Session 8 ehdi data collection management in washington state
1 / 22

Session 8 EHDI Data Collection & Management in Washington State - PowerPoint PPT Presentation

  • Uploaded on

Session 8 EHDI Data Collection & Management in Washington State. Washington State Department of Health Richard Masse, MPH Karin Neidt, MPH Caroline Maundu, BS.

I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
Download Presentation

PowerPoint Slideshow about 'Session 8 EHDI Data Collection & Management in Washington State' - butch

An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.

- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript
Session 8 ehdi data collection management in washington state l.jpg

Session 8EHDI Data Collection & Management in Washington State

Washington State Department of Health

Richard Masse, MPH

Karin Neidt, MPH

Caroline Maundu, BS

Slide2 l.jpg

Faculty Disclosure InformationIn the past 12 months, I have not had a significant financial interest or other relationship with the manufacturer(s) of the product(s) or provider(s) of the service(s) that will be discussed in my presentation.This presentation will not include discussion of pharmaceuticals or devices that have not been approved by the FDA or if you will be discussing unapproved or “off-label” uses of pharmaceuticals or devices.

Washington state profile l.jpg
Washington State Profile

  • Births: 80,0000

  • Birthing Hospitals: 69

  • Mandate: No Mandate

  • Model: Follow-up provided by State

Washington state ehdi program l.jpg
Washington State EHDI Program

  • EHDI team staffed by Genetic Services/NBS Programs

    • 4 FTEs solely for EHDI

    • 2 FTEs for program consultation & support

  • Partners with Children’s Hospital in Seattle

    • Help establish and train hospital screening programs

    • Consult on audiology issues

  • Contracts with private vendors

    • Support for OAE/ABR equipment maintenance

    • Tracking & surveillance system maintenance/upgrades

  • Other partners

    • AAP, WSDS, Lion’s Foundation

Washington staff profile l.jpg
Washington Staff Profile

  • EHDI Team (Genetics/NBS)

    • 4 FTEs solely for EHDI

      • Follow-up on patients

      • Monitor infant screens

      • Program outreach & evaluation

    • 2 FTEs for program consultation & support

      • Consult on program development

      • Data retrieval & analysis

      • General clerical support

Tracking surveillance system history l.jpg
Tracking & Surveillance System History

  • 2001 – Received CDC/HRSA grants

  • 2002 – Built system and started with 5 pilot hospitals

  • 2003 – Added a few more hospitals to the system

  • 2003 – Began work on web application for audiologists

  • 2004 – Audiologists started using web application

  • 2004 – Began work to add all hospitals in WA to system

  • 2005 – All hospitals but 1 reporting to system

  • 2005 – Some clinics begin reporting to system

Tracking surveillance system details l.jpg




Web App

Tracking & Surveillance System Details

  • SQL Database

  • VB Client used by DOH employees

  • Web application is .ASP pages used by Audiologists

  • Security is both user name/password and digital certificates

  • EHDI database initially populated by bloodspot program data





Secure DOH environment

Overview of how it all works l.jpg


Web App



Overview of how it all works

  • Hospitals screen with OAE and ABR

  • Hospitals submit results to DOH on modify bloodspot cards

  • DOH manages screening data and responds accordingly

  • Referrals are made to audiology clinics

  • Audiologists add diagnostic data to patient records




Basic system uses l.jpg
Basic System Uses

  • Patient Follow-up

  • Monitoring Screens

  • Feedback to stakeholders

Patient follow up l.jpg

  • Respond to results submitted by hospitals

  • Communicate with primary care provider

  • Use combination of letters, calls & faxes

  • Document case management

Monitoring screens l.jpg
Monitoring Screens

  • Use birth rosters to monitor that every infant is screened

  • Work with hospitals to resolve “potential no test” cases

  • Contact primary care provider if infant was true no test

Feedback to stakeholders l.jpg
Feedback to Stakeholders

  • Hospital Report 1: Screener Reports

  • Hospital Report 2: Card Reports

  • Audiologist Reports

    • Facility/State Statistics

    • Referrals with and without recorded visits

    • Patient summaries of infants diagnosed with HL

    • Risk Factor and Referring MD Summaries

  • Ad-Hoc Reports as requested

Additional system uses l.jpg
Additional System Uses

  • Protocol Analysis

  • Outcome Evaluations

  • Ad-Hoc Data Analysis

Protocol analysis l.jpg


Protocol Analysis

  • How many letters do we send?

  • What is the response?

  • Are the timelines correct?

  • Do faxes work better?

  • Etc….

Outcome evaluations l.jpg
Outcome Evaluations

  • Did we detect infants with HL?

  • What type of HL?

  • Did we lose patients? Why? When?

  • Intervention?

Ad hoc analysis l.jpg
Ad-Hoc Analysis

  • Geographically Specific

  • Specific Diagnostic Clinics

  • Border Issues

Future system uses l.jpg
Future System Uses

  • AUCD Risk Factor Study

  • Lost to Follow-Up

  • Data Integration

Aucd risk factor study l.jpg
AUCD Risk Factor Study

  • UW & Children’s Hospital

  • Risk factor education

  • Risk factor reporting

  • Increase data submitted

  • Evaluation of data collected

Lost to follow up l.jpg
Lost to Follow-Up

  • Determine causes

  • Student projects

  • Develop targeted protocols

Data integration l.jpg
Data Integration

  • Child Profile

  • Part C

  • Medical Homes

  • Local Public Health

What we ve learned l.jpg
What we’ve learned….

  • Be familiar with your system

  • Evaluate your system & protocols

  • Involve stakeholders

  • Know your resources

Contact information l.jpg
Contact Information

Richard Masse, MPH

Karin Neidt, MPH

Caroline Maundu, BS

Washington State EHDI on the web