Patient and Family Centered Care Curriculum Keith J. Mann DeeJo Miller Sheryl Chadwick
Goals • Improve communication skills with patients and families • Learn the importance of partnering with families in the care of their child • Recognize the unique needs of families coping with a complex needs child and/or child with a chronic illness • Recognize the barriers that exist for families in our health care system • Acknowledge personal biases and beliefs while respecting the cultural and spiritual beliefs of the family • Identify and promote the unique strengths of the family • Recognize that the family is the constant in the child’s life • Improve intra-hospital communication between physicians
Curriculum Details • Intern Year • Orientation lunch with members of the Family Advisory Board • Intern retreat focused on communication • “Match Day” Lunch • Family resides within 30 minutes of Children’s Mercy Hospital • Child is < 12 years of age • Child has been seen in > 3 specialty clinics at CMHC within the past 12 months • Child has a chronic condition that will still be present in 3 years • Parent/caregiver speaks English
Orientation Lunch Questions to ask residents at the orientation lunch • What did you like best about medical school? • Where did you grow up? • What do you do in your spare time? • Tell me about your family. • Is there anything that makes you nervous about talking to families? Questions to ask families at the orientation lunch • In addition to being a parent, what else do you do? • What does your family like to do for fun? • Why did you join the FAB? • Tell me about your family. • Tell me about a positive experience with a resident and why you remember this incident. • What is one piece of advice that you would give to all new residents?
Curriculum Details • Second year • Home visit • Hematology-Oncology mid-rotation seminar • Standardized patients • Third Year • Office visit
Summary • Curriculum designed to attitudes, behaviors, and skills not always addressed in residency training • First year had many successful moments • Difficult to maintain • Improvements each year