the extent to which physicians use social media for these purposes remains unknown.Methods:9-item survey 680 oncology physicians Results: 207 responses (30%) were received; 72% of respondents reported using social media. 93% in age 25-34yo & 39% in age 45-54yo Significant gap in social media use between younger users and mid- to late-career users. The main barrier to use was lack of free time.Conclusion:The identified gap in social media use between age cohorts may have negative implications for communication in oncology.Despite advancements in social media and efforts to integrate social media into medical education, most oncologists and trainees use social media rarely, which, along with the age-related gap in use, may have consequences for collaboration and education in oncology.Investigations to further understand barriers to social media use should be undertaken to enhance physician collaboration and knowledge sharing through social media.

  13. The Urology Tag Ontology ProjectAlexander Kutikov, MD, FACSAugust 10, 2015 http://www.symplur.com/blog/the-urology-tag-ontology-project/ Urology Tag Ontology Project: Standardizing Social Media Communication Descriptors Alexander Kutikov, Henry H. Wooand James W. Catto European Urology, October 2015 Published online: 04 October 2015 http://www.europeanurology.com/article/S0302-2838(15)00942-2/abstract/urology-tag-ontology-project-standardizing-social-media-communication-descriptors

  14. The Urology Tag Ontology Projecthttp://www.symplur.com/blog/the-urology-tag-ontology-project/ • Urologists have been on the forefront of harnessing Social Media for professional use. • Urological Organizations and Journals have used Social Media to lower barriers for information dissemination.  • Meanwhile, Social Media engagement at Urological meetings has been used to augment the experience of attendees and allow remote “attendance” for those not able to physically be present at the meetings.  • Academic exchange through a formal Twitter-based Journal Club on the #urojc hashtag has enjoyed international participation.  • Social Media has also been employed to assess the Media’s and the Public’s responses to news events in the Urologic clinical space, and guidelines for responsible and effective Social Media use now have been developed. • Moreover, an extremely active patient advocacy voice has been growing louder on a number of the Social Media channels

  15. Outline • Who is @mtmdphd? • Why, why, why? • How, how, how? • Networks & impact • Action Plan

  16. How, How, How? • Twitter.com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

  17. How, How, How? • Twitter.com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

  18. ResourcesASCO15 Ed Book. Table 1 - http://ow.ly/NwAZ5 • Using Social Media to Learn and Communicate: It Is Not About the Tweet - ASCO 2015 Education Book - http://ow.ly/NwAZ5 • ASCO Social Media: http://www.asco.org/about-asco/social-media • How Can Social Media Improve Oncology Care? – Thompson. CommOncol 2013 http://ow.ly/C4kxZ  • Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider – Thompson et al. 2015. Current Hematologic Malignancy Reports. In Press. • Disease-Specific Hashtags For Online Communication About Cancer Care – Katz et al. 2015 JAMA Oncol. In Press

  19. How, How, How? • Twitter.com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

  20. Tweet Anatomy From Navneet Majhail, MD in Thompson et al. 2015. “Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider”. In Press

  21. From Navneet Majhail, MD in Thompson et al. 2015. “Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider”. In Press

  22. Resources Navneet Majhail, MD ‏@BldCancerDoc @mtmdphd @symplur I am among the converted @ #ASH14

  23. All You need to Know! @BldCancerDoc: “Or How I Learned to Stop Worrying and Love Twitter" - @ASH_hematology http://ow.ly/Kj7CJ #ASH14 #bmtsm

  24. Resourceshttp://www.slideshare.net/nsmajhail/twitter-ebmt • Why Do We Need Twitter? For Health Professionals In Oncology, Hematology & Transplant • #EBMT15 • via @BldCancerDoc

  25. Professional Workflow "We’ve reached a point where social media is now part of the professional workflow." via @Doctor_V @33Charts - http://ow.ly/HXX06

  26. How, How, How? • Twitter.com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

  27. NCI / ECOG Tweeps • @theNCI National Clinical Trials Network (NCTN) cooperative group tweeps: • @ALLIANCE_Org, #AllianceNCTN • @EAOnc, #EAOnc • @GOG • @nrgonc, #nrgoncology • @SWOG, #SWOGOnc • Children's Oncology Group (COG) - ? • #NCORP

  28. NCI is on Twitter@theNCI • @NCICancerCtrl • @NCIMedia • @NCIprevention • @NCI_NCIP • @NCIBiospecimens • @NCISymptomMgmt • @NCIGlobalHealth • etc

  29. People • @mtmdphd • @fischmd (ECOG, SWOG, AIM) • @VincentRK (ECOG chair Myeloma) • @marklewismd (SWOG) • @recnac1 (Lee Ellis at MDACC, SWOG ) • @jrgralow (Julie Gralow) • @markaorourke (Mark O’Rourke, SWOG, NCI SxQOL Steering) • @Myleoma_Doc (Bob Orlowski, SWOG) • @testiscancer (Craig Nichols MD, SWOG Exec Officer) • @Montypal (Sumanta Pal, GU Med Onc at City of Hope)

