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April 23rd, 2014

April 23rd, 2014. Agenda:. The Able Act (H.R. 647 & S. 313)  - Sara Weir, National Down Syndrome Society MODDERN Cures Act – Eric Gascho, National H ealth Council An update on the FDA’s budget - Steven Grossman, Alliance for a Stronger FDA

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April 23rd, 2014

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  1. April 23rd, 2014

  2. Agenda: • The Able Act (H.R. 647 & S. 313) - Sara Weir, National Down Syndrome Society • MODDERN Cures Act – Eric Gascho, National Health Council • An update on the FDA’s budget- Steven Grossman, Alliance for a Stronger FDA • The Appropriations Process & How the Patient Community Can Get Involved – Kathryn G. Schubert, CDR Government Relations • Update on CMS and their proposed Medicaid Line Extension Rebate Policy – Patricia Beggiato, Mastocytosis Society • Medical Progress NOW! – Ellie Dehoney, Research!America • Ask Your Candidates! - Ellie Dehoney, Research!America • New Incentive Proposal for Orphan Drug Development – Julia Jenkins, Everylife Foundation

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