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Data completeness reporting

Data completeness reporting. Alex Hodsman, David Bull, Paul Dawson UK Renal Registry. Why is complete data important? How can data completeness be improved?. Epidemiology. Describe patterns of health and disease in populations Identify cause of disease

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Data completeness reporting

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  1. Data completeness reporting Alex Hodsman, David Bull, Paul Dawson UK Renal Registry

  2. Why is complete data important? • How can data completeness be improved?

  3. Epidemiology • Describe patterns of health and disease in populations • Identify cause of disease • Measure need for health services, their use and effects

  4. Exposure Outcome Lorry Driving Lung cancer Smoking Confounder

  5. Exposure Outcome Dialysis modality - HD Death Old age Confounder

  6. Phosphate and risk of death in HD patients

  7. Survival of incident RRT patients adjusted for co-morbidity

  8. Missing Data2001 HD patients = 4230

  9. Problems Fewer patients/centres in study Introduce bias as characteristics of those with missing data unknown Solutions Exclude patients from study Statistical techniques to make a ‘educated guess’ about characteristics (imputation) Missing data

  10. Or…………… Improve data quality

  11. Plan • Improve: • Timeliness of data return • Data completeness

  12. Do -timeliness • To be sent quarterly – 2 months after data collection commences

  13. Do –Data completeness • User friendly • Key areas • Incident and prevalent patients • Dialysis and transplant patients • Patient numbers • Demographic factors • Quality of care indices

  14. Patient numbers • New patients (All RRT) • Prevalent patients – HD, PD, Transplant • Deaths

  15. Demographics • All RRT – incident and prevalent • Ethnicity • Co-morbidity • Primary diagnosis • Referral data

  16. Dialysis patients URR Phosphate Haemoglobin PTH Blood pressure Transplant patients Haemoglobin eGFR Blood pressure Phosphate Quality of care indices

  17. Study – Data completeness • In addition to current completeness report • Single side of A4 • Pilot to Clinical Directors via CD forum • Ready to test in RRT centres • Send to IT manager and Clinical Director

  18. Please……….. Feedback your comments to the UKRR

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