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Neuroscience Advocacy: Influencing Healthcare Policy for a Healthy Future

Engage in formal advocacy processes to influence public policy in neurology, target regulatory agencies, and join organized medicine to advocate for patients and physicians. Learn about avenues for advocacy, actions, and successes in influencing healthcare policy.

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Neuroscience Advocacy: Influencing Healthcare Policy for a Healthy Future

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  1. Advocacy in Neurology Influencing Health Care Policy

  2. Advocacy • What does advocacy mean to you? • Merriam-Webster definition: the act or process of supporting a particular cause or proposal • How have you served as an advocate previously? • For patients, peers, younger students, etc. • At the school, hospital, regional entity • To a patient’s school or employer

  3. What is Advocacy • Anticipate changes in health • care delivery systems Anticipate Influence • Influence the process, • decisions, and structures Engage • Engage our members and • patient groups to become • partners in the process

  4. Formal Advocacy • In this context, formal processes intended to influence public policy by appealing to legislative or regulatory bodies • All lobbying is advocacy; all advocacy is not necessarily lobbying • Lobbying is one form of advocacy and has restrictions on how much and amount of budget spent • Lobbying means advocating on specific piece of legislation • Advocacy may include educating public or specific subsets (e.g., patients) and engagingthem to do something • With a regulatory agency, usually also revolves around a specific issue to: • Propose something new or • Oppose something already happening for benefit of those doing the “ask”

  5. Influencing Policy

  6. Targets

  7. Regulatory Agencies of Importance

  8. Organized Medicine • Simply, vehicle that gives physicians a voice for influence • Way to collectively argue on behalf of physicians or patients • Can be local, state-wide, or national • Can be single specialty, a coalition of specialties, or all specialties • American Academy of Neurology—single specialty example • American Medical Association—all specialty example

  9. Influence Has Many Forms

  10. Getting Started • Choose an issue—helps if timing is right • Gather stakeholders—build numbers • Educate those who don’t agree, or at least don’t know • Build a case • Include written materials to leave with office after visit • Seek the optimal timing opportunity • Go to those making the decisions • Tell a story—make it a personal example—better than statistics

  11. Avenues for Advocacy—Groups • Join county and/or state medical association • Often free or low-cost membership • Opportunities may include committees and/or legislative days • Funding to attend annual meetings in which policy decisions are debated and adopted as medial student representatives • Join American Medical Association ($20/year) • Become a part of the Medical Student Section • More active engagement/serve as a delegate for your school • (https://www.ama-assn.org/about/medical-student-section-mss) • Join the AAN • Follow Capital Hill Reports or Twitter feeds

  12. Capital Hill Report • Bi-weekly update on legislative action and advocacy for neurology • Emailed to all AAN members

  13. Avenues for Advocacy—Actions • Find a physician mentor involved in advocacy • Write state or Congressional representatives • Join group legislative days at the state capital/DC • Schedule visit on own or in small group with representatives in district offices or DC • Engage with patient advocacy group in a particular area of interest (e.g., Multiple Sclerosis Society, American Heart Association) • Other AAN opportunities once a resident: Neurology on the Hill, Palatucci Advocacy Leadership Forum (PALF)

  14. Engaged Advocates

  15. Palatucci Advocacy Leadership Forum • Annual Training event over a few day period • Three components: • Media training • Grassroots legislative training • Action planning • Many graduates serve in AAN leadership roles • Competitive application process • ~30 advocates selected each year

  16. 2018 Successes • Passage of the Furthering Access to Stroke Telemedicine (FAST) Act • $3 billion increase in NIH funding for FY2018 • $400 million in new funding for the BRAIN Initiative • Repeal of Independent Payment Advisory Board (IPAB)-group determining Medicare savings • 10-year reauthorization of Children’s Health Insurance Program (CHIP)

  17. AAN Legislative Priorities

  18. More Information • AAN.com https://www.aan.com/public-policy/ • Email advocacy@aan.com • Social Media • #AANAdvocacy • Washington, DC Staff: @DerekBrandtDC

  19. So, what will you do?

  20. Questions?

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