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Myasthenia gravis

Living with Myasthenia Gravis

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Myasthenia gravis

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  1. Living with Myasthenia Gravis By Kim Anderson

  2. Explaining an unpredictable disease • Talking with friends and family about what it is like to live myasthenia gravis will help them support you. They need to know about your need for extra rest and that your weakness can be unpredictable or change over time. This knowledge will help them understand if you have to cancel plans at the last minute or ask for rest times so you can join in group activities.1

  3. Self-care and myasthenia gravis • Get enough rest at night and build in daily naps or quiet time • Reduce stress • Take your medicines as prescribed • Invest in tools and devices that save you effort • Exercise regularly, but not too much • Stay cool, if heat triggers flares • Eat as healthy a diet as possible to give yourself more energy • Always tell your neurologist if you start taking a new drug or supplement

  4. Driving with myasthenia gravis When first diagnosed with MG, many people worry that they will not be able to drive again. People with MG should not drive when tired and should immediately park if their vision blurs or eyelid begins to droop. People with MG may be legally required to let their state motor vehicle department and insurance company know about their diagnosis. This varies from state to state and country to country.

  5. Coping with finances and myasthenia gravis Myasthenia gravis can be especially damaging to a person’s finances if it becomes hard to work. The main symptoms of MG such as fatigue, muscle weakness, and time lost to doctor’s visits can make work-life balance difficult for many people and impossible for some. Finding financial support can help relieve the anxiety of how to pay for the extra medical expenses that come with MG This Photo by Unknown author is licensed under CC BY-NC-ND.

  6. For more info go to https://myasthenia-gravis.com/living-coping/

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