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  1. ض م أ في المغربPID in Morocco : When an NGO takes a country and a…continent احمد عزيز بوصفيحة Ahmed Aziz Bousfiha. aazz63@gmail.comClinical Immunology Unit. Department of Pediatric Infectious Diseases.CHU Ibn Rushd. Casablanca. Morocco. Association Hajar www.hajar-maroc.org Moroccan Society for Immunodeficiencies. www.pid-moroccansociety.org African Society for Immunodeficiencies ASID www.asid.ma

  2. Objectives • Particularities of PID in Morocco • How to succeed a Center in a limited resources country ?

  3. Epidemiology • PID are unrecognized in Morocco : • PIDs expected in 10 years: 2000 patients • 650,000 births per year • PID expected per year : 1 / 2000 Births • 300 / year • But at 2010 : only 10% diagnosed = 290 • HIV infection is less common • 1997 - 2009: • PIDs: 225 • HIV infections: 150 • Consanguinity: 20%

  4. Ibtihal Benhsaein and Fatima Ailal

  5. Particularities of PID in Morocco

  6. The 752delG26 mutation in the RFXANK gene associated with major histocompatibility complex class II deficiency: evidence for a founder effect in the Moroccan population. Naamane H, El Maataoui O, Ailal F, Barakat A, Bennani S, Najib J, Hassar M, Saile R, Bousfiha AA. Eur J Pediatr. 2010 Apr 23.

  7. Hajar, 15 mois, Consanguinité +, Cas similaires, DICS T-B+ NK – : Déficit en Jak 3 ?

  8. Khaoula, 13 mois, lymphopénie. DICS T- B+ NK+ IL7Rα BMT in Span, 2002 … et celui qui l’a fait revivre, c’est comme s’il avait fait revivre l’humanité entière. Le Coran : Le festin, verset 32 

  9. Ayoub, SCID T-B-NK + RAG1 1st Baby grafted in Morocco,2010 Thanks to the technical assistance of our Saudis brothers : Saleh and Hamoud. Thanks to Saudi Arabia. Congratulation for Arab cooperation!

  10. SAOUDI EXPERTS AT CASABLANCA: 2008, 2009, 2010, ... Saleh AL Muhsen Hamoud Al Moussa

  11. JL Casanova, Parrain and ASID Cofounder. Casablanca 2008

  12. JMF, Dream Mackers New York, 2009

  13. Recommendations For : • GPs • Students

  14. Functional Classification of the 2007 Update

  15. How to succeed a PID Center in a limited resources country ?

  16. Formation et Recherche : non disponibles F and R : disponibles Soins disponibles Diagnostic et Traitement : non disponibles

  17. Morocco: Country with Limited Resources Formation et Recherche : non disponibles F and R : disponibles Soins disponibles Diagnostic et Traitement : non disponibles

  18. Morocco: Country with Limited Resources Formation et Recherche : non disponibles F and R : disponibles Soins disponibles Diagnostic et Traitement : non disponibles Hajar Association Morocco : People with illimited Generosity

  19. JL Casanova Parrain with illimited Generosity Morocco: Country with Limited Resources Formation et Recherche : non disponibles F and R : disponibles Soins disponibles Diagnostic et Traitement : non disponibles Hajar Association Morocco : People with illimited Generosity

  20. France Royaume d’Arabie Saoudite JL Casanova Tunisie Parrain with illimited Generosity Contribution in developping PID in Africa In Arab Region In the World Morocco: Country with Limited Resources Formation et Recherche : non disponibles F and R : disponibles Soins disponibles Diagnostic et Traitement : non disponibles Hajar IPOPI JMF Morocco : People with illimited Generosity

  21. 2008 ASID 2009 Benhsaein au KFH 1st Allograft 2007 IgIV 100% Clin Immunol Unit Flux Cytometer 2000 Hajar 1997 Necker 1998 Labo Immu

  22. Honestly, it is not only the dynamism and the organization. Allah helps sincere wishes.