Agenda

1. Agenda

2. Nov. 2017-Nov. 2019 Database Committee Jennifer Conway, MD Chair Heather Tinling, BSN, RN Non Physician Rep. Rachel Ryan, BSN, RN Non Physician Rep. Kurt Schumacher, MD, MS Member at Large William Jeff Dreyer, MD Member at Large Jacob Simmonds, MD Member at Large Aamir Jeewa, MD Member at Large

3. 2018 Activities Infection Form Mapping • New list of answer options to be displayed under Surgical Therapy (previously a free text) • Under final review

4. 2018 Activities Infection Form Mapping • New list of answer options to be displayed under Significant Long Term Sequelae (previously a free text) • Answer categories include • Kidney Consequences • Neurological Consequences • Respiratory Consequences • GI Consequences • PTLD Consequences • Will go live in 2019

5. 2018 Activities Post Transplant Annual Follow-up Form • Finalized list of medication options (previous a free text) • Will go live in 2019 • Medication entry guidelines: We are no longer categorizing medications by indication of use as intent is very difficult to assess and some medications may be used for multiple indications and have multiple effects despite intended use for only one indication or another • New Medication Categories: • Cardiovascular • Anti-Hyperlipidemics • Anticoagulants • Anti-Infectives • Endocrine • GI • Neuro/Psych • Pulmonary • Supplements • Immunosuppressants • Bone Marrow Stimulant • Other

6. 2018 Activities Cause of Death: Other, Specify • Review of several hundred free text entries • Committee reviewing mapping and expanding cause of death answer options • Will go live in WBDE system in 2019 • Once live, existing free text entries will automatically be mapped to new options where appropriate

7. 2018 Activities: WBDE Clinical Summary

8. 2019 Committee Goals Continued Form Review • Review how medical history is captured at time of listing • Review Renal Transplant / Dialysis data collection • Continued review of ‘other, specify’ free text entries