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What’s Health Got to Do with Transition? EVERYTHING!

What’s Health Got to Do with Transition? EVERYTHING!. Patti Hackett, MEd Co-Director Healthy & Ready to Work National Resource Center ND Transition Taskforce, Bismarck, ND March 18, 2009. www.hrtw.org. Health is Critical to School Success.

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What’s Health Got to Do with Transition? EVERYTHING!

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  1. What’s Health Got to Do with Transition? EVERYTHING! Patti Hackett, MEd Co-Director Healthy & Ready to Work National Resource Center ND Transition Taskforce, Bismarck, ND March 18, 2009

  2. www.hrtw.org

  3. Health is Critical to School Success • Success in the classroom, in the community, and on the job requires that young people are healthy. • Young people with life-long health issues need to learn early how to maintain and sustain health and wellness -- and to participate in their health care decisions.

  4. Transition Post-School Outcomes • Employment and job training • Post-secondary education • Independent/home living • Community Life • Leisure and recreation • What about HEALTH & Wellness? "You cannot educate a child who is not healthy, and you cannot keep a child healthy who is not educated." JOCEYLN ELDERS

  5. Youth are Talking: Are we listening? Survey - 1300 YOUTH with SHCN / disabilities Main concerns for health: • What to do in an emergency, • Learning to stay healthy* • How to get health insurance*, • What could happen if condition gets worse. SOURCE: Joint survey - Minnesota Title V CSHCN Program and the PACER Center, 1995 *SOURCE: National Youth Leadership Network Survey-2001 300 youth leaders disabilities

  6. Transition: IEPs & SOP • Starting at an early age, IEPs can/should be more closely linked to post-school outcomes. • Post-school outcomes: Any health issue or limitation can be incorporated into the SOP if it describes how the child’s disability affects the child’s participation in school and recreational activities. (20 U.S.C. Section 1414 (d) (1) (A) of IDEA

  7. “Childrenand youth with special health care needs are those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.” Source: McPherson, M., et al. (1998). A New Definition of Children with Special Health Care Needs. Pediatrics. 102(1);137-139. http://www.pediatrics.org/search.dtl Who Are CYSHCN?

  8. HRSA/MCHB Block Grant: NPM #6 Transition to Adulthood Youth with special health care needs will receive the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence. (2002) SOURCE: BLOCK GRANT GUIDANCE New Performance Measures See p.43 ftp://ftp.hrsa.gov/mchb/blockgrant/bgguideforms.pdf

  9. Disabled?? Special Health Care Needs? <18 – Minor Child/Youth -- HEALTH SERVICES CYSHCN Children & Youth with Special Health Care Needs - Genetic - Chronic Health Issues - Acquired -- ED SERVICES (IEP or 504 Plan) - Student with Disability - Student with Health Impairment >18 – Adult (age of majority) - Person with Disability - Person with Health Impairment LEGAL: ADA (Americans with Disabilities Act) - Civil Rights

  10. CYSHCN

  11. Outcome #6: Youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work and independence -- CSHCN ages 12-17 only (derived) National: 41.2%

  12. Question:  (C6Q0A_E) Has anyone discussed with you how to obtain or keep some type of health insurance coverage as [CHILD'S NAME] becomes an adult?

  13. Extended Coverage – Family Plan 1. Adult Disabled Dependent Care(37 states) Incapable of self-sustaining employment by reason of mental or physical handicap, as certified by the child's physician on a form provided by the insurer, hospital or medical service corporation or health care center ND Cent. Code Section 26.1-36-09.1 - full-time student <26 yo - disabled student

  14. Extended Coverage – Family Plan 1. Adult Disabled Dependent Care(37 states) ND Cent. Code Section 26.1-36-09.1 - Disabled - incapable of self-sustaining employment - mental retardation or physical handicap and chiefly dependent upon the employee for support and maintenance - provided proof of incapacity and dependency 31 days of the child's attainment of limiting age

  15. Extended Coverage – Family Plan 2. All Young Adults, childless continued on Family Plan increasing age limit to 25-30 CO, CT, DE, ID, FL, IN, IL, ME, MD, MA, MI, MT, NH, NJ, NM, OR, PA, RI, SD, TX, VT, VA, WA, WV

  16. Question: (C6Q08) How often do [CHILD'S NAME]'s doctors or other health care providers encourage [him/her] to take responsibility for [his/her] health care needs?

  17. SECONDARY DISABILITIES -Prevention/Monitor - Mental Health - High Risk Behaviors AGING & DETERIORATION - Info long-term effects (wear & tear; Rx, health cx) - New disability issues & adjustments Screening

  18. Screen for All Health Needs • Hygiene (look good, feel good, smell good) • Nutrition(Stamina, Bowel Management, obesity, etc.) • Exercise(fitness and stamina) • Sexuality Issues(masturbation, STIs, GLBTQ/Twin Spirits) • OB-GYN(Routine care, Birth Control, Rape) • Mental Health(genetic, situational) • Routine(Immunizations, Blood-work, Vision, etc.)

  19. What would you do, if you thought you could not fail?

  20. Patti Hackett pattihackett@hrtw.org pattihackett@yahoo.com

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