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EUROPSO patient survey

EUROPSO patient survey. First top-line results September 19th 2002. Survey Demographics. Survey response rate. Response rate by age group. Vlaanderen. Race and gender. 99% caucasian. Vlaanderen. Weight of respondents. Vlaanderen. Psoriasis. Respondents with psoriasis.

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EUROPSO patient survey

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  1. EUROPSO patient survey First top-line results September 19th 2002

  2. Survey Demographics

  3. Survey response rate

  4. Response rate by age group Vlaanderen

  5. Race and gender 99% caucasian Vlaanderen

  6. Weight of respondents Vlaanderen

  7. Psoriasis

  8. Respondents with psoriasis 556 respondents had psoriasis Vlaanderen

  9. Leeftijd van Diagnose Op welke leeftijd werd voor de eerste maal psoriasis waargenomen? Gemiddelde leeftijd Europa 30.5 jaren (n=17990)

  10. Duur van Psoriasis Hoeveel jaren duurt de psoriasis op dit moment?

  11. Type of psoriasis cf: US study,Krueger et al 2001: 88% psoriasis vulgaris Vlaanderen

  12. Psoriasis symptoms cf: US study,Krueger et al 2001: 94% scaling, 79% itching, erythema 71%, burning 21%, bleeding 29%, fatigue 19% Vlaanderen

  13. Sites affected Vlaanderen

  14. Severity Body surface covered cf: US study,Krueger et al 2001: 39% severe Vlaanderen

  15. Co-morbidities Have you been diagnosed with any of the following? Most co-morbidities appear age-related: obesity, diabetes, CVD.Those not obviously appearing to be age-related are autoimmune, Crohn’s, lupus Vlaanderen

  16. Co-morbidities Severe Patients Vlaanderen

  17. Psoriatic arthritis

  18. Joint pain/stiffness Have you developed persistent joint pain or stiffness lasting more than 3 months? Vlaanderen

  19. Joint pain/stiffness If yes, where? Vlaanderen

  20. Psoriatic arthritis Have you been diagnosed with psoriatic arthritis by a physician? cf: US study,Krueger et al 2001: 31% diagnosed with PsA Vlaanderen

  21. Impact of psoriasis

  22. Psoriasis Disability Index (PDI) Total mean PDI = 10.8 (max score 48) Vlaanderen

  23. PDI per country:Mean PDI score Max score = 48

  24. PDI per age group:Mean PDI score Max score = 48 Vlaanderen

  25. Psoriasis Disability Index (PDI):Mild psoriasis Total mean PDI = 8.9 PDI max score per category = 18 + 9 + 6 + 12 + 3

  26. Psoriasis Disability Index (PDI):Mild psoriasis Overall PDI % score in mild psoriasis = 18.5%

  27. Psoriasis Disability Index (PDI):Moderate psoriasis Total mean PDI = 14 PDI max score per category = 18 + 9 + 6 + 12 + 3

  28. Psoriasis Disability Index (PDI):Moderate psoriasis Overall PDI % score in moderate psoriasis = 29.2%

  29. Psoriasis Disability Index (PDI):Severe psoriasis Total mean PDI = 21 PDI max score per category = 18 + 9 + 6 + 12 + 3

  30. Psoriasis Disability Index (PDI):Severe psoriasis Overall PDI % score in severe psoriasis = 43.8%

  31. Impact of psoriasis PDI – individual questions

  32. PDI Individual questions How much have you neglected your home’s outdoor and indoor work due to your psoriasis?Percentage responding “Very much/A lot” Vlaanderen

  33. PDI Individual questions Has your psoriasis affected your choice of clothes (e.g. colour or type)? Percentage responding “Very much/A lot” Vlaanderen

  34. PDI Individual questions Have you had to change or wash your clothes more often due to psoriasis? Percentage responding “Very much/A lot” Vlaanderen

  35. PDI Individual questions Has your psoriasis caused you problems at the hairdressers or barbers? Percentage responding “Very much/A lot” Vlaanderen

  36. PDI Individual questions Has your psoriasis resulted in you having to take more baths than usual? Percentage responding “Very much/A lot” Vlaanderen

  37. PDI Individual questions How much has your psoriasis made you take time off work or school or from carrying on your daily activities? Percentage responding “Very much/A lot” Vlaanderen

  38. PDI Individual questions How much has your psoriasis prevented you from doing things at work or school or altered the way you carry out your daily activities? Percentage responding “Very much/A lot” Vlaanderen

  39. PDI Individual questions Has your career been affected by your psoriasis? Percentage responding “Very much/A lot” Vlaanderen

  40. PDI Individual questions Has your psoriasis resulted in sexual difficulties? Percentage responding “Very much/A lot” Vlaanderen

  41. PDI Individual questions Has your psoriasis created problems with your partners or any of your close friends or relatives? Percentage responding “Very much/A lot” Vlaanderen

  42. PDI Individual questions Has your psoriasis stopped you from going out socially or to any special events? Percentage responding “Very much/A lot” Vlaanderen

  43. PDI Individual questions Has your psoriasis had a negative effect on exercising or going in for sports events, competing? Percentage responding “Very much/A lot” Vlaanderen

  44. PDI Individual questions Have you been unable to use or stopped from using the gym, locker room, swimming pool or dressing room in a store due to your psoriasis Percentage responding “Very much/A lot” Vlaanderen

  45. PDI Individual questions Has your psoriasis resulted in you smoking or drinking alcohol more than you would do normally? Percentage responding “Very much/A lot” Vlaanderen

  46. PDI Individual questions To what extent has your psoriasis or its treatment made your home messy or untidy? Percentage responding “Very much/A lot” Vlaanderen

  47. PDI Individual questions How much did any physical discomfort due to psoriasis cause you to lose sleep or sleep badly? Percentage responding “Very much/A lot” Vlaanderen

  48. Overall impact (scale 1 to 10)

  49. Overall impact How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)? Mean score = 4.86 Vlaanderen

  50. Overall impact:Mild psoriasis How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)? Mean score = 3.99 Vlaanderen

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