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Learning Objectives • I will understand the issues faced by individuals with a bleeding disorder. I will be able to recognize the signs and symptoms associated with a bleeding disorder. • I will understand how to access resources available to individuals with a bleeding disorder. • I will know how traits can be • inherited
The Many Faces of Bleeding DisordersWorld Federation of Hemophiliawww.wfh.orgLINK: http://www.youtube.com/watch?v=0o54NzzyerA&feature=channel
What is a bleeding disorder? Someone with a bleeding disorder can bleed to death from a paper cut True or False?
What is a bleeding disorder? Someone with a bleeding disorder can bleed to death from a paper cut FALSE If you have a bleeding disorder, you bleed longer not faster
What is a bleeding disorder? A bleeding disorder is caused by an absence or abnormality in one of the blood clotting factors necessary for forming a clot True or False?
What is a bleeding disorder? A bleeding disorder is caused by an absence or abnormality in one of the blood clotting factors necessary for forming a clot True
What is a bleeding disorder? Bleeding disorders are genetic – passed on from your mother and/or father True or False?
What is a bleeding disorder? Bleeding disorders are genetic – passed on from your mother and/or father True Although a bleeding disorder can also arise from a new genetic mutation.
What is a bleeding disorder? Only boys and men can have a bleeding disorder True or False?
What is a bleeding disorder? False Only boys and men can have a bleeding disorder Both men and women of all races/ethnic backgrounds are affected by bleeding disorders
Blood Plasma holds all the blood cells together and helps to transport the blood cells throughout the body • White blood cells fight germs and disease • Red Blood cells carry oxygen throughout the body • Fibrins , formed by the activation of clotting factors in a domino effect, come together at the site of an injury and are part of the clotting process • Platelets are another part of the • clotting process. Platelets attach to • the hole in the blood vessel and • form a plug (clot) What is found in Blood?
Clotting Factors • von Willebrand factor is very important in forming clots; helps the platelets stick together. Lack of this factor and blood will not clot properly • Clotting factors are other • proteins that help form a clot. • If someone is missing a clotting • factor, their blood will not clot • properly and they would have • hemophilia or another rare • bleeding disorder What is found in Blood?
Who knows someone who has a bleeding disorder? • How would your • life be different if • you had one? Discussion Questions
Hemophilia affects 1 in every 5,000-10,000 males • About 1% of the population has vWD – equally affects men and women • About 30% of people with • hemophilia have no family • history; it’s caused by • genetic mutation More about bleeding disorders
1925 - Dr. von Willebrand was asked to evaluate a 5 year old girl • She had a history of nosebleeds and bleeding after tooth extraction • One of 12 children – 10 had • bleeding problems • Four siblings died between ages 2 and 4 from uncontrollable bleeding von Willebrands Disease
This type of bleeding was different • Decades later, the factor affecting this disorder was identified • Named after the doctor who first described the symptoms von Willebrands Disease
Signs and Symptoms • Heavy periods (girls) • Easy bruising • Frequent or prolonged • a nosebleeds • Having a family member who has a bleeding disorder • Diagnosed for anemia von Willebrands Disease
Bleeding disorders are treatable! • If you have symptoms, talk to your doctor • Additional Discussion Questions • Why is it important to be diagnosed if you have a bleeding disorder? • If you plan to have children, why is it important to know if you have a bleeding disorder? Bleeding Disorders
Genetics • Build a Person • Fibrin Clot Web Classroom Activities
Discrimination: Case of Ryan White Ethics: -Blood supply contamination in 1980’s -Cost of medicine today -Decision about having a child if one or both parents have a genetic risk Community Service: -Volunteering to help out at a community agency -Correcting misinformation among peers Other ideas for topics: