Download
the uk renal registry 2013 from there to here to where n.
Skip this Video
Loading SlideShow in 5 Seconds..
Terry Feest PowerPoint Presentation
Download Presentation
Terry Feest

Terry Feest

183 Views Download Presentation
Download Presentation

Terry Feest

- - - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript

  1. The UK Renal Registry 2013 - From there …to here ….to where? Terry Feest

  2. Our intuition doesn't like change From there …to here ….to where? Approaching the changing reality with sensible flexibility is the best strategy for happiness. AL Kennedy

  3. There …….1997 • Electronic returns only • Quarterly quality data – Hb, BP, etc • BUT • 9 units • 2 staff sharing my office • Dependent on grants • Largely manual validation • Many sceptics!

  4. Nearly here….2007

  5. Nearly here….2007 • Full coverage • Comprehensive reports • No longer anonymous • RRT results in the UK improving

  6. Nearly here….2007 • Full coverage • Comprehensive reports • No longer anonymous • RRT results in the UK improving • Financially and editorially independent • BUT

  7. 2007….. …… • Data collection slow • Reports late • Data quality static • Paediatrics not incorporated • No vascular access data • Little PD information • No infection data • Little new – not developing? ..2009 …..still only nearly here

  8. Our intuition doesn't like change Stuck here 2009 1996 Approaching the changing reality with sensible flexibility is the best strategy. AL Kennedy

  9. Insanity The definition of insanity is doing the same thing over and over and expecting different results. Benjamin Franklin

  10. Picture of paper validations

  11. Data handling review 2010 onwards The process within the RR • Automating and speeding • Consistency & Accuracy • Electronic handling • Staff recruited

  12. Data validation “automation” We want the data managers to have time to: • Think • Communicate with you • Work with you - both units and suppliers

  13. Data handling review 2010 onwards The process within the RR • Automating and speeding • Consistency & Accuracy • Electronic handling • Staff recruited • New communications with units • New communications with suppliers • Routines for some on site validation • Improved data quality

  14. Data handling review 2010 onwards The process within the RR • Automating and speeding • Consistency & Accuracy • Staff recruited • New communications with units and suppliers • Improved data quality • Reduced time by at least 6 months • We have caught up to date

  15. Here….2013

  16. Here….2013 Up to date and… • Interactive portal • HES data project and other linkage • Paediatric incorporation • PD project • Vascular access project • RADAR • Renal patient view support • ATTOM project

  17. Our intuition doesn't like change Beginning to spread our wings 2013 1996 Stuck here 2009 Approaching the changing reality with sensible flexibility is the best strategy. AL Kennedy

  18. To where?.... • Patient measures • Patient reported outcome measures • Patient reported experience measures • Shared decision making project • Patient activation • Acute Kidney injury – £1.2m • Dialysis • National laboratory surveillance

  19. To where?.... • Liaison with commissioners: • Performance measures routed via the Registry • Transplant listing, Adequacy, Peritonitis, MRSA, Access • Improves data and saves you work

  20. To where?............. • Flying high • But the core will always be data collection and audit of performance in order to improve patient care • Without success of the core work which you are all involved with the Registry will have no future

  21. Data • Registry dependent on the data supplied • i.e. Your work

  22. To where?.... • The Renal Data Collaboration • Entirely new concept in collection and validation of data • To make life easier • Patient and doctor benefit • Potentially the most important single development • Needed the personnel

  23. Our intuition doesn't like change Beginning to spread our wings 2013 2015? 1996 Stuck here 2009 2014 Approaching the changing reality with sensible flexibility is the best strategy AL Kennedy

  24. www.renalreg.com