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Transition through school. Rosanne Diaz, Information, Care and Advocacy Manager 0207 803 4802. Different types of transition. Transition through schools – things to consider. Plan ahead Educate the school/university/college – health professionals can help

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transition through school

Transition through school

Rosanne Diaz, Information, Care and Advocacy Manager

0207 803 4802

transition through schools things to consider

Transition through schools– things to consider

Plan ahead

Educate the school/university/college – health professionals can help

Once statemented – Local Education Authority is obliged to provide funding/resources to enable the statement to be fulfilled.

Yearly statement review – can ask for a review if things change

If not on a statement, School Plus/Action Plans can be put into place to provide support required

Small steps may be needed at every stage of transition – keep in touch with school as aspects of the condition change and more support is needed

Understand the support changes from primary to secondary – e.g. physiotherapy in school hours

Smooth transitions will:

Foster independence



Raise aspirations and opportunities

Raise awareness within schools and pupils

which school to transition into

Which school to transition into

The choice of school

At each transition stage of a school career there will be choices to make about the type of school

Mainstream or special, day or boarding, local or further away, with siblings (with better facilities)?

Choice should be based on:

individual child and the wishes of the family

practicalities such as the physical layout of local schools and whether they can be adapted to meet a child’s needs

any learning disabilities or behavioural difficulties

In some cases a child may feel more comfortable and better supported in a special needs school

An active choice that is made after assessment and discussion, and not an assumption by parents, teachers or the LEA

When EHCPs are rolled out in September 2014 – families will be given more choice in terms of schools chosen


LEA: Local Education Authority

EHCPs: Education Health and Care Plans

new statementing process

Education Health and Care Plans

  • - Available in piloted regions – ask CAs, school or LEA to find out if this applies to you
  • - from birth to age 25;
  • - from Sept 2014 rolled out everywhere
  • - already on SEN statements – gradually rolled over to EHCPs within 3 years
  • From when you are issued with EHCP – will focus on needs now – but also future goals and aspirations. School can be liable if goals aren’t reached as a result of needs agreed to in EHCP haven’t not been followed
  • If university degree takes you to greater than age 25, or courses are part-time?
  • SEN only covers up to age 18/20 – as long as child is in high school education – not further education
  • Designed to increase co-operation with services needed for an individuals “whole” support – holistic delivery of needs provided by educational services with input from social services and health professionals
  • Family are more involved in putting the plan in place
  • Can appeal at stages
  • Process is meant to be quicker – we will see!
  • This is a new process – so a lot of this is still only theory!

New Statementing Process

not happy with the ehcp

Not happy with the EHCP?

Contact our Advocacy team!

Simon Dadd, whose son Thomas has Duchenne muscular dystrophy and is 8years old, said:

“There's no doubt that the excellent support we had from the Muscular Dystrophy Campaign was a major part of our success without needing to go through the stress and time of a Tribunal hearing.  The advocacy team were very careful to listen to our concerns and provide clear and unbiased advice.  We're very grateful to them and would recommend that anyone facing issues accessing the services or protections [EHCPs] that they are entitled to make contact with them.”

0800 652 6352 (freephone)

care needs within school

Funded by social services and health authority for out of school hours

  • Funding for medical needs when in school – will come from LEA funding – but has to be agreed during the statementing process
  • Medical needs should be placed firmly in the EHCP – and will move with you/your child with school to school
  • Ensure that the team in school can address any health needs safely, e.g. respiratory support
  • Insist on further training if needed, or emergency review of statement to “up” provision

Care needs within school

access to higher education employment

Disabled Students’ Allowances (DSAs) - are paid on top of your other student finance and don’t have to be repaid. Can be used for higher education transport

  • Motability - Needs DLA or PIP (at the enhanced rate for mobility)
  • Re-used motability cars – can be an option for parents with young children with only mobility component of DLA
  • Access to work schemes
  • ESA – employment support allowance
  • Please ask for our Advocacy pack for more information

Access to higher education/employment

shared experiences and resources

Shared experiences and resources

Ben's story - Transition from Primary to Secondary school:

Takin’ Charge – developed byyoung adults living with Duchenne Muscular Dystrophy:

Overview of EHCPs – written by Muscular Dystrophy Campaign advocacy team:

Access to Higher Education Trailblazersreport:

Education factsheet, Muscular Dystrophy Campaign:

TalkMD – Parents Education Network:

to register contact Rosanne –

0207 803 4802

My Life Changing Work Experience – blog by Trailblazer Shaz Hossain:


Thank you for listening

Time for your questions!