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Exploring Family Dynamics in Sharing Genetic Illness Information: Narratives and Contexts

This investigation delves into how families communicate information regarding genetic illness and risk. Focusing on the interplay of practical kinship and emotional labor, the study analyzes narratives, evasion tactics, and awareness contexts that influence familial discussions about genetics. Utilizing tools from social anthropology and sociology, it examines the role of time, change, and generational transitions in shaping these stories. The research highlights the complexity of information sharing within families and the underlying theories of transmission and inheritance.

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Exploring Family Dynamics in Sharing Genetic Illness Information: Narratives and Contexts

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Presentation Transcript

  1. Paul Atkinson

  2. ESRC Centre for the Economic and Social Aspects of Genomics Wellcome Trust

  3. How do families share information about genetic illness and risk?

  4. “Families” Practical Kinship Relatedness Social Anthropology Sociology

  5. “Information” Stories Evasions Suspicions Awareness Contexts Emotional Labour Information Games

  6. “Generations” Accounting device Time and change Transitions Narratives Narrative Analysis Discourse Analysis

  7. “Genetics” Theories of Transmission Routes and substances Ethnoscience Anthropology of inheritance Sociology of medicine

  8. Acknowledgements • Maggie Gregory • Katie Featherstone • Rebecca Dimond • Paula Boddington

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