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About FCCDHH

About FCCDHH. Presented to the Office of Minority Health Staff January 12, 2012. Today’s Presenters. Mary Grace Tavel Human Services Program Specialist Florida Coordinating Council for the Deaf and Hard of Hearing MaryGrace_Tavel@ doh.state.fl.us. Valerie Stafford-Mallis

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About FCCDHH

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  1. About FCCDHH Presented to the Office of Minority Health Staff January 12, 2012 1-10-2012 Office Minority Health

  2. Today’s Presenters Mary Grace Tavel Human Services Program Specialist Florida Coordinating Council for the Deaf and Hard of Hearing MaryGrace_Tavel@ doh.state.fl.us Valerie Stafford-Mallis Health Educator Consultant Florida Coordinating Council for the Deaf and Hard of Hearing Valerie_Stafford-Mallis @doh.state.fl.us 1-10-2012 Office Minority Health

  3. What Is the FCCDHH? 1-10-2012 Office Minority Health

  4. Background & History of FCCDHH Created in 2004 by Florida Statutes, § 413.271 FCCDHH advises the Governor, the Legislature, and various governmental bodies FCCDHH conducts quarterly meetings around the state FCCDHH holds Public Hearing & Comment periods during these meetings; citizens may convey issues of vital concern to the Council 1-10-2012 Office Minority Health

  5. Roles of FCCDHH Provide information and referral sources Promote public and individual advocacy for persons with hearing loss Provide technical assistance to state agencies Obtain input from the public Provide information and technical assistance to the legislature and governmental bodies on the needs of persons with hearing loss 1-10-2012 Office Minority Health

  6. The Council’s Membership 1-10-2012 Office Minority Health

  7. Mission of FCCDHH The Council provides a forum for public input and outreach resulting in: technical assistance, advocacy, education, and improved communication access among public and private entities, to meet the needs of deaf, hard of hearing, late-deafened, and deaf-blind persons. 1-10-2012 Office Minority Health

  8. Who Does the FCCDHH Serve? 1-10-2012 Office Minority Health

  9. All Floridians Whose Lives Are Affected by Hearing Loss 1-10-2012 Office Minority Health

  10. Hearing Loss Descriptors Deaf Hard of Hearing Late Deafened Deaf-Blind 1-10-2012 Office Minority Health

  11. Hearing Loss Descriptors (cont’d.) Conductive Hearing Loss Sensorineural Hearing Loss (aka Neural Hearing Loss) Mixed Hearing Loss 1-10-2012 Office Minority Health

  12. Severity of Hearing Loss Mild Moderate Severe Profound 1-10-2012 Office Minority Health

  13. Audiogram Examples 1-10-2012 Office Minority Health

  14. The Speech Banana 1-10-2012 Office Minority Health

  15. Working with Individuals who are Deaf Sense of hearing is non-functional without the use of technological assists May be congenital or acquired deaf vs. Deaf 1-10-2012 Office Minority Health

  16. Working with Individuals who are Deaf The Big “D” = Deaf Culture Deaf Pride Common Identity American Sign Language Recognition & Acceptance 1-10-2012 Office Minority Health

  17. Working with Individuals who are Hard of Hearing Hearing Loss can range from: Mild – Moderate – Severe – Profound Can affect one or both ears Onset is usually gradual but can be rapid Don’t get hung up on the labels 1-10-2012 Office Minority Health

  18. Working with Individuals who are Late-Deafened Hearing Loss usually severe to profound Occurs after speech and language are fully formed May feel “caught” between the hearing and the non-hearing worlds 1-10-2012 Office Minority Health

  19. Working with Individuals who are Deaf-Blind Defined as substantial loss of hearing and vision Does not have to mean total loss of hearing & vision May necessitate a Support Services Provider (SSP) It’s important to know the degree of residual vision and hearing to determine the appropriate type of visual, auditory, or tactile communications methods. 1-10-2012 Office Minority Health

  20. Who Are the Deaf & Hard of Hearing? May be deaf from birth using American Sign Language to communicate May be deaf or hard of hearing from birth using cochlear implants or hearing aids and spoken language Children, college students, and workers struggling without any assistive services or technology Children, college students, workers, and senior citizens who may use sign language, assistive listening devices such as hearing aids or cochlear implants, or CART or notetakers 1-10-2012 Office Minority Health

  21. Who Are the Deaf and Hard of Hearing? May have acquired their hearing loss after infancy or childhood Deaf-blind individuals, either from birth or acquired over time Senior citizens who are losing their hearing and may or may not use assistive technology Individuals with other disabilities on top of their hearing loss All in all – approximately 3,000,000 Floridians! 1-10-2012 Office Minority Health

  22. Surprising Facts and Figures Approximately 1 in 1,000 infants are born deaf or hard of hearing in Florida Approximately 5% of children younger than 18 years of age or younger have hearing loss An estimated 3 million Floridians have hearing loss Only 7% of deaf children are children of deaf adults Approximately 17% of adults in America report some hearing loss 50% of persons born between 1945 and 1965 are expected to join the ranks of persons who are deaf or hard of hearing 1-10-2012 Office Minority Health

