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UK Renal Registry Update 2008: Overview, Development, and Future Plans

Explore the latest updates and future plans of the UK Renal Registry in 2008, including registry structure, staff, new analyses, IT upgrades, reports, grants, data items, and strategic development. Get insights on transplant waiting lists, clinical practices, patient views, and more.

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UK Renal Registry Update 2008: Overview, Development, and Future Plans

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  1. UK Renal Registry Update2008 – 09and future plans

  2. Overview • Registry structure & development • Registry Report highlights / new analyses • Work in progress • Grants in progress • New analyses

  3. Registry Staff Deputy Director / senior project manager Project manager Informatics manager 1 additional statistician (total = 4) 1 additional IT database support

  4. Registry IT Re written the UKRR database New hardware (Linux box) New database New language for file loading routines = New error reports Updated for NRD Changes to file submission interface IT support for new web based databases

  5. New data items Pre RRT CKD 5 (at 6 sites only) Monthly extracts of lab data in quarterly data extract (+dates) Access – vascular & PD HD individual session logging

  6. New data items Transplant waiting list status - at dialysis centres too

  7. Registry Reports 2008 Nephron clinical practice supplement Hard copies available as per usual CDs available at RA meeting

  8. Registry Reports Commissioner specific Report Transplant specific Report to BTS

  9. 5th quintile Rate = 137 Least deprived

  10. Renal Patient View Keith Simpson & Neil Turner continue to direct strategy and development Management moved to Bristol Registry Informatics manager handling email queries Funded £2.50 (inc VAT) per RRT patient

  11. Web based Rare disease Registries

  12. Renal Data Map Atlas Grant from Dept Health East Midlands PHO Afzal Chaudhry http://www.renalreg.com/interactive-maps/

  13. Centre specific reporting

  14. Centre specific reporting

  15. Centre specific reporting

  16. Centre specific reportingAfzal Chaudhry

  17. Centre specific reportingAfzal Chaudhry

  18. Modelling RRT Dept of Health Excel based model, July release Configurable locally Inputs Rates, age, deaths, modality use, ethnicity, deprivation, costs Future support ? by Registry

  19. Achievement of guidelines by satellite

  20. Other analyses Standards and Survival on home HD Daily Dialysis Survival benefit of transplantation Audit of death after transfer to adult care BP and survival on HD International comparisons of standard achievement

  21. Grants submitted CKD 4/5 (HQIP tender -not won) Improving access to transplantation Improving centre outcomes Statistical survival prediction model

  22. UKRR Papers published 2008-09

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