  30. How, How, How? • Twitter.com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

  31. #EAOnc HashtagsCancer Tag Ontology (CTO) - http://ow.ly/LSlFx • ECOG-ACRIN Active Clinical Trials… http://ow.ly/snFqf #EAOnc • Brain Cancer - #btsmhttp://ow.ly/snFUX #EAOnc • Breast Cancer - #bcsmhttp://ow.ly/snG6o #EAOnc • Early Detection, Diagnosis, and Prevention Active Trials http://ow.ly/snGkj #EAOnc • Gastrointestinal (GI) http://ow.ly/Akw56 #EAOnc#ancsm #crcsm #hpbcsm #pancsm #stcsm • Genitourinary (GU) Cancer - #blcsm #kcsm #tscsmhttp://ow.ly/snPbQ #EAOnc • Gynecological Cancer - #gyncsmhttp://ow.ly/snQ2l #EAOnc • Head and Neck Cancer - #hncsmhttp://ow.ly/snQer #EAOnc • Leukemia - #leusmhttp://ow.ly/snTwS #EAOnc • Lymphoma - #lymsmhttp://ow.ly/snTGD #EAOnc • Melanoma - #melsmhttp://ow.ly/snTYL #EAOnc • Myeloma - #mmsm http://ow.ly/oUgfe #EAOnc • Patient-centered Outcomes and Survivorship http://ow.ly/snUqi #EAOnc • Thoracic Cancer - #lcsmhttp://ow.ly/snULK #EAOnc

  32. How, How, How? • Twitter.com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

  33. #mmsm Myeloma Twitter Discussion Group • Developed #mmsm (multiple myeloma social media) Twitter discussion group with patient Cynthia Chmielewski (@myelomateacher). • Moderate and facilitate provider, patient, advocate discussions. • 10/15/15 - Dana Holmes (@DanaHolmes911) started a Facebook page to cover the #mmsm Twitter activity • https://www.facebook.com/MultipleMyelomaMMSMTweetChat

  34. #JACR Tweet Chathttp://www.symplur.com/healthcare-hashtags/jacr/ • The Journal of the American College of Radiology hosts this Tweet chat, covering issues related to health care delivery. • For more information about upcoming topics, visit www.jacr.org. • Next chat:Thursday 26th November 09:00 AM PST • #JACR is a healthcare tweet chat hashtag submitted by @RadiologyACR

  35. #JACR 5/22/14 #JACR TweetChat moderator on topic of Clinical Trials and Health Care Social Media (#HCSM) T1: What are the potential uses of social media to improve clinical trials? T2: How can patients, scientists, and providers collaborate on social media? T3: How do the FDA draft guidelines impact manufacturer use of social media? Transcript: ow.ly/AKVTj

  36. Outline • Who is @mtmdphd? • Why, why, why? • How, how, how? • Networks & impact • Action Plan

  37. JACK WEST, Oncology 1 Jack West #1 Twitter Network Twitter Network mtmdphd This diagram represents the influencer’s interactions on Twitter. All followers are color-coded according to their category: CONVERSES WITH: DrAttai louisianagirl91 Doctors Advocacy Patients subatomoicdoc JackWestMD LungCancerFaces The size of each circle represents the number of interactions that each handle has with the influencer, with prominent users labeled. In the same way the thickness of the connection quantifies the number of interactions between the two nodes. JFreemanDaily TomVargheseJr cancerGRACE LISTENS TO:

  38. A growing online conversation about breast cancer Breast cancer authors over time – 795% growth

  39. An increasingly connected community

  40. ASCO Value Framework Social Network Analysis – All Conversations • Patients and advocates have been active participants in the conversation about the Value Framework. • This is a balanced conversation of doctors, patients and advocates in the “most central” list – reflective of the fact that the subject matter was presented in a very inclusive manner

  41. ASCO Value Framework Social Network Analysis – Filtered Conversations • Even when filtering only to those handles mentioned at least 5 times by the health ecosystem, the most central players stayed much the same – an indication that the conversation has permeated the cancer ecosystem very effectively Weight: 0 Nodes: >5

  42. Outline • Who is @mtmdphd? • Why, why, why? • How, how, how? • Networks & impact • Action Plan

  43. http://schneeblog.com/wp-content/uploads/2015/07/morpheus-red-blue-pill.jpghttp://schneeblog.com/wp-content/uploads/2015/07/morpheus-red-blue-pill.jpg

  44. Action Plan • Create account • If tentative can “protect” and just view • Follow high value tweeps • Follow hashtags and learn the culture • Engage at your own pace • Learn more (eg Mayo/Ragan, HootSuite) • Mentor others

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