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ELF website & European Patient Ambassador Programme (EPAP)

Visit the ELF website for multilingual patient resources, factsheets, patient organization network, airline oxygen policies, and EPAP modules for effective patient involvement. Available in multiple languages with new translations and updates regularly.

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ELF website & European Patient Ambassador Programme (EPAP)

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  1. ELF website & European Patient Ambassador Programme (EPAP) Kjeld Hansen Member ELF Council, EPAP Patient Advisory Group

  2. ELF Website • Currently available in 8 languages • Portuguese translation coming in autumn • Further translations to come

  3. Website features Factsheets and patient information materials • Over 40 documents in 18 different languages and growing • Produced with ERS experts and patients; regularly reviewed

  4. Website features European Patient Organisation Network • Search for patient organisations by country and/or condition • Get more information

  5. Website features Airline index • Contains policies regarding oxygen for each different airline

  6. Get involved Link to our website • Share our resources and link to them on your website Connect with us on social media – help us build a strong network of patients @EuropeanLung facebook.com/europeanlungfoundation

  7. European patient ambassador programme (EPAP) • 7 Modules on skills and knowledge for effective patient involvement – another on in progress • Over 600 learners registered • Available in English, Dutch and now Italian too!

  8. European patient ambassador programme (EPAP) Engagement with ambassadors • Website with wealth of information • Resources page growing – to be revamped and updated in September/October • News section with articles of interest and opportunities for patient involvement shared on website, Facebook and LinkedIn • New Patient Advisory Group • End of programme survey • 6 monthly newsletter coming soon

  9. European patient ambassador programme (EPAP) • Partners in Europe and all over the world use EPAP • Partners helping to develop new modules and help with translations

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