Challenges and Opportunities of 2-1-1 Research Collaboration

1. Difficulties, benefits and vision of 2-1-1 research collaboration Matthew W. Kreuter Kate Eddens Jason Q. Purnell Debbie Pfeiffer Health Communication Research Laboratory Washington University in St. Louis

2. Session goal Explore 2-1-1/research collaboration • Interactive • Your opinions matter

3. Why this topic? • Researchers “discovering” 2-1-1 • Balancing service & research • Protecting 2-1-1 interests

4. Structure of the session • Audience response survey • Discussion of results • A sample project • Tomorrow

5. Audience response survey

6. Using your Handset • Questions & answers on screen • Numbers on slide = numbers on handset • When countdown clock appears, push button on handset to answer • Please leave Handset on chair when session is over.

7. Practice questions

9. Should the toilet paper roll go over or under? • Over • Under

10. You are stranded on a desert island. Which would you most want with you? • Your favorite food • Your favorite music • Your favorite book • Your own pillow

11. REAL questions

12. Background information

14. Which best describes your I&R? • 2-1-1 • Aging / Disability • Blended Crisis • Comprehensive I&R (non 2-1-1) • Other specialized

15. Which best describes your role in your I&R? • President, VP, or CEO • Executive or program director • Call center manager • Information specialist • Resource specialist • Data manager or research analyst • Training coordinator • Other

16. Evaluation of standard services

18. How often does your I&R prepare a formal evaluation report in print or online form? • Every few years • Once a year • More than once a year • Not on a consistent schedule • Don’t know/not sure

19. How would you rate theprocess used to evaluate your I&R? • Outstanding • Excellent • Very Good • Good • Fair • Poor • Don’t know/not sure

20. Evaluation of special initiatives

22. Has your I&R ever conducted a special initiative? • Yes • No • Don’t know/not sure

23. Has your I&R ever conducted a special initiative focused on personal finance? • Yes • No • Don’t know/not sure

24. Has your I&R ever conducted a special initiative focused on health? • Yes • No • Don’t know/not sure

25. How often does your I&R formally evaluate its special initiatives? • Every time • Some of the time • Almost never • Never • Don’t know/not sure • Not applicable

26. How would you rate the process used by your I&R to evaluate special initiatives? • Outstanding • Excellent • Very Good • Good • Fair • Don’t know/not sure • Not applicable

27. Media campaigns

29. Has your I&R ever conducted a media campaign to promote awareness or use of services? • Yes • No • Don’t know/not sure

30. How often does your I&R formally evaluate the effects of its media campaigns? • Every time • Some of the time • Almost never • Never • Don’t know/not sure • Not applicable

31. Work with researchers: Experience & perceptions

33. Has your I&R ever worked with researchers? • Yes • No • Don’t know/not sure

34. How would you rate your past experience working with researchers? • Very positive • Somewhat positive • Somewhat negative • Very negative • Don’t know/not sure • Not applicable

35. What would be your greatest concern about working with researchers? • There would be additional strain on staff & resources • Researchers may have different priorities than ours • Our stakeholders may not value research • Our callers may not benefit from research • Assuring we can protect the privacy of our data • I have some other concern • I don’t have any concerns

36. What would be your next greatest concern about working with researchers? • There would be additional strain on staff & resources • Researchers may have different priorities than ours • Our stakeholders may not value research • Our callers may not benefit from research • Assuring we can protect the privacy of our data • I have some other concern • I don’t have any concerns

37. What would be the most important benefit of working with researchers? • Strong evaluation methods • Help analyzing data • Potential for improved services • Access to research funding • Learning about program effectiveness • Some other benefit • I see no benefits

38. What would be the next most important benefit of working with researchers? • Strong evaluation methods • Help analyzing data • Potential for improved services • Access to research funding • Learning about program effectiveness • Some other benefit • I see no benefits

39. How interested would you be in forming a research partnership involving your I&R? • Extremely interested • Very interested • Somewhat interested • Not at all interested

40. Thank you! Which best describes how valuable your responses are?

41. Please leave the Handset on your chair when session is over.

42. Building a 2-1-1 research consortium Can research… • …advance 2-1-1’s mission? • …enhance 2-1-1’s services? • …help secure 2-1-1 funding?

43. Building a 2-1-1 research consortium Can 2-1-1… • …build a knowledge base? • …monitor population needs? • …expand its scope of helping services?

44. Cancer risks in 2-1-1 callers in Missouri, North Carolina, Texas, and Washington Presented at the Alliance of Information & Referral Systems Conference Rochester, NY May 25, 2010 Jason Q. Purnell, PhD, MPH

45. Cancer Prevention & Control Research Network (CPCRN) United Way 2-1-1 Missouri King County 2-1-1 North Carolina 2-1-1 United Way 2-1-1 Houston

46. Study goals • To estimate the unmet cancer control needs of 2-1-1 callers • To compare findings from 2-1-1 to state and national rates • To demonstrate the feasibility of partnering with 2-1-1 systems for research

47. Risk Assessment • Six areas of cancer risk: • Breast cancer screening (mammography) • Colorectal cancer screening (colonoscopy) • Cervical cancer screening (Pap test) • Human papillomavirus (HPV) vaccination • Smoking • Smoke-free homes and cars • Provided appropriate cancer control referrals