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WORLD PSORIASIS DAY 29th October 2010. Chile Colombia El Salvador. ASSOCIATIONS. México Venezuela Argentina. Puerto Rico Ecuador Panamá. ASSOCIATIONS. UNAPSO, União Nacional das Associações de Brasil Amazonas (Brasil) São Paulo (Brasil) Rio de Janeiro (Brasil). Bahia (Brasil)

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world psoriasis day 29th october 2010
WORLD PSORIASIS DAY

29th October 2010

associations
Día Mundial de la Psoriasis 2010

Chile

Colombia

El Salvador

ASSOCIATIONS
  • México
  • Venezuela
  • Argentina
  • Puerto Rico
  • Ecuador
  • Panamá
associations1
ASSOCIATIONS
  • UNAPSO, União Nacional das Associações de Brasil
  • Amazonas (Brasil)
  • São Paulo (Brasil)
  • Rio de Janeiro (Brasil)
  • Bahia (Brasil)
  • Ceará (Brasil)
  • Brasília(Brasil)
  • RG do Sul (Brasil)
snapshot
SNAPSHOT

LATINAPSO had for WPD 2020 :

  • 39 urban actions (56% more than in 2009)
  • 60 TV apperarances (50% more than in 2009)
  • 70 radio appearances (27% more than in 2009)
  • 103 notes and interviews on written press and internet (34% more than in 2009)
urban actions
URBAN ACTIONS

All Associations in LATINAPSO together prepared 39 urban actions for WPD (56% more than last year) on 19 cities

  • Argentina: Córdoba, Santa Fe, Tucumán, Buenos Aires, Mar del Plata
  • Brasil: Brasilia, Fortaleza, Porto Alegre, Rio de Janeiro, Salvador de Bahia, São Paulo
  • Colombia: Cali, Manizales y Medellín
  • Ecuador: Quito
  • El Salvador: San Salvador
  • Panamá: Ciudad de Panamá
  • Puerto Rico: San José
  • Venezuela: Caracas
urban actions1
URBAN ACTIONS
  • Live music with delivery of leaflets and T-shirts, in Salvador de Bahia (Brasil),
  • Public party with traditional music and theatre in Quito (Ecuador)
  • Events for doctors, patients, families and press in Salvador de Bahia, as well as conference-talks at public hospitals in Fortaleza, Argentina,
  • Street parade and patining on bare feet in Medellín, Manizales y Cali (Colombia).
  • Awareness walk in Fortaleza (Brasil), Quito (Ecuador) and Panamá.
urban actions2
URBAN ACTIONS
  • Information stands for the distribution of informative material and medical advice in the city center in Porto Alegre (Brazil) in Rio de Janeiro (Brazil)
  • Delivery of free information at bus stops in San Salvador (El Salvador)
  • Educational meeting, press conference at open air, in front of the beach in Puerto Rico
  • Inline skating in group in Buenos Aires and Mar del Plata (Argentina)
media
MEDIA

All together, Associations member of Latinapso were present on:

  • 49 TV channels
  • 45 radios
  • 34 newspapers
  • 18 internet sites (excluding Associations` websites and Latinapso website)
television
TELEVISION

All together LATINAPSOAssociations were 60 times on TV (50% more than previous year) in 49 channels of Latin America:

  • Argentina: América, América 24, TN, Canal 26, Canal 7, Crónica, Metro, canal local de Santa Fe, Canal 8, Canal 10, Canal 5 Supercanal, Canal 12 CCC, Canal de Cable San Cayetano
  • Brasil: Tv Globo , Tv Bandeirantes,Tr Rit, TV Diário, TV Verdes Mares, TV União, TV Cidade, RBS TV, TV Educativa, TV Urbana, TV Senado
  • Colombia: Caracol TV, Telepacífico, Televida, Canal 8
  • Ecuador: RTS , Gama TV, TC Televisión, Hoy TV
  • El Salvador: Canal 2, Canal 4, Canal 10 (Televisión Nacional), Canal 8
  • Panamá: Telemetro, Canal 23, Canales de Cable, TVN, RPC, Hossana
  • Puerto Rico: Wapa TV, Tele ORO
  • Venezuela: Publi Tips, Venevisión, Venezolana de Televisión, Televen
radio
RADIO

All together LATINAPSOAssociations were 70 times on the Radio (27% more than previous year) in 45 stations of Latin America:

