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Week 9: Family Advocacy

Week 9: Family Advocacy. PSRT 4271: The Family Role in Rehabilitation. First, Something Not So Unrelated…. Electroconvulsive Therapy Considerations (as undertaken this week by a family…). What Was Proposed…. Background. Proposal. Age: 27 (male) Diagnosis: Dual Sensitivity: some meds

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Week 9: Family Advocacy

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  1. Week 9: Family Advocacy PSRT 4271: The Family Role in Rehabilitation

  2. First, Something Not So Unrelated… Electroconvulsive Therapy Considerations (as undertaken this week by a family…)

  3. What Was Proposed… Background Proposal • Age: 27 (male) • Diagnosis: Dual • Sensitivity: some meds • Complaint: Voices • Situation: Level 4 • 21 days so far • Time running out? • Plan: Rehab  Residential • ECT • Treatment: “a few seconds” • Seizure: ~15 minutes • 6-12 sessions • 2 more weeks inpatient • Anesthesia, relaxant • Outcome? “Whispers” • Follow-up: “Maintenance” • “Nicholson will go to hell for his movie…”

  4. One Flew Over The Cuckoo’s Nest

  5. Shock Therapy!

  6. How It Used To Be…

  7. Electroconvulsive Therapy (1986) 20 minute clip: http://www.medclip.com/index.php?page=videos&section=view&vid_id=109703

  8. ECT today • Carol Kivler Also: http://www.psychodyssey.net/?page_id=1931

  9. Research

  10. What To Do?...

  11. Family Advocacy

  12. The Recent History

  13. 1955: The prevailing Theory “When a domineering, nagging and hostile mother...is married to a dependent, weak man...the weak parent...becomes antagonistic and hostile toward the children...” SilvanioArieti Interpretation of Schizophrenia, 1955 National Book Award - 1975

  14. 1960s: Deinstitutionalization begins • California: from 37,000 in 1950s… • …to ~19,000 by 1969

  15. 1969: Lanterman-Petris-Short Act (LPS) • California Community Mental Health Services Act • Involuntary: 17 days only • LPS: “unholy alliance” (Torrey, 2008) • Lanterman: “conservative curmudgeon”  antipsychiatry • Petris: ultra-liberal  civil rights • Legacy • From 19,000  7,000 by 1973

  16. Early 1970s • A “Psychiatric Titanic”

  17. Early 1970s: Articles begin to appear… Appleton, W. S. (1974). Mistreatment of patients' families by psychiatrists. The American Journal of Psychiatry, 131(6), 655-657.

  18. 1972: National Schizophrenia Fellowship(United Kingdom) • John Pringle’s 1970 Letter to The Times…

  19. 1974: Parents of Adult Schizophrenics • Eve Oliphant

  20. 1975: Tony Hoffman pushes local advances • CA: Legislation puts two family members on every county mental health board

  21. Dr. H. Richard Lamb collaborates

  22. 1977: Eve Oliphant at World Congress of Psychiatry “We failed to understand why parents of a child with leukemia were treated with sympathy and understanding, while parents of a child with schizophrenia were treated with scorn and condemnation."

  23. Late 1970s: Statewide Organization • 1979: California Association Families of the Mentally Ill ( 1982: CAMI)

  24. Late 1970s: The Movement Grows • Other parents organize in other states

  25. 1979: Eve Oliphant Addresses the APA

  26. 1979: NAMI Founded • Harriet Shetler and other mothers in Wisconsin invite all to unify…

  27. The NJ Advocacy Landscape

  28. …, 2

  29. NAMI Advocacy • National • State

  30. …, 2 • Local • Resources: http://www.psychodyssey.net/?page_id=3304

  31. NJ Budget: A Quick Look… (走馬看花)

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