  23. Surprising Facts and Figures (Cont’d.) 1 out of 3 people over age 65 currently report some degree of hearing loss Only 1 out of every 5 people who could benefit from a hearing aid actually wears one More than 188,000 individuals worldwide currently use cochlear implants to hear Hearing loss is the Number 1 service-related injury reported among military veterans It is estimated that over 22 million workers are exposed to injurious noise on the job 1-10-2012 Office Minority Health

  24. What Are The Major Issues? 1-10-2012 Office Minority Health

  25. Challenges – Medical Accessibility Denial of access to effective communication occurs in doctors’ offices and healthcare facilities All healthcare providers, both public and private, are mandated to provide equal access to effective communication at no cost to the requestor Ineffective communication access leads to poor outcomes: Illness/injury/death Hospitalizations Increased healthcare costs Litigation 1-10-2012 Office Minority Health

  26. Deaf Sign Language Users, Health Inequities, and Public Health March 2011 CDC Publication Preventing Chronic Disease: Public Health Research, Practice, and Policy Authors: Barnett MD, McKee MD, Smith MD & MPH, Pearson MD,PhD, MPH 1-10-2012 Office Minority Health

  27. Deaf Sign Language Users, Health Inequities, and Public Health Current data on the health of deaf persons are lacking Common surveillance methods (telephone surveys and written questionnaires) often exclude deaf ASL users Many deaf adults have low health literacy Barriers limit healthcare access for deaf ASL users Many deaf persons low-income & unemployed 1-10-2012 Office Minority Health

  28. Deaf Sign Language Users, Health Inequities, and Public Health Caption and interpret health information Reach out to deaf people in surveillance studies Include deaf-related demographic info (i.e. when hearing lost, type of hearing loss, etc) Use deaf-friendly language, interpreters, captioning Encourage public health careers among D/HH students Advocate funding to pay for accommodations expenses: interpreters, real-time captions, video relay phones, etc. 1-10-2012 Office Minority Health

  29. Challenges - Emergency Preparedness & Sheltering All general population shelters must be prepared to serve persons with hearing loss appropriately and safely Prior planning is needed to ensure adequate supply of qualified sign language interpreters during an emergency Emergency alerts need to utilize devices and technology accessible to persons with hearing loss There must be equal access to public safety telecommunications programming utilizing sign language and captioning 1-10-2012 Office Minority Health

  30. What Has The FCCDHH Done So Far? 1-10-2012 Office Minority Health

  31. Reports to the Governor & Legislature 2005 – “Accessibility Needs of Deaf, Hard of Hearing, and Late-Deafened Persons in Florida” 2006 – “Licensure of Sign Language Interpreters in Florida” 2007 – “Why Is It Important To Have A Council Representing Persons With Hearing Loss?” 2009 – “Lack of Communication Access By Persons with Hearing Loss Is A Growing Concern” 2011 “Biennial Report – Statistics, Accomplishments, and Continuing Work” 1-10-2012 Office Minority Health

  32. Training Materials Produced by Communication Accessibility Task Forces 1-10-2012 Office Minority Health

  33. Accomplishments of FCCDHH Medical Accessibility Task Force addresses need of persons with hearing loss 2006 Completion of Medical Communication Accessibility Training Manual 2008 Completion of Medical Communication Accessibility Training DVD 1-10-2012 Office Minority Health

  34. Accomplishments of FCCDHH 2007 - Legal Systems Accessibility Task Force formed to address needs of persons with hearing loss 2010 Completion of Legal System Access for Persons with Hearing Loss: Training Manual PowerPoint DVD 1-10-2012 Office Minority Health

  35. Accomplishments of FCCDHH (Cont’d.) Comprehensive website www.fccdhh.org. Delivery of in-service trainings on effective communication to healthcare providers: hospitals, hospices, nurses, etc. Collaboration, training, technical assistance, and input on aspects of effective communication to other governmental entities, such as the Governor’s Commission on Disabilities and the Department of Children and Families. 1-10-2012 Office Minority Health

  36. Our Work Continues… 1-10-2012 Office Minority Health

  37. Support early identification of hearing loss and treatment in children Support family choice among a diversity of communication modes: ASL, oral, combination, etc. Reinforce compliance with ADA standards for effective communication accommodations by employers, business and/or governmental agencies Educate legal and medical professionals about effective communication Increase access to mental health professionals able to communicate with persons who are deaf or hard of hearing 1-10-2012 Office Minority Health

  38. Encourage identification and treatment for those with unilateral, fluctuating, or minimal hearing loss Increase awareness of the full spectrum of hearing aid options, surgical interventions (cochlear implant, bone-conduction implants, middle-ear implants) and assistive technology Encourage consumers to select hearing aids equipped with telecoil switches to improve their access to assistive technology Increase access to cell phones that are compatible with hearing aids and cochlear implants Increase the use of ADA compliance-kits by lodging and residential facilities 1-10-2012 Office Minority Health

  39. Thank you for your attention! Questions? 1-10-2012 Office Minority Health

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