Maternity Data Update on issues

1. Maternity DataUpdate on issues 12 June 2012 Due Data – Improving midwives’ use of data and access to information Julie Tindale-Midwife

2. Julie Tindale : Heart of England NHS Foundation Trust Biog: Clinical Midwife- Lead for Information and Communications for Women’s Health Governance Dept • Member of CCIO Leaders Network Advisory Group • Chair NN4B Closure Programme working Group • Member of Maternity Dataset (MCDS) Implementation Group • Member of National Nursing (and midwifery)Informatics Strategic Taskforce (NNIST) • 4 years as National Clinical Lead for Midwifery – DH Informatics Directorate (DHID) and Connecting for Health (Feb 2008 to Apr 2012)

3. Due Data • Overview: • NN4B • MCDS (Maternity and CYPHS and CAMHS) • PbR and Metrics • Clinical Information Systems • Leadership- A Maternity CCIO-how do we progress? Julie Tindale : julie.tindale2@nhs.net

4. Maternity Data: NN4B NHS Number for All Babies born in England Electronically Since October 2002 • Contract ends June 2014 (was 2013) • The software is now very out of date • Previous expectation Trusts would all be PDS compliant now • INNS was a temporary solution only • Renegotiation of business contracts on-going with BT • Trusts are not all PDS compliant • Trusts expected to have a working clinical maternity information system Julie Tindale : julie.tindale2@nhs.net

5. Maternity Data: NN4Bhttp://www.connectingforhealth.nhs.uk/systemsandservices/nhsnumber • System Providers are engaged with the CFH team • Early adopters based in Manchester : Silverlink for Maternity and iSoft for Child Health systems • Maternity services to provide a Clinical Lead as focus for communications / compliance • Regular updates are circulated- when there is news/progress • Website is updated with information • Contact : for further information Paul.Arrowsmith@nhs.net Julie.tindale2@nhs.net Julie Tindale : julie.tindale2@nhs.net

6. Maternity data: MCDS June 2013http://www.ic.nhs.uk/maternityandchildren/maternity MDS CYPHS and CAMHS Approved by ISB • MaternityUnits – including a Midwifery clinical lead! • Units must be working with their Data management departments to ensure the correct definitions working • Child Health units must be working with their Data management departments to ensure the correct definitions working • Mental health systems also need to adjust definitions and consider data capture methods Julie Tindale : julie.tindale2@nhs.net

7. Maternity data: MCDShttp://www.ic.nhs.uk/services/maternity-and-childrens-data-set/maternity-services-secondary-uses-data-set Key Areas • Routine Booking Appointment activities • Maternity Care Plans • Dating Scan • Antenatal Screening Tests • Structural Fetal Anomaly Screening • Labour & Delivery • Postnatal Demographics • Newborn Screening • Maternal and Neonatal Death Julie Tindale : julie.tindale2@nhs.net

8. Maternity data: MCDShttp://www.ic.nhs.uk/services/maternity-and-childrens-data-set/children-and-young-peoples-health-services-cyphs-secondary-uses-data-set Children and Young People's Health Services (CYPHS) Secondary Uses Data Set Key areas • Personal and demographic • Social and personal circumstances • Relationships and household • Breastfeeding and nutrition • Care event • Screening activity • Inpatient stays • Observations of BMI Julie Tindale : julie.tindale2@nhs.net

9. Maternity data: MCDShttp://www.ic.nhs.uk/maternityandchildren/CAMHS CAMHS key Areas • Referrals to CAMH services • Demographics • Background and Family history • Targeted needs • Encounters • Care planning and Interventions • Outcome measures • Inpatient stays • Presenting problems and diagnoses Julie Tindale : julie.tindale2@nhs.net

10. Maternity data: MCDS Benefits • The Information will flow real time to a national data warehouse reducing burden on service delivery organisations • Information will use same definitions- comparators will be more robust • Babies/ Children records directly linked to Mother’s pregnancy record* • Outcomes directly linked with significant events in pregnancy and delivery • Records for subsequent pregnancies and deliveries for the same mother will be linked • Powerful for public health: Smoking history linked to outcome trends, Breastfeeding prevalence and persistence Julie Tindale : julie.tindale2@nhs.net

11. Maternity data: PBR mailto:http://www.dh.gov.uk/health/2012/04/guidance-maternity-services/ STANDARDINTERMEDIATE AND INTENSIVE • Pathway payment system to be introduced in shadow from April 2012 • Payment split into 3 modules antenatal care; birth spell to discharge; postnatal care • Each module split into pathway levels by intensity of care needed; based on a woman’s characteristics and factors • Estimation of onset of conditions during pregnancy to enhance pricing Julie Tindale : julie.tindale2@nhs.net

12. Maternity Data :PbRhttp://www.dh.gov.uk/health/2012/04/guidance-maternity-services/ Julie Tindale : julie.tindale2@nhs.net

13. Maternity Data :Clinical Information Systems Issues Solutions? • Finding an up-to-date system that has a support department that is able to ‘speak Maternity’ • What does the best of breed maternity system look like? • Sharing best practice • Signposting to systems that work • Local networks choosing shared or collaborative systems Julie Tindale : julie.tindale2@nhs.net

14. Maternity Data :Clinical Information Systems Access for service users Solutions? • Health Bill: No decision about me without me • Information strategy: access to own medical records • Data sharing & security • Scheduling • Learning Disability, Language difficulty and equality • Access for laboratory and diagnostic results • RedBook on line • Pregnancy records on line • Navigation of proliferation of on-line pregnancy and birth advice • A Role for Information ‘Observatories’? Julie Tindale : julie.tindale2@nhs.net

15. Chief Clinical Information Officer for Maternity (Discussion) • How to grow the future leaders for Information and Communications • Informatics is not IT • Information and Communications is key- Better Safer Care? • Sharing for better safer services- Local and Regional Collaboration? • Who speaks for front line midwives who are ‘drowning’ under weight of the Data requirements, old equipment, no equipment? Julie Tindale : julie.tindale2@nhs.net