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Maggie’s: A foundation of patient & public involvement

Patient and Public Involvement in Programme Development and Research at Maggie’s Mandy McMahan PhD (Clinical Psychology) Maggie’s Dundee & Fife mandy.mcmahan@maggiescentres.org. Maggie’s: A foundation of patient & public involvement. Maggie Keswick Jencks & Charles Jencks

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Maggie’s: A foundation of patient & public involvement

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  1. Patient and Public Involvement in Programme Development and Research at Maggie’s Mandy McMahanPhD (Clinical Psychology)Maggie’s Dundee & Fifemandy.mcmahan@maggiescentres.org

  2. Maggie’s: A foundation of patient & public involvement • Maggie Keswick Jencks & Charles Jencks “Above all, what matters is not to lose the joy of living in the fear of dying” • www.maggiescentres.org

  3. Maggie’s Programme of Support

  4. Quality assurance & Research • Programme development and evaluation • Getting Started • 3-hour group workshop for patients & carers before or at beginning stages of treatment • Education & discussion about managing side effects, keeping physically active, nutrition and well-being • Where Now? • 6-week post treatment programme • Personalised exercise & nutrition, stress management & well-being • Patient & Carer perceptions of barriers to participating in Maggie’s services

  5. Programme Development Getting Started & Where Now? • Partnership • Wellness Community & Lance Armstrong Foundation • Pilot • Frankly Speaking & Cancer Transitions • Evaluation & Feedback • Standard measures + participant feedback and comments • Integration & Development

  6. Research: Identifying barriers to services & participation

  7. Research: Identifying barriers to services & participation

  8. Research: Identifying barriers

  9. Research: Identifying barriers to services & participation

  10. Research: Identifying barriers

  11. Research: Identifying barriers

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