  • Argentina: AM: LU9 Radio Mar del Plata- FM: 98.5 Radio "Brisas“, LV7 Y LV12 en sus frecuencias AM y FM- Metropolitana FM, LT9 y FM sol sport, María Córdoba, Radio Rosario, Radio 2 Rosario, Cadena 3, Radio Del Plata, Radio10, FM Millenium, Radio Palermo,
  • Brasil: Metrópole FM, Rádio Guaíba, Band News, Rádio ABC, Rádio Verdes Mares, Radio Globo,Radio Melícia da Imaculada,Radio Capital
  • Colombia: Caracol Radio, LA FM, Todelar, Red Sonora
  • Ecuador: EQUASHIRYS - IRFEYAL, QUITO, La Luna
  • El Salvador: Radio Luz, Radio María
  • México: Educación, Radio Centro, IMER
  • Panamá: RPC Radio, La Exitosa;KW Continente, Radio María, Fabulosa Stereo,Omega Stereo, Radio Nacional
  • Puerto Rico: Univision, WKAQ, Radio ORO, Radio Isla
  • Venezuela: JAZZ 95.5, Kuerpo Sano FM
written press and internet
WRITTEN PRESS AND INTERNET

All together LATINAPSOAssociations were named or interviewed 103 times on written press and internet (34% more than previous year) in 34 newspapers and 18 sites of Latin America:

other activities
OTHER ACTIVITIES

There were as well:

  • 47 open conference-talks
  • 26 participation at Fairs and Congress
  • 26 interactive workshops for general public
  • 17 additional activities: presss conferences, presentation of videos and books about psoriasis, premiere of institutional videos of some Associations, posters and stickers stamping, days of free medical advice
ideas from the workshosp about wpd from 2nd meeting of latinapso may 2010
IDEAS FROM THE WORKSHOSP ABOUT WPD FROM 2nd MEETING OF LATINAPSO (May 2010)
  • All Associations said to have taken advantage of the ideas gathered at the Brainstorming sessionat the 2nd Meeting of LATINAPSO
  • Some Associations copied the slogans, other the ideas for urban actions (balloons, awareness walks) or activities for children
  • To be remarked: all Associations are aware of the need of effectively communicate their message, adapting it depending on the public (patients, doctos, industry, media, etc.)
challenges for wpd 2011
CHALLENGES FOR WPD 2011
  • Associations point as challenges for next year:
    • Professional training for actions with governments (petitions, etc.)
    • Having lager budget for more urban actions
    • Interactive workshop for media at 3rd Meeting of Latinapso
    • Strategy of communication at Latinapso on the whole region
    • Begin in 2010 to prepare the WPD 2011
summary of activities
SUMMARY OF ACTIVITIES

Activities from all Associations member of Latinapso for WPD 2010 under the slogan:

Childhood psoriasis, a challenge for all

brasil unapso asociaci n de psoriasis de brasil
BRASIL – UNAPSOAsociación de Psoriasis de Brasil
  • Event in the Brazilian press Association, where there were presented films about the disease, with conferences of doctors and patients.
  • The president of UNAPSO BRAZIL gave a speech to present the newly created UNAPSO.
brasil abrapse asociaci n brasiliense de psoriasis
BRASIL – ABRAPSEAsociación Brasiliense de Psoriasis
  • Information activitiy in coordination with the Secretariat of Assistência Médica Social – (Sams), Hospital Universitário de Brasília- HUB, Sociedade Brasileira de Dermatologia – SBD y Associação Brasiliense de Psoríase – (Abrapse). Place: Senado Federal (National Congress)
  • Release of the 4th edition of brochure “Combatendo a psoríase com informações” (Fighting psoriasis with information)
brasil abapp asociaci n bahiana de portadores de psoriasis
BRASIL – ABAPPAsociación Bahiana de Portadores de Psoriasis
  • Urban action: Live music with delivery of leaflets and T-shirts
  • Public event for
    • Doctors
    • Patients, family and friends
    • Health Authorities
    • Press
    • SBD - Sociedade Brasileira de Dermatologia.
brasil acepp asociaci n cearense de portadores de psoriasis
BRASIL – ACEPPAsociación Cearense de Portadores de Psoriasis
  • Medical conference-talks
  • Awareness walk
  • Closing event at public hospital
brasil apam asociaci n de psoriasis de amaz nia
BRASIL – APAMAsociación de Psoriasis de Amazônia

