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Unpaid Caregivers: Integral to Healthcare

Unpaid Caregivers: Integral to Healthcare. In the US and UK. Ellen V. Makar , MSN, RN-BC, CCM, CPHIMS, CENP FACA- Subgroup On Health IT Workforce Development February 14, 2014. Unpaid. Unappreciated. Untrained. Undercounted. Exhausted. But vital.

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Unpaid Caregivers: Integral to Healthcare

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  1. Unpaid Caregivers: Integral to Healthcare In the US and UK Ellen V. Makar, MSN, RN-BC, CCM, CPHIMS, CENP FACA- Subgroup On Health IT Workforce Development February 14, 2014

  2. Unpaid. Unappreciated. Untrained. Undercounted. Exhausted. But vital. “America’s stealth weapon against chronic illness is a 46-year-old woman with a family, a high-school degree, a full-time job and a household income of $35,000. She has no particular training in health care. And, to tell you the truth, sometimes she doesn’t feel that great herself…” -- AMA Medical News, 2001

  3. Caregiver Self-identification Surveys 24.4 Million (n=4 surveys) Disability Surveys: 4.8 Million (n=4 surveys)

  4. Types of Assistance by CompanionDuring Physician Visit Source: Wolff and Roter, Archives of Internal Medicine, 2008

  5. Connecting Caregivers

  6. “Carers”: UK

  7. “Caregivers” : US

  8. Research and Policy Opportunities: Opportunities to Move Beyond a Shadow Workforce to Valued Partners in Patient Care • Who provides care? Consistent terminology, definitions, estimates of size of workforce • Who needs care? Distinguish core “scope of practice” triggers and opportunities for learning: age groups, conditions, settings of care? • What are the impacts, costs and benefits?Enable understanding of status quo; payment and delivery incentives to support population-based health that include and value family caregivers.

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