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Multiple Myeloma Patient Support Group (KPMM) Activities and organization changes

Multiple Myeloma Patient Support Group (KPMM) Activities and organization changes. 26-27 March 2010, Olsztyn for V. Congress of Polish Myeloma Patient Help Association. About us. Founded in May 2006, self-dependent from March 2007

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Multiple Myeloma Patient Support Group (KPMM) Activities and organization changes

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  1. Multiple Myeloma Patient Support Group (KPMM)Activities and organization changes 26-27 March 2010, Olsztyn for V. Congress of Polish Myeloma Patient Help Association

  2. Aboutus • Founded in May 2006, self-dependent from March 2007 • Regional groups: Brno, Praha, Plzeň, Hradec Králové, Olomouc • 190 members

  3. Generalchange New function - groupcoordinatorfrom August 2008 • professionalworker - free ofdisease • anytimeavailable • withoutphysicalandpsychical stress

  4. What has improved • Continual, faster and easier interchange of information between regional groups • Cut-down of members (patients) paper work • Well-arranged and actual websites, wider content of patient journal • Regular leaflets with new information • Office with fixed working hours • More time spent with leaders of regional groups • New designe of published material

  5. What more wewish • Increase the number of members • Reach out more patients with multiple myeloma (non-members) • Offer psychological and emotional support to the patients and their relatives • Get more partners for support of patient activities

  6. Patientactivities

  7. Patientactivities

  8. Patientactivities

  9. Thankyouforyourattention Roman Hajek for KPMM

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