Educational event for patients and general public at Fundação Alfredo da Matta in Manaus city

brasil psorisul asociaci n de psoriasis de rio grande do sul
BRASIL – PSORISULAsociación de Psoriasis de Rio Grande do Sul
  • Conference-talk and free activities for patients
  • Awareness week for psoriasis patients
  • Free delivery of guide “Psoriasis, uma questão da pele” (Psoriasis, a matter of skin)
brasil psorisul asociaci n de psoriasis de rio grande do sul1
BRASIL – PSORISULAsociación de Psoriasis de Rio Grande do Sul
  • Speech at Camara de Vereadores de Porto Alegre (local government)
brasil psorierj asociaci n de psoriasis de rio de janeiro
BRASIL – PSORIERJAsociación de Psoriasis de Rio de Janeiro
  • Information stand at Praça da Cinelândia in the city centre, with doctors and patients delivering educational brochures and leaflets for general public.
brasil aapp asociaci n de apoyo a los portadores de psoriasis de s o paulo
BRASIL – AAPPAsociación de Apoyo a los Portadores de Psoriasis de São Paulo
  • Urban action with information and clowns at the city centre
colombia fundapso fundaci n de psoriasis de colombia
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia
  • Meetings for patients
  • Free conference-talks in three cities: Manizales, Medellín y Cali.
  • Activities for childen at hospitals
  • Urban actions: Street parade and patining on bare feet in Medellín, Manizales y Cali (Colombia)
  • Delivery of free gifts: T-shirts of Teddy bear and Teddy-bears
colombia fundapso fundaci n de psoriasis de colombia1
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia

Urban actions: conference-talks and activities at children hospitals

colombia fundapso fundaci n de psoriasis de colombia2
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia

Urban Actions: street parade and foot-painting

colombia fundapso fundaci n de psoriasis de colombia3
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia

Premiere of insitutional video of FUNDAPSO

http://www.youtube.com/watch?v=1GS8SyNoXbc&feature=player_embedded

el salvador psonuves psoriasis nueva vida el salvador
EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador
  • 8 educational and medical conference-talks
  • Ads and interviews on TV and radio
  • Urban actions
  • Closing event, with premiere of institutional video
el salvador psonuves psoriasis nueva vida el salvador2
EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador

Institutional video:

http://vimeo.com/16337198

Video of the event:

http://www.youtube.com/watch?v=WI1SAo4Hodw&feature=player_embedded

Inteviews for the WPD:

http://www.youtube.com/watch?v=UU5M9jkJZck&feature=player_embedded

puerto rico apapp asociaci n puertorrique a de ayuda al paciente de psoriasis1
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis
  • Free educational meeting
    • Objective: to educate about the disease, existing treatmente as well as offer tools for improving quality of live and overcome rejection towards social integration
    • Participation of dematologists and reumathologists
puerto rico apapp asociaci n puertorrique a de ayuda al paciente de psoriasis2
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis
  • Press conference and urban action at open air, at Ventana al Mar en San Juan
puerto rico apapp asociaci n puertorrique a de ayuda al paciente de psoriasis3
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis

Report “The efectos of psoriasis”, on Wapa TV: http://www.wapa.tv/noticias/salud/los-efectos-de-la-psoriasis/20101114185450

Article about urban action of APAPP at Notisalud Wapa TV: http://wapa.tv/noticias/salud/dia-mundial-de-la-psoriasis/20101030181137

Día Mundial de la Psoriasis 2010

m xico amcpso asociaci n mexicana contra la psoriasis
MÉXICO – AMCPSOAsociación Mexicana contra la Psoriasis
  • 7th National Congress for Psoriasis patients and families
  • SIMPOSIUM ABOUT PSORIASIS, for healthcare professionals
  • Press conference
m xico amcpso asociaci n mexicana contra la psoriasis2
MÉXICO – AMCPSOAsociación Mexicana contra la Psoriasis

Congress for

psoriasis patients

and families

ecuador fepso fundaci n ecuatoriana de la psoriasis
ECUADOR – FEPSOFundación Ecuatoriana de la Psoriasis
  • Conference-talks
  • Urban actions
  • Media
  • Closing public event
panam fpp fundaci n de psoriasis de panam
PANAMÁ – FPPFundación de Psoriasis de Panamá

Drawing contest for children – 2nd prize at IFPA

venezuela avepso asociaci n venezolana de psoriasis
VENEZUELA – AVEPSOAsociación Venezolana de Psoriasis
  • 29th October, 14:00h
  • Auditorium IPP at UCV
  • Open forum and conference-talk with two excelent specialists in child psoriasis and psoriasis arthritis
  • Free entrance
argentina aepso asociaci n de enfermos de psoriasis
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
  • Children drawing contest
  • Urban actions in five cities
  • Conference-talks for patients, doctors and general public, in 5 cities
  • Petitions to government authorities
  • 58 appearances at media
argentina aepso asociaci n de enfermos de psoriasis1
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis

Petitions to authorities

Drawing contest for children

slide49

ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis

4

“Do not let psoriasis tear us apart”

slide50

ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis

Urban actions in five cities

Santa Fe

Córdoba

Tucumán

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