Cystic Fibrosis Case Study. Gender: 1 Male & 1 Female Age: 12 yrs & 11 yrs old Setting: 4N at MAMC Ethnicity: Irish, Scottish, German (Western European) Cultural considerations: none. Nursing Diagnosis. Ineffective Airway Clearance . Nursing Diagnosis.
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-Health care barriers
-Open conversations, tell them the truth, use medical terms; pts very comfortable with usage of medical terminology.
Roman Catholic- Family tries to follow Catholic guidelines, but is not too heavily involved in church.
Passionate about politics and very patriotic:
-Won’t buy anything that is made in China!!!
-Parents are now divorced and 7 kids live with dad.
Siblings ages are: 18, 17, 14, 12, 11, 10, & 8
-Family closeness is important and care by father is limited because he works long hours, thus other siblings are relied upon to care for pts.
There are seven children in this family, these children are not the youngest.
Was it ethical for the parents to continue having children even though they knew they carried the gene for cystic fibrosis and one previous child had cystic fibrosis?
“Tis better to have loved and lost than never to have loved at all”
“The way to love anything is to realize that it might be lost.”
This disease can be very limiting and costly as far as medical needs.
Are we to judge the family for this?
Best Nursing Practice Continued
Imbalanced Nutrition: less than body requirements
Outcome: Child will maintain adequate nutritional intake and weight gain will occur.
Calorie counts to ensure adequate intake (may need up to 20-50% more than RDI)
Assist family in choosing higher calorie, protein rich food, and high fat snacks to optimize growth
Offer favorite foods to encourage eating
Encourage supplements (pancreatic enzymes)
Continuous monitoring including weights, heights, BMI, ideal body weight percentile, skin fold thickness, and upper arm circumference
Goal sheets (journal article)
Wendy Magana Danielle Hower Clint Studlow