South Carolina’s Integrated Health and Human Services Data System

1. South Carolina’s Integrated Health and Human Services Data System Walter P. (Pete) Bailey SC Budget and Control Board Office of Research and Statistics www.ors.state.sc.us

2. South Carolina’s Integrated Health and Human Services Data System • All Payer Health Care Utilization Data (Inpatient, ER, Etc.) • Medicaid Eligibility and Claims • State Employee/teachers Health Plan Eligibility and Claims • Vital Records • State Agency Program Data • Other 2

3. Linking Individual Records Using a Unique Tracking Number • Personal identifiers used solely to determine if individual is already in our system • Each individual is assigned a number that stays with them perpetually • Unique tracking number randomized so identity can never be discovered • Personal identifiers removed from statistical records 3

4. Integrated Data vs. Administrative Data • Monitor change over time • Define specific sub-populations at an individual level • Link members of sub-population with various program data to identify characteristics • Use of Social Service • Relationship to Criminal Justice • Performance in School • Health Problems 4

5. Integrated Data vs. Administrative DataNumber of Special Needs Children by Agencies and Data Source 5

6. Example of Use of Integrated Data System in SCFree & Reduced Lunch & Medicaid Children Linked to Public School PerformanceEnglish Language Arts Test Scores PACT Exam – Poor & Non-Poor1999 – 2000 School Year, South Carolina Data linked as part of a cooperative agreement between the Department of Education, SC Education Oversight Committee, SC Department of Health and Human Services, and SC Department of Social Services. 6

7. Uses for the Safety Net Population Estimating the SC Safety Net PopulationLinking & Unduplicating Medicaid, TANF, Food Stamps, Uninsured Hospitalizations, ER Visits & Outpatient Surgeries*Free Clinics will be added when data is available 7

8. Uses for the Safety Net Population • Link this population to services to understand problems: • Health problems • Problems around birth • Abuse and neglect • SES • Monitor changes as programs are instituted to address problems 8

9. Uses in Enrollment in SCHIP • Linkage of uninsured inpatient and ER, food stamp clients with Medicaid eligibility • Identified those still uninsured at points in time • Mapped at census block level to highlight areas for outreach • Linked school free & reduced lunch files to Medicaid eligibility to identify school districts for priority outreach • Monitored use over time of ER by uninsured as a success measure 9

10. Uses in Studying Disparities in the Safety Net Population • Carving out specific sub-population provides exact demographic and SES characteristics (age, race, sex, poverty indicators) • Linkage to health care, vital records, school performance, etc., permits analysis of disease rates, school performance scores, perinatal issues, etc. • Control for age, race, sex and poverty 10

11. Helpful Qualities in Building an Integrated Data System • Neutral Organization • Non-service Provider • Trusted Organization • Preserve Existing Power Structure • Respect Partner Roles • Appropriate Control of Data 11