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“What Does Health Have To Do With Transition? Everything!!”

“What Does Health Have To Do With Transition? Everything!!”. Office for Children with Special Health Care Needs Arizona Department of Health Services Bureau of Women’s and Children’s Health March 21, 2013.

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“What Does Health Have To Do With Transition? Everything!!”

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  1. “What Does Health Have To Do With Transition? Everything!!” Office for Children with Special Health Care Needs Arizona Department of Health Services Bureau of Women’s and Children’s Health March 21, 2013

  2. The Office for Children with Special Health Care Needs is a state level partner in the Arizona Community of Practice on Transition. Enhanced our ability to incorporate health as an important aspect of transition planning.

  3. Pediatric to Adult Healthcare Transition Transition is a period of learning, skill building and goal setting experienced by young people as they prepare to move from adolescence to adulthood. A successful transition from pediatric to adult healthcare systems is an essential part of maintaining good health for young adults with special health care needs Children with a chronic physical, developmental, behavioral, or emotional condition, and who require health and related services beyond those required by children generally.* *Defined by the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (MCHB)

  4. Pediatric to Adult Healthcare Transition Good health and well-being are necessary for young adults with special health care needs as they seek employment, education, volunteering, social relationships, recreation and community life. The goal of transition is to move young adults toward self-determination by increasing, to the extent possible, decision making and self-direction skills in all areas of life.

  5. Role of OCSHCN in Pediatric to Adult Healthcare Transition Best practices for the healthcare transition of youth with special health care needs • Begin at age 14, young adult, family and healthcare providers jointly develop a written healthcare transition plan; review and revise at least annually • Ongoing assessment of transition readiness and progress • Provision of appropriate transition services, support and planning

  6. Role of OCSHCN in Pediatric to Adult Healthcare Transition Best practices for the healthcare transition of youth with special health care needs • Identification of and coordination with, an adult medical home, sometime between 18th and 21st birthday. Medical home is an approach to providing primary care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate and culturally effective • Include young adults in decision-making at the earliest age possible

  7. OCSHCN Healthcare Transition Services • Helps young adults, families and providers access healthcare transition information, resources and training • Offers transition to adult healthcare training for physicians • Assists youth and families in developing healthcare transition plans

  8. OCSHCN Promotes Self-Determination for Youth Youth develop and practice healthcare skills by learning: • About their health condition and how to describe and manage it • How to schedule medical appointments. • How to be an effective self-advocate • How health insurance eligibility may change at age 18

  9. What to Include in a Healthcare Transition Plan A healthcare transition plan should: • Include timelines for goals and activities • Identify who is responsible for coordinating transfer of care • Identify an adult healthcare provider • Address current strengths and needs

  10. What to Include in a Healthcare Transition Plan A healthcare transition plan should address current needs such as: • Transportation • Emergency planning • Health insurance • Coordination of transition services • Legal protection/guardianship • Developmental and functional independence • Education • Social and emotional health Q&A?

  11. OCSHCN Resources • Transition Brochure • Transition Resource • Care coordination tools for CYSHCN • Training • Parent and Youth Leadership • Breaking the Diagnosis • Communicating with Physicians • Navigating the System of Care • Resiliency • Youth in Transition • Health Care Organizer • Cultural Competency • Values, Beliefs and Attitudes • Disability Awareness and Sensitivity • Diversity of Families

  12. Office for Children with Special Health Care Needs Bureau of Women’s and Children’s Health Arizona Department of Health Services 150 N. 18th Avenue, Suite 320 Phoenix, AZ 85007 Tel: 602-542-1860 Fax: 602-542-2589 Toll Free: 1-800-232-1676 OCSHCN@azdhs.gov http://www.azdhs.gov/phs/owch/ocshcn

  13. Questions?

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