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Paula Kealey Senior Macmillan Development Manager 8 th May 2014

Paula Kealey Senior Macmillan Development Manager 8 th May 2014. Partnership Working and Developments in Cancer Care. The cancer landscape is changing. In the past most people died some were cured. Today people with cancer are living longer. Earlier detection Advances in technology

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Paula Kealey Senior Macmillan Development Manager 8 th May 2014

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  1. Paula Kealey Senior Macmillan Development Manager 8th May 2014 Partnership Working and Developments in Cancer Care

  2. The cancer landscape is changing

  3. In the past most people died some were cured

  4. Today people with cancer are living longer • Earlier detection • Advances in technology • New targeted therapies • Cancer research

  5. Data from the Scottish School of Primary Care’s Multimorbidity Research Programme.

  6. Some of our achievement in 2008

  7. What is the Northern Ireland picture?

  8. 67,000 today

  9. The focus of cancer services is on the actual disease

  10. Cancer can impact on all aspects of a person’s life FINANCIAL

  11. To help people make the transition after treatment we need to focus on recovery

  12. Finding out “what matters to you” as opposed to ”what’s the matter with you”?

  13. The Five Survivorship Stages Improving Survivorship Intelligence

  14. The NCSI defined four priorities • Redesigning follow-up • Recovery package • Physical activity • PROMs and consequences of treatment

  15. http://www.youtube.com/watch?v=5Lw7pu9l6I8&feature=youtu.be

  16. To bring about this change we have formed a partnership Public Health Agency Health & Social Care Board Involving people affected by cancer in the process NI Cancer Network Macmillan Cancer Support

  17. Transforming Cancer Follow-up AIMS Improve patient experience after treatment and health and wellbeing Reduce inefficiencies in hospital follow up Enhance service coordination and integration

  18. Redesigning Follow Up

  19. Promoting Recovery

  20. Assessment and Care Planning

  21. Treatment Summary

  22. Cancer Care Review

  23. Cancer health and wellbeing events

  24. Macmillan Information & Support Services

  25. Financial Advice Services

  26. Getting help to get back to work

  27. Physical activity is important for ongoing health Exercise to music DVD Jam packed website Patient Packs Macmillan local projects Evidence Reviews

  28. Self Management Programmes

  29. Rehab across the patient journey Diagnosis & Treatment Rehabilitation Early monitoring Later monitoring Progressive illness* End of life care [Year 1 deaths] ’

  30. Cancer Rehabilitation Scoping:Activities so far • Over 60 stakeholder meetings • Literature review and full review of key activity in cancer rehabilitation (Mac and non Mac) • Survey of Macmillan rehabilitation professionals (n=120) • Close liaison with ‘trusted others’ • Identification of key themes and next steps

  31. Partnership Working Cancer Lifeline

  32. To find out about services to support you go to the following web site... www.survivorship.cancerni.net

  33. Presentation title which may run over two lines Name Title Date

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