Uk renal registry update 2008 09 and future plans
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UK Renal Registry Update 2008 – 09 and future plans. Overview. Registry structure & development Registry Report highlights / new analyses Work in progress Grants in progress New analyses. Registry Staff. Deputy Director / senior project manager Project manager Informatics manager

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Uk renal registry update 2008 09 and future plans l.jpg

UK Renal Registry Update2008 – 09and future plans


Overview l.jpg
Overview

  • Registry structure & development

  • Registry Report highlights / new analyses

  • Work in progress

  • Grants in progress

  • New analyses


Registry staff l.jpg
Registry Staff

Deputy Director / senior project manager

Project manager

Informatics manager

1 additional statistician (total = 4)

1 additional IT database support


Registry it l.jpg
Registry IT

Re written the UKRR database

New hardware (Linux box)

New database

New language for file loading routines

= New error reports

Updated for NRD

Changes to file submission interface

IT support for new web based databases


New data items l.jpg
New data items

Pre RRT

CKD 5 (at 6 sites only)

Monthly extracts of lab data in quarterly data extract (+dates)

Access – vascular & PD

HD individual session logging


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New data items

Transplant waiting list status

- at dialysis centres too


Registry reports l.jpg
Registry Reports

2008 Nephron clinical practice supplement

Hard copies available as per usual

CDs available at RA meeting


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Registry Reports

Commissioner specific Report

Transplant specific Report to BTS


Slide14 l.jpg

5th quintile

Rate = 137

Least deprived


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Renal Patient View

Keith Simpson & Neil Turner continue to direct strategy and development

Management moved to Bristol

Registry Informatics manager handling email queries

Funded £2.50 (inc VAT) per RRT patient


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Web based Rare disease Registries


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Renal Data Map Atlas

Grant from Dept Health

East Midlands PHO

Afzal Chaudhry

http://www.renalreg.com/interactive-maps/







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Modelling RRT Dept of Health

Excel based model, July release

Configurable locally

Inputs

Rates, age, deaths, modality use, ethnicity, deprivation, costs

Future support ? by Registry



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Other analyses

Standards and Survival on home HD

Daily Dialysis

Survival benefit of transplantation

Audit of death after transfer to adult care

BP and survival on HD

International comparisons of standard achievement


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Grants submitted

CKD 4/5 (HQIP tender -not won)

Improving access to transplantation

Improving centre outcomes

Statistical survival prediction model



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