2008 ACS CAN Leadership Summit and Lobby Day September 22, 2008

1. Federal Funding Across the Cancer Continuum: The Budget today and the National Cancer Fund for the future 2008 ACS CAN Leadership Summit and Lobby Day September 22, 2008

2. Who We Are and Why We’re Here • Who We Are: • Dick Woodruff Senior Director, Federal Relations • David Pugach • Associate Director, Federal Relations • Why We Are Here: • To help provide a better understanding of the appropriations process and need for increased funding for cancer research and control programs.

3. Where does the money come from? President’s Budget Request Budget Resolution Appropriations Bills Funding for Cancer Research and Control

4. NCI and CDC Cancer Funding is DownInflation has led to shrinking programs • Since FY 2003, when accounting for inflation, the National Cancer Institute’s budget has decreased by more than $630 million (13.7 percent). • During this same time, the CDC’s cancer budget has shrunk by nearly $14 million (5 percent).

5. NCI Funding FY 2003-2009 Cancer Research in a Dangerous Decline

6. CDC Cancer Funding in DeclineLess money to help cancer patients

7. Why Funding for Cancer Must IncreaseWhy we care! • Research is providing breakthroughs in prevention and early detection, and new treatments for the deadliest cancers. • At the same time we are seeing great advances in cancer research, the budgets for NCI and CDC cancer programs are falling well below where they need to be.

8. Impact of Declining Cancer FundingFewer People Benefiting • Fewer clinical trials have been started and fewer patients are being enrolled than 5 years ago. • The development of new drugs, devices, and other tools for treating cancer is being delayed.

9. Impact of Declining Cancer FundingFewer People Being Served • The CDC’s National Breast and Cervical Cancer Early Detection Program served fewer women in 2006 than in 2005. • The CDC’s colorectal cancer screening initiative is under-funded and unable to increase public awareness about the need for colorectal screening.

10. The Cost of Fighting Cancer in FY09Cancer Research and Control • National Institutes of Health - $30.81B ($1.88 billion (6.5%) over FY 2008) • National Cancer Institute - $5.26B ($455 million (9.5%) over FY 2008) • Centers for Disease Control Cancer Programs - $445.5M ($136 million over FY 2008)

11. Excuses, Excuses, Excuses!Things you might actually hear… • Appropriations bills aren’t going anywhere this year. • We just doubled NIH’s budget. • NIH needs to do a better job managing its money. • Wasn’t there just a big fundraiser for cancer?

12. How to Respond:Bills aren’t going anywhere this year • NIH, NCI and CDC have not received adequate funding for the past five years. • Will you support funding increases when the Labor-HHS appropriations bill does come up?

13. How to Respond:We just doubled NIH’s budget. • The NIH and NCI budget was doubled between FY 1998-2003. • Accounting for inflation, NCI’s budget has decreased by $630 million (13.7%) since that time. • Will you support funding increases when the Labor-HHS appropriations bill does come up?

14. How to Respond:NIH needs to do a better job with $$. • In FY 2008 NIH received $29.38B, of which $4.83B went to NCI. • Nearly 80% of NCI’s budget goes out the door to support researchers at over 650 universities, hospitals, cancer centers, and other sites across the U.S. The number of institutions receiving support from NIH is even higher. • Inadequate funding is forcing NCI and NIH to make dangerous cuts to potentially life-saving research projects.

15. How to Respond:You just had a big cancer fundraiser. • Stand Up To Cancer generated about $100M in pledged donations for cancer research. • These funds will complement the cancer research undertaken by NIH and NCI. • Yet, research is still under-funded while prevention and early detection services are not covered at all.

16. The National Cancer FundA New Way to Fight Cancer • Past progress in the fight against cancer is now in jeopardy because of inadequate resources. • A National Cancer Fund would provide a dedicated source of funding to supplement existing appropriations for combating cancer.

17. The National Cancer FundA New Way to Fight Cancer • The fund would be built around revenue generated from a new source of funding. • Money from the National Cancer Fund would be appropriated by Congress. • The National Cancer Fund would support high impact research, prevention and early detection projects.

18. Make it About You!You are the key to the message • Why are you here? • Who are you advocating for? • What is your connection to cancer? • What are we asking our Congressmen to do?

19. Always RememberKey Cancer Facts • 60% of all cancer deaths could be prevented if we applied what we already know - prevention, screening, and early detection. • The pace of progress is slowing do to a lack of funding – fewer clinical trials are starting and can afford to enroll fewer participants. • CDC outreach and screening programs are nowhere close to meeting public demands.

20. Federal Funding to Fight CancerACS CAN Lobby Day Wrap-up and Questions